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Outrage! DAFNE after 1 year
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<blockquote data-quote="tim2000s" data-source="post: 728569" data-attributes="member: 30007"><p>I think the point being made is that you are the exception rather than the norm. Most newly diagnosed T1s aren't ready to learn. Having said that, I've spent a lot of time this evening reading the NICE and various health authority guidelines, and what comes out is that while newly diagnose diabetics are not recommended as candidates for DAFNE they can be accepted as exceptions.</p><p></p><p>On the point of mixed insulins, when diagnosed, we were given two protophane (insulin nph) shots per day and set meal sizes. When they were confident the honeymoon was over they put you on MDI. No mixed insulin involved.</p><p></p><p>I think there is a need for structured education on diagnosis, but I think the issue is how people handle it rather than anything else.</p><p></p><p>In the meantime, I must do DAFNE to get a pump. I must therefore take 5 days off work to sit in a room while I am told what I already know and practice. I will also be singled out as trouble because I will disagree with what they say in relation to food (remember that one of the key learning points of DAFNE is eat what you want when you want, which encourage poor eating behaviour in newly diagnosed diabetics as they can continue their old ways in the view that it won't affect them), and will promote a low carb diet, using myself and many others as an example. And I will spend five days being berated for this. And of course, I turn up with a Libre so clearly understand the glucose monitoring aspect.</p><p></p><p>Oh, and work won't give me five days off for this unnecessary waste of my time so I will have to take holiday to do it. And all because structured education is necessary to get a pump. ***. Are parents of children put on pumps made to attend DAFNE?</p><p></p><p>I have just sat in the office of the Consultant, DSN and dietitian and explained in minute detail how I treat myself, talking about ratios, sick days, bolussing for non-carbs, how correction doses vary by time of day and recentness of food eaten, and you're telling me I still need to do DAFNE because it needs the tick in the official box.</p><p></p><p>This is probably my biggest problem with DAFNE. One size does not fit all, especially where you already have a lot of experience. I'm sure there are small things that may be relevant, but the reason for DAFNE is really to develop a systematic approach to treating diabetes. I've been doing that for years and this feels patronising.</p><p></p><p>It's the other end of the scale from [USER=118431]@Emmotha[/USER] really. As a new diabetic it provides helpful, useful information about how to systematically manage your condition. In that case it's great. As a diabetic with poor control, who doesn't understand their condition, it's the same. As someone who has spent far too much time looking into it, doing it and is looking for a pump to increase already good control, verified by normal hba1c, it feels pointless and a waste of the space that could be given to someone who needs it.</p><p></p><p>Apologies for the rant, but this is one area that I feel there is a real mismatch.</p><p></p><p></p><p>Sent from my iPad using Tapatalk</p></blockquote><p></p>
[QUOTE="tim2000s, post: 728569, member: 30007"] I think the point being made is that you are the exception rather than the norm. Most newly diagnosed T1s aren't ready to learn. Having said that, I've spent a lot of time this evening reading the NICE and various health authority guidelines, and what comes out is that while newly diagnose diabetics are not recommended as candidates for DAFNE they can be accepted as exceptions. On the point of mixed insulins, when diagnosed, we were given two protophane (insulin nph) shots per day and set meal sizes. When they were confident the honeymoon was over they put you on MDI. No mixed insulin involved. I think there is a need for structured education on diagnosis, but I think the issue is how people handle it rather than anything else. In the meantime, I must do DAFNE to get a pump. I must therefore take 5 days off work to sit in a room while I am told what I already know and practice. I will also be singled out as trouble because I will disagree with what they say in relation to food (remember that one of the key learning points of DAFNE is eat what you want when you want, which encourage poor eating behaviour in newly diagnosed diabetics as they can continue their old ways in the view that it won't affect them), and will promote a low carb diet, using myself and many others as an example. And I will spend five days being berated for this. And of course, I turn up with a Libre so clearly understand the glucose monitoring aspect. Oh, and work won't give me five days off for this unnecessary waste of my time so I will have to take holiday to do it. And all because structured education is necessary to get a pump. ***. Are parents of children put on pumps made to attend DAFNE? I have just sat in the office of the Consultant, DSN and dietitian and explained in minute detail how I treat myself, talking about ratios, sick days, bolussing for non-carbs, how correction doses vary by time of day and recentness of food eaten, and you're telling me I still need to do DAFNE because it needs the tick in the official box. This is probably my biggest problem with DAFNE. One size does not fit all, especially where you already have a lot of experience. I'm sure there are small things that may be relevant, but the reason for DAFNE is really to develop a systematic approach to treating diabetes. I've been doing that for years and this feels patronising. It's the other end of the scale from [USER=118431]@Emmotha[/USER] really. As a new diabetic it provides helpful, useful information about how to systematically manage your condition. In that case it's great. As a diabetic with poor control, who doesn't understand their condition, it's the same. As someone who has spent far too much time looking into it, doing it and is looking for a pump to increase already good control, verified by normal hba1c, it feels pointless and a waste of the space that could be given to someone who needs it. Apologies for the rant, but this is one area that I feel there is a real mismatch. Sent from my iPad using Tapatalk [/QUOTE]
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Outrage! DAFNE after 1 year
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