Search
Search titles only
By:
Search titles only
By:
Home
Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
Search
Search titles only
By:
Search titles only
By:
New posts
Search forums
Menu
Install the app
Install
Reply to Thread
Guest, we'd love to know what you think about the forum! Take the
Diabetes Forum Survey 2024 »
Home
Forums
Diabetes Discussion
Ask A Question
PN nightmare - help!!!
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Message
<blockquote data-quote="Stephen Lewis" data-source="post: 2219453" data-attributes="member: 479176"><p>The Alpha Lipoic Acid is the only thing that works although I take it with pregabalin. I do not take the'R' bbutwas told by a diabetic nurse(!) that I could have up to 1800 mgs per day. I take 400 x 4 times a day and when I forget even one dose by only a couple of hours the pain is excruciating - just like it was about an hour ago. If I miss the capsule before going to bed then it is impossible to get to sleep with itching and pain or I wake up with the pain very quickly. My A1cs and bg levels have been getting better and better over the last 18 months but the PN seems to be getting worse. Apparently this 'cannot' happen so as always it is hard to convince the 'professionals'. I tried cutting my dose and the pain came back very quickly. Of course there seems to be no real research that has shown what causes PN so it's no wonder there is no cure or even proper symptom relief. I diagram of PN in a locum doctor;s office I saw recently basically said that it was 'all in the patient's head' so use pregabalin as this is used to help people with brain issues such as seizures. Hence the possible effect on personality which luckily I have never had.</p><p>If there are any researchers out there reading this - get at it, we are often desperate.</p></blockquote><p></p>
[QUOTE="Stephen Lewis, post: 2219453, member: 479176"] The Alpha Lipoic Acid is the only thing that works although I take it with pregabalin. I do not take the'R' bbutwas told by a diabetic nurse(!) that I could have up to 1800 mgs per day. I take 400 x 4 times a day and when I forget even one dose by only a couple of hours the pain is excruciating - just like it was about an hour ago. If I miss the capsule before going to bed then it is impossible to get to sleep with itching and pain or I wake up with the pain very quickly. My A1cs and bg levels have been getting better and better over the last 18 months but the PN seems to be getting worse. Apparently this 'cannot' happen so as always it is hard to convince the 'professionals'. I tried cutting my dose and the pain came back very quickly. Of course there seems to be no real research that has shown what causes PN so it's no wonder there is no cure or even proper symptom relief. I diagram of PN in a locum doctor;s office I saw recently basically said that it was 'all in the patient's head' so use pregabalin as this is used to help people with brain issues such as seizures. Hence the possible effect on personality which luckily I have never had. If there are any researchers out there reading this - get at it, we are often desperate. [/QUOTE]
Verification
Post Reply
Home
Forums
Diabetes Discussion
Ask A Question
PN nightmare - help!!!
Top
Bottom
Find support, ask questions and share your experiences. Ad free.
Join the community »
This site uses cookies. By continuing to use this site, you are agreeing to our use of cookies.
Accept
Learn More.…