Search
Search titles only
By:
Search titles only
By:
Home
Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
Search
Search titles only
By:
Search titles only
By:
New posts
Search forums
Menu
Install the app
Install
Reply to Thread
Guest, we'd love to know what you think about the forum! Take the
Diabetes Forum Survey 2024 »
Home
Forums
Diabetes Discussion
Ask A Question
PN nightmare - help!!!
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Message
<blockquote data-quote="teasytux" data-source="post: 2219356" data-attributes="member: 32376"><p>Hello Nanoo Bird, </p><p></p><p>Sorry to read about what you're going through with Neuropathy, I sympathise loads!</p><p></p><p>I've been type 1 for 46 years & suffering with peripheral & autonomic neuropathy, retinopathy, cheiroarthropathy & gastroparesis for the last 23 years. I have tried lots of prescription meds & all sorts to try to help calm the effects to the nerves, without much help <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite3" alt=":(" title="Frown :(" loading="lazy" data-shortname=":(" /></p><p></p><p>I've been taking a huge dose of slow release morphine sulphate with phenytoin for a lot of years plus duloxetine about the last 4 years. These help me to take those wall climbing symptoms down that you speak of (I know that feeling too). I have a low carb diet, don't eat much really & control my blood sugars so my Hba1c is always around 42 to 45 or 6.2 to 6.5 (my consultant moans it's too low) but it helps. It took a few years to find the med combo to help me. I went through trials of gaberpentin & pregabalin & couldn't function from the effects. I tried amytriptylene but suffered awful night terrors from, had epidurals, a duragesic patch (had a bad reaction to the fentanyl, needing antidote in emergency) & tens. Tens on my lower back set high helped but overused to gain relief so was stopped.</p><p></p><p>I've recently heard about the R-ALA too (not the synthetic!). Apparently in Germany, I read, the Dr's treat neuropathy with huge doses of drip fed R-ALA. I've also recently been hearing about the benefits of CBD Oil for neuropathy. The costs are the only thing stopping me trying the oil as I'm dependent on benefits to exist. (Doesn't help that my DLA transferred to PIP & mobility wasn't awarded because of the huge changes).</p><p></p><p>I hope the info provided by the other forum members & myself will help you to find something to ease things for you. I know what you're going through only to well. Good luck & best wishes <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /> </p><p></p><p>Regards, Tux</p></blockquote><p></p>
[QUOTE="teasytux, post: 2219356, member: 32376"] Hello Nanoo Bird, Sorry to read about what you're going through with Neuropathy, I sympathise loads! I've been type 1 for 46 years & suffering with peripheral & autonomic neuropathy, retinopathy, cheiroarthropathy & gastroparesis for the last 23 years. I have tried lots of prescription meds & all sorts to try to help calm the effects to the nerves, without much help :( I've been taking a huge dose of slow release morphine sulphate with phenytoin for a lot of years plus duloxetine about the last 4 years. These help me to take those wall climbing symptoms down that you speak of (I know that feeling too). I have a low carb diet, don't eat much really & control my blood sugars so my Hba1c is always around 42 to 45 or 6.2 to 6.5 (my consultant moans it's too low) but it helps. It took a few years to find the med combo to help me. I went through trials of gaberpentin & pregabalin & couldn't function from the effects. I tried amytriptylene but suffered awful night terrors from, had epidurals, a duragesic patch (had a bad reaction to the fentanyl, needing antidote in emergency) & tens. Tens on my lower back set high helped but overused to gain relief so was stopped. I've recently heard about the R-ALA too (not the synthetic!). Apparently in Germany, I read, the Dr's treat neuropathy with huge doses of drip fed R-ALA. I've also recently been hearing about the benefits of CBD Oil for neuropathy. The costs are the only thing stopping me trying the oil as I'm dependent on benefits to exist. (Doesn't help that my DLA transferred to PIP & mobility wasn't awarded because of the huge changes). I hope the info provided by the other forum members & myself will help you to find something to ease things for you. I know what you're going through only to well. Good luck & best wishes :) Regards, Tux [/QUOTE]
Verification
Post Reply
Home
Forums
Diabetes Discussion
Ask A Question
PN nightmare - help!!!
Top
Bottom
Find support, ask questions and share your experiences. Ad free.
Join the community »
This site uses cookies. By continuing to use this site, you are agreeing to our use of cookies.
Accept
Learn More.…