ladybird64
Well-Known Member
- Messages
- 1,731
- Type of diabetes
- Type 2
- Treatment type
- Tablets (oral)
- Dislikes
- Dishonesty, selfishness and lack of empathy.
Hi everybody.
I am the parent of a 20 year old daughter with special needs who has a rare condition called Prader-Willi Syndrome (yep, I know it's an awful name! :roll: ) which causes her to have an insatiable appetite among many other things.
People with this condition can suffer from life-threatening obesity and my daughter is 106kg and 5 feet 2 inches tall..our lives are a constant round of trying to stop her from getting access to food.
She has hormone treatment and last year was diagnosed with type 2 diabetes after a spell as an inpatient in hospital and was started on Metformin and Insulin while in hospital.
It was hoped that she would be able to come off the insulin on returning home but this has never happened, she was on Novomix for months but has been having very high glucose readings for ages now, all in the high teens and low twenties.
Luckily we now have the support (albeit slightly reluctantly) of our GP and the learning disabilities nurse as well as the diabetic nurse at the hospital, unfortunately it just wasn't practical for us to have to go to the hospital every time we were worried so we felt that proper monitoring by our own doc would be beneficial.
At the last hospital meeting about 5 weeks ago it was agreed that the Insulin would be change to Novorapid twice daily 8 and 10 units and Levemir 12 units at night. She also has Liraglutide 1.2mg and is on 2g (2000mg) of Metformin daily.
Yesterday the GP has raised the Novorapid to 20 and 22 units and the Levemir to 18 as the numbers were still above 16 and still hitting in excess of 20.
Obviously this is a stressful time for us and her, she is now on 5 injections a day (she also has a growth hormone jab) but she doesn't complain.
I know this might be an unusual scenario but could really do with a bit of support at the moment. My gut feeling is that we will still need to raise the insulin higher to get some control over it but would we then be able to reduce it after a while?
We are trying to stay cheerful and positive but it's pretty damned difficult at the moment!
Sorry for such a looooong rambling intro!
I am the parent of a 20 year old daughter with special needs who has a rare condition called Prader-Willi Syndrome (yep, I know it's an awful name! :roll: ) which causes her to have an insatiable appetite among many other things.
People with this condition can suffer from life-threatening obesity and my daughter is 106kg and 5 feet 2 inches tall..our lives are a constant round of trying to stop her from getting access to food.
She has hormone treatment and last year was diagnosed with type 2 diabetes after a spell as an inpatient in hospital and was started on Metformin and Insulin while in hospital.
It was hoped that she would be able to come off the insulin on returning home but this has never happened, she was on Novomix for months but has been having very high glucose readings for ages now, all in the high teens and low twenties.
Luckily we now have the support (albeit slightly reluctantly) of our GP and the learning disabilities nurse as well as the diabetic nurse at the hospital, unfortunately it just wasn't practical for us to have to go to the hospital every time we were worried so we felt that proper monitoring by our own doc would be beneficial.
At the last hospital meeting about 5 weeks ago it was agreed that the Insulin would be change to Novorapid twice daily 8 and 10 units and Levemir 12 units at night. She also has Liraglutide 1.2mg and is on 2g (2000mg) of Metformin daily.
Yesterday the GP has raised the Novorapid to 20 and 22 units and the Levemir to 18 as the numbers were still above 16 and still hitting in excess of 20.
Obviously this is a stressful time for us and her, she is now on 5 injections a day (she also has a growth hormone jab) but she doesn't complain.
I know this might be an unusual scenario but could really do with a bit of support at the moment. My gut feeling is that we will still need to raise the insulin higher to get some control over it but would we then be able to reduce it after a while?
We are trying to stay cheerful and positive but it's pretty damned difficult at the moment!
Sorry for such a looooong rambling intro!
