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Peoples ignorance!!

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yipster29

Well-Known Member
Messages
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Location
Isle of Wight
OK this is just another version of what people have said before but I'm sooo annoyed I need to let it out somewhere!

Diagnosed T1 at the age of 34 6 months ago and I'm really chuffed at how I've adapted, first HBA1C was 6.2, I'm exercising loads and leading completely normal life.... minus the carbs.

Have family staying this week and when we ordered take-away and I turned down rice they proceeded to lecture me on how I really should start to manage my condition as they've a friend who's diabetic and still eats everything he wants :evil: .... when I probed this further it turns out he rarely tests so doesn't know if BG under control or not and uses about 5 times more insulin than me!!
:twisted:
I was a little miffed and explained in no uncertain terms why I was taking the approach I was!

Why don't people bother to find out the facts and ask some questions before leaping in suggesting I control my life by doing completely the wrong thing!!

MUPPETS

There... I feel better now, thanks!
 
Yipster, as you get older [much in my case ] you will realise that EVERYONE knows what's best for you. Not only do they know, but they have a god-given duty to tell you what's right! :roll: As you say, what muppets!
Val
 
Yipster,
I am 62 years old. diagnosed T2 in 2003. I have my condition under pretty good control ( Hba1c 5.4%), but I come under pressure from my mother, who is 91 and reads the papers. She has told me my reduced carb diet is stupid and that I should eat bread and that walking 5 miles uphill and down dale is too much for me and that the gym 3 times a week is excessive.
I know she'll never stop doing it. She was difficult at 45, so why should she be more understanding at twice that age? Her T2 neighbour eats sandwiches for lunch every day and his GP tells him every 6 months that everything is "perfect"
I have learned to ignore it
 
Thanks guys

I know we all get it but it's sooo frustrating!! Hopefully over time I'll manage to introduce my fathers ability to have selective hearing and be able to ignore them!! :lol:

Made me feel better for a rant anyway!!
 
Yipster - just one point to remember, as you've only been diagnosed 6 months, you are almost certainly still in the honeymoon phase and your insulin requirements will gradually increase, perhaps eventually double what they are now, although probably not 5 fold. Someone needing such high levels of insulin probably has type 2 diabetes (insulin resistance). However, I have an understanding of being diagnosed as a 30 year old - medical professionals were pretty useless, due to rareness of adult onset type 1, and also their lack of understanding of activities I wanted to continue eg when I asked about fell walking, the nurse went on about her very modest lowland rambling, which isn't what I meant at all. I don't think she even knew what "fell" means - hill in northern England.
 
Hi Copepod

Please don't get me wrong, I have no issue what so ever with people needing whatever level of insulin they need!
I have issue with people who think 'controlling' the condition is acting as if nothing is wrong and ignoring it rather than tackling it. The only people bothered by my not eating carbs are people who don't understand the condition! And not testing so you 'don't know if you spike or not' is not control in my book.

My insulin use has already gone up from 3 months ago and goes up if I reduce exercise, and I fully understand it may go up further.... I just wish some peoples knowledge would go up by similar ratios
 
That's good to hear your clarification - I didn't want you to feel you were failing when your insulin requirements increase, as they very likely will.
I agree that not making intelligent use of blood glucose levels is not good control - but if someone really doesn't want to take readings and use them to make adjustments to dose / food / activity, despite education about why and how to do it, then it's probably better that they don't waste NHS resources by getting expensive blood glucose strips and lancets prescribed.
 
There is NO NEED for most people to understand Diabetes, but they all think they do, because they have read health warnings in the papers.
I was a teacher for 40 years and everyone told me how to do my job, because they knew better, having been a pupil.
Hana
 
Fair comment Hana!!

You are all right, I was just as bad pre-diagnosis.... I remember thinking I knew best when one of my employees got diabetes.... I've apologised since my diagnosis!! she said no problem, she was used to it!
 
I am not an unfriendly person by any means, but if anyone I know tries to tell me that I shouldn't eat X I give them such a look,they never dare do it again.
 
Edwardia said:
I am not an unfriendly person by any means, but if anyone I know tries to tell me that I shouldn't eat X I give them such a look,they never dare do it again.
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Well done you! I hate it when people say "Should you be eating that?" I am 56, I think I am old enough to decide all by myself! (I have been T2 for 10 years)
 
yepster

I have a question to ask..

If the diabetic who doesn't test is a friend of a friend..

How do they know he doesn't test and his diabetes isn't controlled???

I eat what I want, I test my BG's Frequently and I have good control of my diabetes... But ask any of my friends any question about my diabetes I very much doubt they would be able to answer them... They would say that I test my BG, as they have seen me do it wouldn't have a glue about anything else though..

I get on with living and friendship, I don't tend to discuss my diabetes with my friends, they know that I am diabetic and what to do it I did have an hypo but they've never had to find out if theory works in practice..
 
Hi Jopar

I don't know, it's someone my brother in law works with who he says eats pizza / curry etc etc and doesn't worry.

My original rant was not particularly well expressed... hey I was cross and this is the only sounding board where people understand!

I was cross at my brother in law who lectured me (seriously lectured) around no need to test / be careful what I eat etc as there is no need. That's what bugs me. It's a free country and anyone should feel free to manage their condition how they choose. The fact that I choose to limit carbs and choose meals accordingly is none of their business and I promise you I'm subtle with it, I don't hi-light I'm eating differently or moan and whine about it, I would welcome informed suggestions... not blinkered no-it-alls

Cath
 
.
Democracies don't save you from human nature.

People tend to judge what they do by what others do. Some people do it far more than others. The reason? ..........to change person 2's actions so that person 1's actions don't seem so strange .....to person 1. If you're person 2? Yeah, It's none of person 1's business.

But if your future is filled with person 1? Like it or not you have to have the conversation. The best way is on your terms. I faced it recently. I said "I don't know why, but a lot of people respond to x food the way I do. I don't like it, but I have to live with it" .........(HINT YOU DO TOO).

Things are better now .......until next time.

P.S. I think type 1 diabetes is treatable totally through diet. I have celiac disease and Graves disease. Together Graves disease and T1D are manifestations of the immune system losing the ability to distinguish between invading pathogens and food proteins.
..
..
 

I think you need to read up on type 1 diabetes before you make comments like this.
 


I have. I think you do.

Along with celiac and Graves, I have reactive hypoglycemia. I could say I also have type 2 diabetes, but I started treating it with diet before it got bad. I'm still treating it, so I don't have type 2 diabetes.

I realize the sentiment that another poster should not say something is usually merely an expression of disagreement. I believe my assertion to be correct. I'll be happy to explain. If you truly don't want me, a participant, saying it you're not just wrong. You've crossed a line.
..
 
Are there any type 1's available with comments please. Do you think you can survive on diet only....?

I did wonder if this was a plot by T2's to kill off all the T1's.....

I hope that isn't crossing any lines. :wink:
 
Of the 130 children treated with insulin, 120 are still living, while of the 164 who did not receive insulin, there are 152 dead.
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Banting Nobel prize lecture
 

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Hello veggienft,

If you're happy to explain, then we'd be happy to hear your explanation.

What is it exactly that you are claiming about type 1 and diet only treatment?
 
i too as a type 1 and also suffer autoimmune disease(thyroid) would love to know where you get this idea from,
on diagnosis my bs was over 30 and id plus 4 ketones and was told if id have gone to sleep that night i wouldnt have woke up so im extremely interested in what you say??
 
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