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<blockquote data-quote="donnellysdogs" data-source="post: 2452725" data-attributes="member: 17713"><p>Thank you. That has relaxed me a little.</p><p></p><p>After some heated email exchanges with my diabetic consultant, he finally agreed to talk to me!! However, he didn’t draft letter to me first before sending it to the palliative consultant! One insulin injection missed off totally and doses for another wrong too. After further exchange telling him of the errors he says he has now sent correct details to consultant that I hopefully get to see on Monday.</p><p></p><p>When told 26/8 this year, you would not believe the 6 weeks of hell from dr’s and consultants regarding their discovery and pushing me against my wishes to have biopsy done. No way, been suffering 18 months during lockdown and asked 4 times for scans/camera to Gp/consultant and refused. Know my body is so hugely weak and far too I’ll to put through anything being done.</p><p></p><p>Had palliative care nurse for 5 weeks and she kept telling me to wait til 1st Nov. Just wanted me to sign the respect DNR form quickly.</p><p></p><p>After A&E visit, got told return on 26/8 and they loaded me horribly on drugs.. and kept increasing them. Then I thought to myself, beside severe pain, I was not crippled with all over pain, sick, nausea 24/7 so what changed so quickly? Drugs!!</p><p>Still on very low dose MST tablets but got rid of the liquid opioids, anti sick and another… just on very high strength CBT oil for last two weeks, one drop per 4 hrs under tongue and all pain gone. All sick gone, all nausea gone and just left with my own body getting weaker.. don’t know what the consultant will say to CBT but the palliative nurse said she knew nothing about CBT oil. Got a good “home made CBT oil too. </p><p></p><p>Enjoying eating mushy food again. I couldn’t even eat 1/2 side plate of grade 4 in hospital or home until I stopped the excessive qty of drugs that they sent me out with!!</p><p></p><p>I haven’t really got much hope that a consultant will know any different too. At least I am very grateful that your dad had good care.</p><p></p><p>Been to hospice but only allowed to talk to receptionist. The palliative nurse wanted me to go in to hospice two weeks ago to trial me on more new drugs andI said no, I don’t want to be away from my hubby and two dogs for 3-4 days minimum! As it is, it was their nhs drugs making me feel so rubbish!! I think I just have to keep myself aware that very few nhs drugs have ever worked for me and If it’s my last two weeks I may just have to have what is thrown at me… </p><p></p><p>Had such dire problems with consultants and gp’s after initial finding cancer this time, and not being allowed face to face’s during covid, I did write complaints to nhs England, cqc, Healthwatch, pals, health Secretary and keir starmer. Dead people can’t complain but it helped me to think my complaint may help just one person get better treatment in future.</p></blockquote><p></p>
[QUOTE="donnellysdogs, post: 2452725, member: 17713"] Thank you. That has relaxed me a little. After some heated email exchanges with my diabetic consultant, he finally agreed to talk to me!! However, he didn’t draft letter to me first before sending it to the palliative consultant! One insulin injection missed off totally and doses for another wrong too. After further exchange telling him of the errors he says he has now sent correct details to consultant that I hopefully get to see on Monday. When told 26/8 this year, you would not believe the 6 weeks of hell from dr’s and consultants regarding their discovery and pushing me against my wishes to have biopsy done. No way, been suffering 18 months during lockdown and asked 4 times for scans/camera to Gp/consultant and refused. Know my body is so hugely weak and far too I’ll to put through anything being done. Had palliative care nurse for 5 weeks and she kept telling me to wait til 1st Nov. Just wanted me to sign the respect DNR form quickly. After A&E visit, got told return on 26/8 and they loaded me horribly on drugs.. and kept increasing them. Then I thought to myself, beside severe pain, I was not crippled with all over pain, sick, nausea 24/7 so what changed so quickly? Drugs!! Still on very low dose MST tablets but got rid of the liquid opioids, anti sick and another… just on very high strength CBT oil for last two weeks, one drop per 4 hrs under tongue and all pain gone. All sick gone, all nausea gone and just left with my own body getting weaker.. don’t know what the consultant will say to CBT but the palliative nurse said she knew nothing about CBT oil. Got a good “home made CBT oil too. Enjoying eating mushy food again. I couldn’t even eat 1/2 side plate of grade 4 in hospital or home until I stopped the excessive qty of drugs that they sent me out with!! I haven’t really got much hope that a consultant will know any different too. At least I am very grateful that your dad had good care. Been to hospice but only allowed to talk to receptionist. The palliative nurse wanted me to go in to hospice two weeks ago to trial me on more new drugs andI said no, I don’t want to be away from my hubby and two dogs for 3-4 days minimum! As it is, it was their nhs drugs making me feel so rubbish!! I think I just have to keep myself aware that very few nhs drugs have ever worked for me and If it’s my last two weeks I may just have to have what is thrown at me… Had such dire problems with consultants and gp’s after initial finding cancer this time, and not being allowed face to face’s during covid, I did write complaints to nhs England, cqc, Healthwatch, pals, health Secretary and keir starmer. Dead people can’t complain but it helped me to think my complaint may help just one person get better treatment in future. [/QUOTE]
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