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<blockquote data-quote="Krx" data-source="post: 2047367" data-attributes="member: 502367"><p>Forewarning: this is gonna be another one of my verbose posts...</p><p></p><p>well, true to form, the NHS have proved absolutely worthless, and despite only having been diagnosed less than 2 months ago, I'm afraid I've had more than enough of just being a box ticking exercise for them while they entirely disregard anything I have to say and hand out appalling, outdated advice. And they are yet to actually get my prescription right.</p><p></p><p>Although that's a moot point now. I've decided, for better or for worse, to go my own way. I don't think I'm even going to continue jumping through their hoops any more. I've had to take nearly half my annual leave so far just to go to 10 minute slots of pointlessness with poorly informed, uninterested hypocrites.</p><p></p><p>Like the diabetes clinic nurse who is almost as wide as she is tall, sitting there with her butt cheeks hanging over both sides of her nice wide leather office chair, telling 32 inch waisted 11 stone me how obese I am and how I really need to lose weight because it's my poor lifestyle that's caused this self inflicted disease.</p><p></p><p>They don't believe my diet, my pain levels, my side effects, or my levels of insomnia. So what's the point?</p><p></p><p>Partly because they left me without any meds over the easter bank holiday weekend, I managed to blag myself onto the SR version of Metformin (after they'd initially refused me twice) when they had to scrabble around to find someone to write me a prescription, and it was better from the perspective that my gripping stomach cramps went away almost immediately on switching. The thing is, though, that I've been feeling increasingly worse and worse in myself since I started on meds (bearing in mind that I didn't really feel ill in the first place before I was diagnosed!), and even though the SR relieved certain symptoms, I actually think they made other issues worse.</p><p></p><p>Not least, the leg pain. What was a dull ache and annoying pins and needles progressed to a searing, agonising burning from my butt to my foot, and often complete loss of any feeling in my foot at all. The more I ramped up the meds to my goal levels, the worse it got. Now I realise this could also be my body reacting to basically quartering my 'normal' bg levels, but I also noticed that on days where I couldn't face eating enough to take all 3 metformin, the symptoms would ease a bit.</p><p></p><p>The leg pain has been so bad over the last couple of weeks that I've been going like 72 hours without any sleep whatsoever, and can barely walk at times. The highlight came when I necessarily had to get up and hobble around in the middle of the night, more or less in tears, and decided to make myself a hot drink. I woke up 3 hours later face down on the kitchen floor in a puddle of what had been boiling water, still clutching the kettle. I guess at least I got some rest that night, even if I had to pass out from pain to do it.</p><p></p><p>I relayed this to obese diabetes nurse, and she nodded sympathetically. And then stated that she didn't think this was related to metformin or indeed peripheral neuropathy.., but they're not even willing to get it checked out.</p><p></p><p>Still, with all those waking hours to kill, I think I've read every thread on these forums and pretty much everything Jason Fung has written.</p><p></p><p>I've been doing what's supposed to be 18:6 fasting lately, except it's more like 23:1, because I'm basically eating 1 meal a day. Largely because I've been feeling so darn nauseous from the extreme pain.</p><p></p><p>So the last couple of days I was like 'you know what? let's just stop taking the metformin and see if I feel any better'.</p><p></p><p>Last night I slept for 4 hours (that might not sound like a lot to you, but that's a lie in for me!), with barely a tingle in my foot and today I feel pretty darn good for the first time in months.</p><p></p><p>Sooo, whether it's a good idea or not, I'm done with the meds and the NHS for now. I got a copy of my blood results and researched my levels for a bunch of stuff and decided what supplements I needed, and between that and diet I'm going to just deal with it my own way. Besides, my numbers have been fine for weeks now. I'm not even deviating more than about 0.2mmol/L after meals because I've basically gone no carb. Including the last two days without metformin.</p><p></p><p>So, right now, my status is: "T2D (in rebellion...)"</p><p></p><p>I'll check in in a few weeks and let you know how it goes from here <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /></p></blockquote><p></p>
[QUOTE="Krx, post: 2047367, member: 502367"] Forewarning: this is gonna be another one of my verbose posts... well, true to form, the NHS have proved absolutely worthless, and despite only having been diagnosed less than 2 months ago, I'm afraid I've had more than enough of just being a box ticking exercise for them while they entirely disregard anything I have to say and hand out appalling, outdated advice. And they are yet to actually get my prescription right. Although that's a moot point now. I've decided, for better or for worse, to go my own way. I don't think I'm even going to continue jumping through their hoops any more. I've had to take nearly half my annual leave so far just to go to 10 minute slots of pointlessness with poorly informed, uninterested hypocrites. Like the diabetes clinic nurse who is almost as wide as she is tall, sitting there with her butt cheeks hanging over both sides of her nice wide leather office chair, telling 32 inch waisted 11 stone me how obese I am and how I really need to lose weight because it's my poor lifestyle that's caused this self inflicted disease. They don't believe my diet, my pain levels, my side effects, or my levels of insomnia. So what's the point? Partly because they left me without any meds over the easter bank holiday weekend, I managed to blag myself onto the SR version of Metformin (after they'd initially refused me twice) when they had to scrabble around to find someone to write me a prescription, and it was better from the perspective that my gripping stomach cramps went away almost immediately on switching. The thing is, though, that I've been feeling increasingly worse and worse in myself since I started on meds (bearing in mind that I didn't really feel ill in the first place before I was diagnosed!), and even though the SR relieved certain symptoms, I actually think they made other issues worse. Not least, the leg pain. What was a dull ache and annoying pins and needles progressed to a searing, agonising burning from my butt to my foot, and often complete loss of any feeling in my foot at all. The more I ramped up the meds to my goal levels, the worse it got. Now I realise this could also be my body reacting to basically quartering my 'normal' bg levels, but I also noticed that on days where I couldn't face eating enough to take all 3 metformin, the symptoms would ease a bit. The leg pain has been so bad over the last couple of weeks that I've been going like 72 hours without any sleep whatsoever, and can barely walk at times. The highlight came when I necessarily had to get up and hobble around in the middle of the night, more or less in tears, and decided to make myself a hot drink. I woke up 3 hours later face down on the kitchen floor in a puddle of what had been boiling water, still clutching the kettle. I guess at least I got some rest that night, even if I had to pass out from pain to do it. I relayed this to obese diabetes nurse, and she nodded sympathetically. And then stated that she didn't think this was related to metformin or indeed peripheral neuropathy.., but they're not even willing to get it checked out. Still, with all those waking hours to kill, I think I've read every thread on these forums and pretty much everything Jason Fung has written. I've been doing what's supposed to be 18:6 fasting lately, except it's more like 23:1, because I'm basically eating 1 meal a day. Largely because I've been feeling so darn nauseous from the extreme pain. So the last couple of days I was like 'you know what? let's just stop taking the metformin and see if I feel any better'. Last night I slept for 4 hours (that might not sound like a lot to you, but that's a lie in for me!), with barely a tingle in my foot and today I feel pretty darn good for the first time in months. Sooo, whether it's a good idea or not, I'm done with the meds and the NHS for now. I got a copy of my blood results and researched my levels for a bunch of stuff and decided what supplements I needed, and between that and diet I'm going to just deal with it my own way. Besides, my numbers have been fine for weeks now. I'm not even deviating more than about 0.2mmol/L after meals because I've basically gone no carb. Including the last two days without metformin. So, right now, my status is: "T2D (in rebellion...)" I'll check in in a few weeks and let you know how it goes from here :) [/QUOTE]
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