Heathenlass
Well-Known Member
- Messages
- 1,631
- Type of diabetes
- Type 1
- Treatment type
- Insulin
Toys ! Yessssss, we likes toys..!
Great book choice too!
Signy
I felt like everything I tried made no difference, Hba1c kept going up year on year so what was the point.
New toys gave me new hope - DAFNE and the pump. In turn that renewed my efforts with low carbing, led me to LCHF and renewed my efforts with my CGM. Most important all these things gave positive results, which made me feel there was a point, that I could influence things and make a difference to my own health.
Yup. Me also .
@Cookiebell , great name and avatar btwWhat worked for me was going back to basics . That and viewing it as a challenge like any other, which it is If something is easy, it is not a challenge and like all challenges there is motivation, progress forward and pitfalls, but a goal and pride of achievement . Plus, you start to feel better in yourself very early on and that makes it all so much easier.
Start with baby steps, if you are not testing, get back in to the routine of testing and recording. If log books are not your thing, get a great app.
Get help on your side from the diabetes team, if a DAFNE refresher type course is available , ask to go on it or dig out your old DAFNE stuff and re read.
You will find much support on this forum , and glean some good ideas and advice too
Welcome and good luck !
Signy
That sounds like a great book and should b very useful in getting you back on track, money worth spent IMHO.
As for the DAFNE course that Spiker mentions earlier, you say it's been several years since you last did the course, I wonder if you asked to go on it again would this be helpful, I think one of the many benefits of the course is actually sitting in the same room as other type 1's and sharing experiences of living life with diabetes, almost all of us have lost the motivation at some point so your by no means on your own Cookie, do ask and see if you can do the course again, failing that see if there's any Diabetes UK group meetings in your area, sometimes they all meet up once a month and it's a good chance to meet other people.
If you've forgotten any aspects of the DAFNE course take a look at the following:
http://www.bdec-e-learning.com/
Toys ! Yessssss, we likes toys..!( see the thread on decorating your diabetic kit ! )
Great book choice too!
Signy
You guys are all amazing, why did I not find this forum ages ago?!
I might email the clinic actually and ask if it's possible to repeat the DAFNE course, I'd love to do that actually!
Could you give me a link to that thread?
Originally ? Now I lurk in deepest, darkest rural Northumberland where I bother sheep for a living , but was born in the Netherlands of a Scottish father and Norwegian mother. Explains a lot, I supposeWhere are you from @Heathenlass?
Originally ? Now I lurk in deepest, darkest rural Northumberland where I bother sheep for a living , but was born in the Netherlands of a Scottish father and Norwegian mother. Explains a lot, I suppose
I just thought of something else that helped me out of Burnout - I am **** at remembering to test and inject basals ( the possessed tablet just changed that to basalt !) so I set alarms on my phone with the most annoying ringtone available so I don't ignore it Not for the faint hearted this one , but it works especially if it annoys the hell out of family and friends who will reinforce the message to get at it after the fifth rendition of "The Teddy Bears Picnic Rap "
Signy
Hi Cookiebell
Good advice to try and re do Dafne or similar if possible. It's tough going when you lose motivation to keep good control and it is hard to kick start your efforts. Like you say the effects of letting it slip aren't immediate and it's easy to drift on without any obvious consequences. I wish the margins for higher/erratic blood sugar were as narrow as the low sugar margins, if the impact on our lives was as instant as a hypo that would be pretty hard to ignore.
Ask for help from your diabetes team, they would much rather help you now than further down the line. I am a reformed character and an ex-burnout dude after years of thinking it wouldn't/couldn't happen to me . For the past few years since taking control I actually enjoy seeing good results and get grumpy with erratic readings, I can't believe I let it all slip so badly. It is achievable and weirdly addictive to start to retake control.
Good luck kick starting your efforts
Ah ok, wondered if you were in Scotland like me, I'm just outside Edinburgh.
Love the idea of annoying alarms on my phone, might try that too! Have just downloaded MySugr
Trying to imagine the Teddy Bears Picnic Rap in my head!
How did you manage to get back on track?
Fear is a good motivator, if anyone needs more. it could help to print a couple of these out and stick on the bathroom mirrorI had the wake up call from hell and had no option but to do everything I could to get control, I lost my sight, job, driving licence, had to sell my house, the domino effect of not bothering was unimaginable. A psychologist and my diabetes team plus an insulin pump and a massive amount of fear pulled me back from the brink. It is doable and I certainly wouldn't recommend the extreme route I took to anyone.
Get as much help from your medical team and psychologist as soon as possible and get as much inspiration from here as you can. Start with small steps each day to do everything within your power to look after yourself whilst it's in your hands. After all the carnage has settled on my burnout, the diabetes management is the easy bit, the complications are the mind blowingly difficult bits. Please don't reach the point where things start to go wrong, I wish you the very best with getting back on track.
I had the wake up call from hell and had no option but to do everything I could to get control, I lost my sight, job, driving licence, had to sell my house, the domino effect of not bothering was unimaginable. A psychologist and my diabetes team plus an insulin pump and a massive amount of fear pulled me back from the brink. It is doable and I certainly wouldn't recommend the extreme route I took to anyone.
Get as much help from your medical team and psychologist as soon as possible and get as much inspiration from here as you can. Start with small steps each day to do everything within your power to look after yourself whilst it's in your hands. After all the carnage has settled on my burnout, the diabetes management is the easy bit, the complications are the mind blowingly difficult bits. Please don't reach the point where things start to go wrong, I wish you the very best with getting back on track.
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