Pancreas scan

TashT1 said:

I’ve just had a relatively good telephone consult with endo. My type 1 diagnosis is still a bit up in the air, I had anticipated being put forward for a c-peptide test and was please not to have to make a case for it but the dr also wants to do a pancreas scan.

From what I’ve read this isn’t a typical procedure for diabetes diagnosis. She mentioned wanting to rule out gallstones or other complications that could affect insulin production, but there’s not really any symptoms other than those common to hyperglycaemia.

So I’m wondering if many others have had a pancreas scan?

Useful background - diagnosed 7 weeks ago with a hba1c 97, 28u Lantus, 28u novarapid split between meals & negative antibodies for all 3 tests.

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TashT1 said:

Not a huge amount, about 9kg steadily over 6 months. Being thirsty, urinating a lot & exhaustion kicked in about 10 weeks before diagnosis. Ketones were 2 at diagnosis, I didn’t end up in hospital though.

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TashT1 said:

Yes a urine c-peptide. I’m not really sure why it’s a urine test when there is a blood test version.

They’re also doing a new hba1c & renal function blood tests, all within the next 6 weeks.

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TashT1 said:

Yes a urine c-peptide. I’m not really sure why it’s a urine test when there is a blood test version.

They’re also doing a new hba1c & renal function blood tests, all within the next 6 weeks.

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Tophat1900 said:

I'd be wanting the blood test version.

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Flora123 said:

@Tophat1900 Do you know any info about the difference please? Always wondered why everyone seems to get a blood test but I had a urine test. Thanks.

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TashT1 said:

I tried changing it, doc said it’s not necessary as it should show a reliable result but did agree that if there was anything borderline about the results we would confirm with the blood test.

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TashT1 said:

I’ve just had a relatively good telephone consult with endo. My type 1 diagnosis is still a bit up in the air, I had anticipated being put forward for a c-peptide test and was please not to have to make a case for it but the dr also wants to do a pancreas scan.

From what I’ve read this isn’t a typical procedure for diabetes diagnosis. She mentioned wanting to rule out gallstones or other complications that could affect insulin production, but there’s not really any symptoms other than those common to hyperglycaemia.

So I’m wondering if many others have had a pancreas scan?

Useful background - diagnosed 7 weeks ago with a hba1c 97, 28u Lantus, 28u novarapid split between meals & negative antibodies for all 3 tests.

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TashT1 said:

It’s to do with CCG commissioning. In my trust the urine test is the standard & considered reliable but as with most things if you push you can get exceptions. We came to a compromise, urine first as per the rules & if it’s not conclusive I can have a fasting blood test & a glucagon sensitivity test. Which according to the papers I read is the gold standard for c-peptide. Depending on how that goes I could consider going private.

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TashT1 said:

It’s to do with CCG commissioning. In my trust the urine test is the standard & considered reliable but as with most things if you push you can get exceptions. We came to a compromise, urine first as per the rules & if it’s not conclusive I can have a fasting blood test & a glucagon sensitivity test. Which according to the papers I read is the gold standard for c-peptide. Depending on how that goes I could consider going private.

Click to expand...