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On tablets and still high.. hitting a brick wall here

L

lyou456

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5
Diagnosed type 2, 10 months ago , was very high at 25 but no symptoms. Put on gliclazide and metformin and given testing kit. I am 24 yo and not overweight (8st8) got all tests done like eyes and feet ect no problems. Done testing and taking tablets religiously with only a slight change now always sitting around the 14/15 mark. Can’t get any lower and I have cut out all sugary foods and some carbs. I do exercise. My problem is when I test myself I am high and I don’t know what to do about it ? Been 25 before at my highest but no symptoms. What do I do when I am that high ? I can’t keep going to the doctors every couple of days when I am high. I am never low - never any lower than 9 and when I am at 9 I feel shakey lethargic and weak , (wouldn’t want to go any lower than that if that’s how I feel) I just eat something and I am fine again. Really getting me down as I know being that high is going to have an effect on me in the future, but diabetic clinic doesn’t seem bothered as my next app is end of December which is 9 months after my last appointment... I thought being newly diagnosed and out of the ordinary t2 criteria they would want to keep close eye on me ? Any help or advice gladly appreciated.
 
Hello, welcome, any possibilities that you are wrongly diagnosed? Maybe you need to see another doctor and get more tests to confirm it. It might not be type 2 diabetes.
 
MeiChanski said:
Hello, welcome, any possibilities that you are wrongly diagnosed? Maybe you need to see another doctor and get more tests to confirm it.
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Do you think wrongly diagnosed type 2 should be type 1 or wrongly diagnosed altogether?

For a while the doctors didn’t know if I was type one or type 2 as I had no symptoms. They then called it type 2 but possibly “honeymoon period to type 1”
 
I can't say until your doctors do a GAD and cpeptide tests to confirm your diabetes, however there has been cases where the two tests cannot confirm either types of diabetes. Type 1 whether in honeymoon phase or not does have symptoms and they eventually need emergency insulin. Type 1.5 which is late onset type 1 diabetes could easily be mistaken for type 2 diabetes.
If you're doing everything you can to lower your numbers and your levels aren't dropping, then it is a cause of concern.
 
Go back, and ask for C-peptide and GAD tests. I have a feeling the T2 diagnosis may be off. In the meantime we can try and get your BS down a little. If you cut more carbs (careful with the gliclazide though, test a lot!!!!) it might improve a little. https://www.diabetes.co.uk/forum/blog-entry/the-nutritional-thingy.2330/ might help. But please do get those additional tests, and soon, because this doesn't feel right at all.
 
I agree with the others you need a GP appointment to ask for (be assertive) the GAD and c-peptide tests, which could lead to a diagnosis of T1.

Are you keeping a food diary and testing before you eat and 1, 2 and 3 hours after first bite? This is one way to check you are eating suitable foods.

It could be your diet that is keeping you high, or it could be your pancreas isn't producing enough insulin, in which case it needs investigating.
 
Hi and welcome!

I would encourage you to press for a proper diagnosis.
The treatment paths for T1 and T2 are different.
T1s tend to be put on insulin very quickly, while T2s are expected to respond to diet and lifestyle changes, some meds, and then often progress to insulin in a few years.

I would also suggest that you work out exactly how much carbohydrate you are eating.

T2s may have to severely restrict their carb intake, or take large doses of medication to get their blood glucose under control, depending on how much insulin resistance they have. Some of us here on the forum haven't just cut sugar and some carbs - we have needed to avoid all carbs from bread, rice, potato, pasta, fruit, starchy veg and wholegrains.

If you kept a food diary for a while, noting down everything you eat, portion sizes and g of carbs in everything, you may well see patterns emerging, or an explanation for why your blood glucose is at its current levels. Working out your current daily carb intake might go a long way towards indicating whether you are an insulin resistant T2 or a T1 needing insulin injections.

Whatever the outcome, your current blood glucose levels are too high for good health and may increase your risk of diabetic complications at a later date, so I would be going back to your doc or nurse and pushing for further investigation.

If you are a T2 then there are many, many people on the forum who have achieved blood glucose control from a similar starting point as you, but it would be better to eliminate T1 as a possibility.
 
Is there any family history of Diabetes (any type)? if not I don't see how the doctors would even contemplate a diagnosis of T2 in your case, a slim 24yo with very high BG - so what if you don't show the classic T1 symptoms? you certainly don't follow the 'classic' T2 scenario either.
 
I agree with the above re more testing by the dr required to make sure you are type 2. You may be and simply may still be eating too many carbs. Some of us do need to cut almost all of them out. Alternatively, especially given your age and weight that are not typical type 2, you may be a type 1.

Please go back and demand a definite diagnosis not an assumption. If you are type 1 you want to know before the honeymoon potentially skids to a halt and it all goes south quickly. Levels of 25 are not to be messed with and you need seeing when they happen even if that’s frequently. Can you test for ketones?

The feeling lousy at 9 is called a false hypo. Because your body is used to much higher (too high) numbers when it does actually come down then it protests that it’s lower. It won’t do you harm at that level (in fact that’s still too high) and if you can keep those numbers down it will stop happening as you get used to better levels. Each time you eat to counteract it then you prolong the adjustment period. So try to do so only if you really need to and then minimise how much you eat to feel better.
 

Type 2 in family but older and weight problems brought it on. I am going to push for more tests and confirm whether it is type 1 or type 2. As I don’t really fit into any just now!
 

Thanks for the advice
I havnt started a food diary yet but will do now and monitor my carbs intake more than ever and note it all down. Going to try get another appointment much sooner than December as I am becoming more and more concerned the more I learn about diabetes. When I was first diagnosed I didn’t really think it would affect me that much or was I that interested in learning about it but now reality is hitting.
 
lyou456 said:
Type 2 in family but older and weight problems brought it on. I am going to push for more tests and confirm whether it is type 1 or type 2. As I don’t really fit into any just now!
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Weight gain is a symptom of T2 diabetes, not a cause. Not all, but most T2s have far too much insulin circulating round their body, and insulin is a fat carrying hormone - when there is too much insulin it deposits fat round the organs and cells. There is a misconception that obesity causes T2. It is the other way round.
 
@lyou456 I agree with @HSSS .

Regardless of your eventual final diagnosis, the main issue at the moment is that you are running very high BG levels and when they start to drop to merely high you don't feel well and eat to raise them again to extremely high.

This is Not A Good Thing!

You should aim to get your BG below 10 as much as possible and adjust to the false hypos.
Your target is really to get your BG in the 5-7 range if possible.

Early days, and it is likely to take a good few months to get your head round what is right and what is wrong.
Everyone goes through the initial period of wondering what is right and what is wrong and mainly getting it wrong.
Don't Panic!
It will all work out well eventually.
 

Thank you for the advice ... I feel to get below 10 I will have to starve myself for a full day. First thing in the morning my BG Is always around 13.
 
lyou456 said:
Thank you for the advice ... I feel to get below 10 I will have to starve myself for a full day. First thing in the morning my BG Is always around 13.
Click to expand...
Not necessary to starve, even if you don't eat your liver will do it's sugar dump to get your started for the day. So your BG will go up. You can eat things high in fat - if you like cheese or coffee and cream, some fatty protein like chicken with skin on, eggs, avocados, some nuts, bacon?
 

Don't forget butter!
 
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