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peripheral neuropathy affecting motor function.
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<blockquote data-quote="Mainsail" data-source="post: 2325515" data-attributes="member: 31405"><p>Hi Chris</p><p>Yes I have a similar condition.</p><p>I was diagnosed with Myopathy just over 12 months ago and, because Covid has prevented me going to hospital, I have been unable to follow this up with a muscle biopsy to understand exactly the type of Myopathy. This is now going to happen at last this coming Wed. I have been T1 for 26 years, been on a pump for 4 years, with quite good control and an HbA1c of 6.9. No other problem other than extreme muscle weakness to arms, shoulders and back (the latter is not helped by arthritis). </p><p>Until I have had the biopsy and a session with the neuropathy consultant I will not know whether it is related to diabetes. I have had high CK enzyme levels (about 650) for at least 20 years, which is indicative of muscle damage. Have you had your CK levels tested (blood) Chris? CK was high for me before I started taking statins and I have had several periods, each of many months, when I stopped taking statins and my levels then reduced very slightly to about 450, well above the max normal level of 200. Currently I have been off statins for 18 months but this has not helped my muscle weakness, which is rapidly getting worse and is now pretty serious in its impact on my mobility and even simple things like eating and dressing. I do not think this is related to stains however for a number of reasons.</p><p>So you are certainly not alone except that the link to diabetes has not yet been established in my case.</p></blockquote><p></p>
[QUOTE="Mainsail, post: 2325515, member: 31405"] Hi Chris Yes I have a similar condition. I was diagnosed with Myopathy just over 12 months ago and, because Covid has prevented me going to hospital, I have been unable to follow this up with a muscle biopsy to understand exactly the type of Myopathy. This is now going to happen at last this coming Wed. I have been T1 for 26 years, been on a pump for 4 years, with quite good control and an HbA1c of 6.9. No other problem other than extreme muscle weakness to arms, shoulders and back (the latter is not helped by arthritis). Until I have had the biopsy and a session with the neuropathy consultant I will not know whether it is related to diabetes. I have had high CK enzyme levels (about 650) for at least 20 years, which is indicative of muscle damage. Have you had your CK levels tested (blood) Chris? CK was high for me before I started taking statins and I have had several periods, each of many months, when I stopped taking statins and my levels then reduced very slightly to about 450, well above the max normal level of 200. Currently I have been off statins for 18 months but this has not helped my muscle weakness, which is rapidly getting worse and is now pretty serious in its impact on my mobility and even simple things like eating and dressing. I do not think this is related to stains however for a number of reasons. So you are certainly not alone except that the link to diabetes has not yet been established in my case. [/QUOTE]
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