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Peripheral neuropathy and restless leg syndrome
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<blockquote data-quote="Jenny15" data-source="post: 1797424" data-attributes="member: 196992"><p>Yes! I can relate. </p><p></p><p>I have RLS as a side effects of two drugs I absolutely must take for depression and insomnia. I have tried every drug available and this combination gives me the least RLS and the most lifesaving benefit for my "brain disorder" as I like to call it. </p><p></p><p>I take Clonidine to reduce RLS. There are about 4 drugs in that family that can help. It's a case of trying them out one by one. </p><p></p><p>RLS can be very hard to diagnose and treat. But I encourage you to keep looking for answers via your GP. He or she may refer you to a neurologist, and if I needed that I would insist on it. </p><p></p><p>Duloxetine is a bit like Lyrica - for some people it works great, for others it does nothing. I have considered both many times over the years but prefer not to gamble since I am worried about any drug that could make my morbid obesity worse. Each drug also costs about $200/month in NZ, and I am on a fixed income because I can no longer work, at age 49. </p><p></p><p>When my RLS was really bad during the day I could not sit in a chair and be comfortable. The only thing I could do was lie on my tummy on the floor with a pile of pillows under my torso. For some reason that made my legs feel calm and normal.</p><p></p><p>My feet are always cold, even in summer. I wear socks at all times. If the room is cold then they feel like blocks of ice. A wheatbag helps. But if you have any numbness you have to make sure you dont get burnt. </p><p></p><p>I also throw off the blankets most of the time while in bed, and even the top sheet at times. I must fall asleep then pull them over myself. There's no way I could share a bed with a partner again, LOL. </p><p></p><p>When I had a sleep study and was diagnosed with sleep apnoea (and had that resolved with CPAP use), I found they also test for RLS-type disorders such as involuntary leg jerks, which ruin your sleep quality. </p><p></p><p>As such, a sleep specialist is as good as a neurologist at treating such disorders. Worth a try if you have to wait to see a neurologist. It may be quicker to get a sleep study and you probably meet the criteria for one.</p></blockquote><p></p>
[QUOTE="Jenny15, post: 1797424, member: 196992"] Yes! I can relate. I have RLS as a side effects of two drugs I absolutely must take for depression and insomnia. I have tried every drug available and this combination gives me the least RLS and the most lifesaving benefit for my "brain disorder" as I like to call it. I take Clonidine to reduce RLS. There are about 4 drugs in that family that can help. It's a case of trying them out one by one. RLS can be very hard to diagnose and treat. But I encourage you to keep looking for answers via your GP. He or she may refer you to a neurologist, and if I needed that I would insist on it. Duloxetine is a bit like Lyrica - for some people it works great, for others it does nothing. I have considered both many times over the years but prefer not to gamble since I am worried about any drug that could make my morbid obesity worse. Each drug also costs about $200/month in NZ, and I am on a fixed income because I can no longer work, at age 49. When my RLS was really bad during the day I could not sit in a chair and be comfortable. The only thing I could do was lie on my tummy on the floor with a pile of pillows under my torso. For some reason that made my legs feel calm and normal. My feet are always cold, even in summer. I wear socks at all times. If the room is cold then they feel like blocks of ice. A wheatbag helps. But if you have any numbness you have to make sure you dont get burnt. I also throw off the blankets most of the time while in bed, and even the top sheet at times. I must fall asleep then pull them over myself. There's no way I could share a bed with a partner again, LOL. When I had a sleep study and was diagnosed with sleep apnoea (and had that resolved with CPAP use), I found they also test for RLS-type disorders such as involuntary leg jerks, which ruin your sleep quality. As such, a sleep specialist is as good as a neurologist at treating such disorders. Worth a try if you have to wait to see a neurologist. It may be quicker to get a sleep study and you probably meet the criteria for one. [/QUOTE]
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