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Poorly controlled... :-(

Spiker said:
I felt like everything I tried made no difference, Hba1c kept going up year on year so what was the point.

New toys gave me new hope - DAFNE and the pump. In turn that renewed my efforts with low carbing, led me to LCHF and renewed my efforts with my CGM. Most important all these things gave positive results, which made me feel there was a point, that I could influence things and make a difference to my own health.
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Toys ! Yessssss, we likes toys..! :D ( see the thread on decorating your diabetic kit ! )

Great book choice too!

Signy
 
Cookiebell said:
Have just ordered this book...

http://www.amazon.co.uk/Dealing-Diabetes-Burnout-Frustrated-Overwhelmed/dp/1936303590/ref=sr_1_2?ie=UTF8&qid=1410206552&sr=8-2&keywords=Diabetes burnout
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That sounds like a great book and should b very useful in getting you back on track, money worth spent IMHO.

As for the DAFNE course that Spiker mentions earlier, you say it's been several years since you last did the course, I wonder if you asked to go on it again would this be helpful, I think one of the many benefits of the course is actually sitting in the same room as other type 1's and sharing experiences of living life with diabetes, almost all of us have lost the motivation at some point so your by no means on your own Cookie, do ask and see if you can do the course again, failing that see if there's any Diabetes UK group meetings in your area, sometimes they all meet up once a month and it's a good chance to meet other people.

If you've forgotten any aspects of the DAFNE course take a look at the following:

http://www.bdec-e-learning.com/
 
Heathenlass said:
Yup. Me also .

@Cookiebell , great name and avatar btw :) What worked for me was going back to basics . That and viewing it as a challenge like any other, which it is ;) If something is easy, it is not a challenge and like all challenges there is motivation, progress forward and pitfalls, but a goal and pride of achievement . Plus, you start to feel better in yourself very early on and that makes it all so much easier.

Start with baby steps, if you are not testing, get back in to the routine of testing and recording. If log books are not your thing, get a great app.

Get help on your side from the diabetes team, if a DAFNE refresher type course is available , ask to go on it or dig out your old DAFNE stuff and re read.

You will find much support on this forum , and glean some good ideas and advice too :)
Welcome and good luck !:happy:

Signy
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Thank you so much for your reply :-)

Can you recommend an app?
 
as well as the online course, there are workbooks to tick the boxes as a refresher
http://www.diabetesinscotland.org.uk/Publications/9224 Overview

Workbook 1http://www.diabetesinscotland.org.uk/Publications/9225 Carbohydrate Counting.pdf
Workbook 2http://www.diabetesinscotland.org.uk/Publications/9226 Carbohydrate Counting the Next Steps.pdf

Carb listhttp://www.diabetesinscotland.org.uk/Publications/9227 Carbohydrate Tables A6.pdf

Diaryhttp://www.diabetesinscotland.org.uk/Publications/9228 Free Diary Portrait A4.pdf

Basal testinghttp://www.diabetes-support.org.uk/info/?page_id=120

Sick day ruleshttp://www.diabetes-healthnet.ac.uk...flet_-_Sick_Day_Rules_for_Type_1_-_Nov_13.pdf
Sick day rules flowcharthttp://www.leicestershirediabetes.org.uk/uploads//documents/Type1 Sick_day_rules_InsulinV3.pdf
 
noblehead said:
That sounds like a great book and should b very useful in getting you back on track, money worth spent IMHO.

As for the DAFNE course that Spiker mentions earlier, you say it's been several years since you last did the course, I wonder if you asked to go on it again would this be helpful, I think one of the many benefits of the course is actually sitting in the same room as other type 1's and sharing experiences of living life with diabetes, almost all of us have lost the motivation at some point so your by no means on your own Cookie, do ask and see if you can do the course again, failing that see if there's any Diabetes UK group meetings in your area, sometimes they all meet up once a month and it's a good chance to meet other people.

If you've forgotten any aspects of the DAFNE course take a look at the following:

http://www.bdec-e-learning.com/
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You guys are all amazing, why did I not find this forum ages ago?!

