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Outrage! DAFNE after 1 year
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<blockquote data-quote="Heathenlass" data-source="post: 728379" data-attributes="member: 84861"><p>I understand it is still a common practice to start newly diagnosed Type 1's on a mix such as Novomix for the first few months /year. So it would make sense in these cases not to go on DAFNE as its not compatible with this regime . Actually I know of people to always stay on a mixed insulin, either by choice not to change to MDI , or they have not been offered a choice <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite5" alt=":confused:" title="Confused :confused:" loading="lazy" data-shortname=":confused:" /></p><p></p><p>I agree that something should be available at diagnosis for all, no matter what regime they re on or who form it comes in. At the very least, a comprehensive booklet containing important information .</p><p></p><p>My own feelings on DAFNE are somewhat mixed. I do see the usefulness of it but it has always irritated me about the lack of basic information that it covers not being made freely available to non DAFNE people. Because it is contracted in , there is almost a " copyright " on that information. I feel that is wrong.</p><p></p><p>It also irritated me that some of the information given was at best, broad spectrum and the possibility that wht they advise may not work for some people was not acknowledged or outright dismissed. For example, the " don't bolus for vegetables " may work for some people, but certainly doesn't work for me. Ditto the advice on pulses, and protein.</p><p></p><p>I had some real issues during the course, and on more than one occasion had to point out that the acronym was Dose Adjustment for NORMAL Eating, and that one person's normal was not the same for another. The emphasis on what to eat certainly seemed to veer towards what I would consider junk <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite5" alt=":confused:" title="Confused :confused:" loading="lazy" data-shortname=":confused:" /> . </p><p></p><p>I think that the whole system needs reworking, possibly getting away from the very expensive contract with DAFNE and allowing each health authority to input in to and develop an education system that is across the board within the NHS. Containing all the information that should be given to Type 1's and a back up support system including availability online information as well as handouts . I know that some areas already do this with success, but they are few. Given that the NHS is cash strapped, it makes sense to develop its own system that would cut costs, reduce waiting times and give people the information that is lacking at the moment.</p><p></p><p>Signy</p></blockquote><p></p>
[QUOTE="Heathenlass, post: 728379, member: 84861"] I understand it is still a common practice to start newly diagnosed Type 1's on a mix such as Novomix for the first few months /year. So it would make sense in these cases not to go on DAFNE as its not compatible with this regime . Actually I know of people to always stay on a mixed insulin, either by choice not to change to MDI , or they have not been offered a choice :confused: I agree that something should be available at diagnosis for all, no matter what regime they re on or who form it comes in. At the very least, a comprehensive booklet containing important information . My own feelings on DAFNE are somewhat mixed. I do see the usefulness of it but it has always irritated me about the lack of basic information that it covers not being made freely available to non DAFNE people. Because it is contracted in , there is almost a " copyright " on that information. I feel that is wrong. It also irritated me that some of the information given was at best, broad spectrum and the possibility that wht they advise may not work for some people was not acknowledged or outright dismissed. For example, the " don't bolus for vegetables " may work for some people, but certainly doesn't work for me. Ditto the advice on pulses, and protein. I had some real issues during the course, and on more than one occasion had to point out that the acronym was Dose Adjustment for NORMAL Eating, and that one person's normal was not the same for another. The emphasis on what to eat certainly seemed to veer towards what I would consider junk :confused: . I think that the whole system needs reworking, possibly getting away from the very expensive contract with DAFNE and allowing each health authority to input in to and develop an education system that is across the board within the NHS. Containing all the information that should be given to Type 1's and a back up support system including availability online information as well as handouts . I know that some areas already do this with success, but they are few. Given that the NHS is cash strapped, it makes sense to develop its own system that would cut costs, reduce waiting times and give people the information that is lacking at the moment. Signy [/QUOTE]
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Outrage! DAFNE after 1 year
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