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Osteoporosis drugs

......Not forgetting the Royal Osteoporosis Society https//theros.org.uk
 
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Outlier said:
Anybody got any input on these.
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Like all things, it depends where you are on the osteoporotic scale of things - osteopaenic through to multiple pathological fractures. If you have had a pathological fracture did it heal well? Have you had DEXA scans? If so, are the stable or degrading? And of course, the perpetual kicker - age and gender.

How is your diet for calcium rich elements and what is your Vitamin D score running at? Is that with or without a supplement?

The patient information leaflet for Alendronic Acid (often the first line treatment) is usually quite informative. If you don’t have it to hand, it’s certainly available online.

Sorry for the gazillions questions, but each is important in terms of your needs or otherwise.
 
Thank you for your thoughtful and detailed response. I have had no fractures, despite a very bad fall while in hospital, but had a pelvic scan which apparently revealed the problem, no scale or percentage given, but the scan was the result of high calcium and vit. D. in my blood which apparently leaches out bone density. GP prescribed vit. D. supplement - I used to take a D3 and K2 but stopped at diagnosis of too much D -and went to prescribe calcium, so I raised this discrepancy and he said he wouln't prescribe the calcium then. Makes no sense to me but I have an appointment in a month to discuss, and need to know what to ask to get the best value from it. Meanwhile I read the info leaflets that came with the meds and am very very reluctant to take them. I have been in a wheelchair for over 6 months, so load-bearing exercise is an issue, previously was very strong and fit. My diet is great - I'm a nutrition geek, so no lack there. but I am an elderly female, so tick a lot of the wrong boxes. My GP is good and we have a good relationship, and I don't want to ruin this by refusing meds, however it's my body my future, and my decision what I put in it. Ideally, I would like to have a scan in a year's time to see what if anything has changed. If I took the meds there would be no checks for 3 years. If anyone else has lived experience I would appreciate them sharing it.
 
Outlier said:
Thank you for your thoughtful and detailed response. I have had no fractures, despite a very bad fall while in hospital, but had a pelvic scan which apparently revealed the problem, no scale or percentage given, but the scan was the result of high calcium and vit. D. in my blood which apparently leaches out bone density. GP prescribed vit. D. supplement - I used to take a D3 and K2 but stopped at diagnosis of too much D -and went to prescribe calcium, so I raised this discrepancy and he said he wouln't prescribe the calcium then. Makes no sense to me but I have an appointment in a month to discuss, and need to know what to ask to get the best value from it. Meanwhile I read the info leaflets that came with the meds and am very very reluctant to take them. I have been in a wheelchair for over 6 months, so load-bearing exercise is an issue, previously was very strong and fit. My diet is great - I'm a nutrition geek, so no lack there. but I am an elderly female, so tick a lot of the wrong boxes. My GP is good and we have a good relationship, and I don't want to ruin this by refusing meds, however it's my body my future, and my decision what I put in it. Ideally, I would like to have a scan in a year's time to see what if anything has changed. If I took the meds there would be no checks for 3 years. If anyone else has lived experience I would appreciate them sharing it.
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I have a borderline diagnosis of osteoprosis. I say borderline because of the joints scanned a couple are broderline, but osteopaenic (meaning they aren't as dense as they ideally might be), and two consultants literally rowed about it. (I found that but quite funny. It struck me as w***y waving to me!)

I was prescribed Alendronic Acid remotely and picked up one script. I took one tablet, but no more.

I didn't have any horrendous reaction to it, but it was a faff - taking it very early morning, then remain (sitting) upright for quite a period afterwards, when I'd rather be sleeping.

I have had several discussions about it with my Endo who says Osteoporosis is terrifying to him. I explained how I didn't enjoy taking the tablets and in any case there was a chance (read the PIL) that a side effect is essentially brittle bones and fractures. I expressed I'd take my chances.

He didn't try to dissuade me of my course of action, but does ensure I have scans every couple of years. Should I suffer a pathalogical fracture or a mechanical fracture that is slow to heal, I'll have to go through my decision look again.

I do try to remain active, and nourish myself well, but the rest is in the lap of the gods.

Whatever you decide for yourself, good luck with it all.
 
Outlier said:
Anybody got any input on these.
Click to expand...
If you decide to go on Alendronic acid get very regular checks.
I was left on it far too long, I now know nice recommend only 2 years.
I was left on them for 20 .
I got 3 fractures in left femur, 1 in my foot and a big fracture in my right femur all at the same time as the drug damaged all my bones .
I had to have emergency treatment with a major operation before it had devastating results for me .
I am now 2 years on from having to re learn to walk, a wheelchair, 2 crutches and now down to one crutch .
I think it’s they say this is very rare , but when it happens it’s awful.

I am not trying to scaremonger , just saying be careful .
 
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