I might email the clinic actually and ask if it's possible to repeat the DAFNE course, I'd love to do that actually!
 
Cookiebell said:
You guys are all amazing, why did I not find this forum ages ago?!

I might email the clinic actually and ask if it's possible to repeat the DAFNE course, I'd love to do that actually!
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You do that Cookie, small steps and you'll get there. For inspiration I like to read about all the successful sports men and women who have managed to excel at their chosen sport despite having type 1 diabetes, likewise with people in other professions who have never let diabetes hold them back, not forgetting the good members of this forum ;)
 
Cookiebell said:
Could you give me a link to that thread? :)
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Have you decorated your diabetes equipment ?
Discussion in 'General Chat' started by Robinredbreast, Today at 5:56 PM.

Sorry , I can't get the link to work on this new tablet that seems determined to drive me insane !:banghead::banghead: But the above should give you a wee clue :D

Apps - good and rather fun is Mysugr , even better it's free ;) Another good one but paid for is Rapidcalc that has a bolus calculator , but you need a good idea of your ratios and correction factors to set it up. Once it's up and running, it's great . Both allow you to input your carbs and basal/ bolus etc. Rapidcalc currently only runs on iPads and iPhones , with plans to introduce an Android version at some point. It's possible
Ble to run it on an iPod 4 and above, so I bought a cheapie on eBay just for that :rolleyes:

If you cook, Cook and Count is great as it calculates the carb content of your recipes and you can also find the carb content of individual foods in the database . I love to cook, so find this invaluable :)

Signy
 
Cookiebell said:
Where are you from @Heathenlass?
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Originally ? Now I lurk in deepest, darkest rural Northumberland where I bother sheep for a living , but was born in the Netherlands of a Scottish father and Norwegian mother. Explains a lot, I suppose :D

I just thought of something else that helped me out of Burnout - I am **** at remembering to test and inject basals ( the possessed tablet just changed that to basalt !:eek:) so I set alarms on my phone with the most annoying ringtone available so I don't ignore it ;) Not for the faint hearted this one , but it works especially if it annoys the hell out of family and friends who will reinforce the message to get at it after the fifth rendition of "The Teddy Bears Picnic Rap " ;)

Signy
 
Hi Cookiebell

Good advice to try and re do Dafne or similar if possible. It's tough going when you lose motivation to keep good control and it is hard to kick start your efforts. Like you say the effects of letting it slip aren't immediate and it's easy to drift on without any obvious consequences. I wish the margins for higher/erratic blood sugar were as narrow as the low sugar margins, if the impact on our lives was as instant as a hypo that would be pretty hard to ignore.

Ask for help from your diabetes team, they would much rather help you now than further down the line. I am a reformed character and an ex-burnout dude after years of thinking it wouldn't/couldn't happen to me . For the past few years since taking control I actually enjoy seeing good results and get grumpy with erratic readings, I can't believe I let it all slip so badly. It is achievable and weirdly addictive to start to retake control.

Good luck kick starting your efforts :)
 
Heathenlass said:
Originally ? Now I lurk in deepest, darkest rural Northumberland where I bother sheep for a living , but was born in the Netherlands of a Scottish father and Norwegian mother. Explains a lot, I suppose :D

I just thought of something else that helped me out of Burnout - I am **** at remembering to test and inject basals ( the possessed tablet just changed that to basalt !:eek:) so I set alarms on my phone with the most annoying ringtone available so I don't ignore it ;) Not for the faint hearted this one , but it works especially if it annoys the hell out of family and friends who will reinforce the message to get at it after the fifth rendition of "The Teddy Bears Picnic Rap " ;)

Signy
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Ah ok, wondered if you were in Scotland like me, I'm just outside Edinburgh.

Love the idea of annoying alarms on my phone, might try that too! Have just downloaded MySugr :)

Trying to imagine the Teddy Bears Picnic Rap in my head!
 
