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Personal symptoms of gluten intolerance/tips for suffering with them?
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<blockquote data-quote="DCUKMod" data-source="post: 1547227" data-attributes="member: 345386"><p>Hi [USER=109882]@prickles1998[/USER] - I see you've been tested a couple of times already, without a definitive diagnosis, when that happened, were you advised to adjust your diet in any way?</p><p></p><p>My experience is a bit different in that I was strongly advised to adopt a GF diet irrespective of any diagnosis. The Endo's reasoning was that those who have one autoimmune condition, often have others lurking. Boy, that thought brightened my day! </p><p></p><p>moving on; because I was already eating a LC diet, (for me that meant no bread, pasta, grains), the Consultant expected a negative or inconclusive result. We agreed I would not gluten up for the tests, but to have the test then tweak my diet to go GF. I was happy enough with that, and that's what I did.</p><p></p><p>My Coeliac blood panel was negative, but by then I had adopted my GF lifestyle and carried on with it.</p><p></p><p>My gastric symptoms were extremely vague, with really only a bit of constipation, but after a couple of months GF I realised that I was feeling brighter, which was clearly a big win. On the downside, my sensitivity to gluten has clearly heightened in that if I trip up these days I really know about it. </p><p></p><p>If that happens I feel like I've been hit by a truck, with joint pains, a headache like a decent hangover, low mood, and after a few days it feels like I have a cannon ball in my lower gut, then after a further few days later it is clear exactly where that cannon ball went. (That's as polite as I can make it, without TMI.)</p><p></p><p>All in all, when I now have such an event, it takes about 3 weeks to be totally rid of it, so you can imagine I'm pretty vigilant these days!</p><p></p><p>Have you tried going GF for 2 or 3 months?</p></blockquote><p></p>
[QUOTE="DCUKMod, post: 1547227, member: 345386"] Hi [USER=109882]@prickles1998[/USER] - I see you've been tested a couple of times already, without a definitive diagnosis, when that happened, were you advised to adjust your diet in any way? My experience is a bit different in that I was strongly advised to adopt a GF diet irrespective of any diagnosis. The Endo's reasoning was that those who have one autoimmune condition, often have others lurking. Boy, that thought brightened my day! moving on; because I was already eating a LC diet, (for me that meant no bread, pasta, grains), the Consultant expected a negative or inconclusive result. We agreed I would not gluten up for the tests, but to have the test then tweak my diet to go GF. I was happy enough with that, and that's what I did. My Coeliac blood panel was negative, but by then I had adopted my GF lifestyle and carried on with it. My gastric symptoms were extremely vague, with really only a bit of constipation, but after a couple of months GF I realised that I was feeling brighter, which was clearly a big win. On the downside, my sensitivity to gluten has clearly heightened in that if I trip up these days I really know about it. If that happens I feel like I've been hit by a truck, with joint pains, a headache like a decent hangover, low mood, and after a few days it feels like I have a cannon ball in my lower gut, then after a further few days later it is clear exactly where that cannon ball went. (That's as polite as I can make it, without TMI.) All in all, when I now have such an event, it takes about 3 weeks to be totally rid of it, so you can imagine I'm pretty vigilant these days! Have you tried going GF for 2 or 3 months? [/QUOTE]
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