Flowerpot said:
Hi Cookiebell

Good advice to try and re do Dafne or similar if possible. It's tough going when you lose motivation to keep good control and it is hard to kick start your efforts. Like you say the effects of letting it slip aren't immediate and it's easy to drift on without any obvious consequences. I wish the margins for higher/erratic blood sugar were as narrow as the low sugar margins, if the impact on our lives was as instant as a hypo that would be pretty hard to ignore.

Ask for help from your diabetes team, they would much rather help you now than further down the line. I am a reformed character and an ex-burnout dude after years of thinking it wouldn't/couldn't happen to me . For the past few years since taking control I actually enjoy seeing good results and get grumpy with erratic readings, I can't believe I let it all slip so badly. It is achievable and weirdly addictive to start to retake control.

Good luck kick starting your efforts :)
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How did you manage to get back on track?
 
Cookiebell said:
Ah ok, wondered if you were in Scotland like me, I'm just outside Edinburgh.

Love the idea of annoying alarms on my phone, might try that too! Have just downloaded MySugr :)

Trying to imagine the Teddy Bears Picnic Rap in my head!
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Not that far away , in real terms . Hey, we're neighbours ! I could ask if I could borrow a cup of .....errrr, perhaps not that ! :eek::D

You honestly don't want to hear the Teddy Bears Picnic Rap . Trust me ;)


Signy
 
Hi,cookie
Nice name and it is your name ....

I am type 2 so can't really say much on diet front ...
But on the psychological support ....
3 words which I like
Give them a try ....if you wish

I am calm
I have confidence
I have courage

You have all 3 and can achieve all 3 to reach your goals ...I believe .....

And welcome to supportive members here ....Kat
 
Cookiebell said:
How did you manage to get back on track?
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I had the wake up call from hell and had no option but to do everything I could to get control, I lost my sight, job, driving licence, had to sell my house, the domino effect of not bothering was unimaginable. A psychologist and my diabetes team plus an insulin pump and a massive amount of fear pulled me back from the brink. It is doable and I certainly wouldn't recommend the extreme route I took to anyone.

Get as much help from your medical team and psychologist as soon as possible and get as much inspiration from here as you can. Start with small steps each day to do everything within your power to look after yourself whilst it's in your hands. After all the carnage has settled on my burnout, the diabetes management is the easy bit, the complications are the mind blowingly difficult bits. Please don't reach the point where things start to go wrong, I wish you the very best with getting back on track.
 
Flowerpot said:
I had the wake up call from hell and had no option but to do everything I could to get control, I lost my sight, job, driving licence, had to sell my house, the domino effect of not bothering was unimaginable. A psychologist and my diabetes team plus an insulin pump and a massive amount of fear pulled me back from the brink. It is doable and I certainly wouldn't recommend the extreme route I took to anyone.

Get as much help from your medical team and psychologist as soon as possible and get as much inspiration from here as you can. Start with small steps each day to do everything within your power to look after yourself whilst it's in your hands. After all the carnage has settled on my burnout, the diabetes management is the easy bit, the complications are the mind blowingly difficult bits. Please don't reach the point where things start to go wrong, I wish you the very best with getting back on track.
Click to expand...
Fear is a good motivator, if anyone needs more. it could help to print a couple of these out and stick on the bathroom mirror
https://www.google.com.au/search?q=...=IWMOVN7AMev4yQOV1IDgBA&sqi=2&ved=0CAYQ_AUoAQ
 
Flowerpot said:
I had the wake up call from hell and had no option but to do everything I could to get control, I lost my sight, job, driving licence, had to sell my house, the domino effect of not bothering was unimaginable. A psychologist and my diabetes team plus an insulin pump and a massive amount of fear pulled me back from the brink. It is doable and I certainly wouldn't recommend the extreme route I took to anyone.

Get as much help from your medical team and psychologist as soon as possible and get as much inspiration from here as you can. Start with small steps each day to do everything within your power to look after yourself whilst it's in your hands. After all the carnage has settled on my burnout, the diabetes management is the easy bit, the complications are the mind blowingly difficult bits. Please don't reach the point where things start to go wrong, I wish you the very best with getting back on track.
Click to expand...

Wow Flowerpot, how scary. Good for you managing to get back on track x
 
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