Possible misdiagnoses of type 2? LADA instead?

[HSSS]

Hi
i was diagnosed as type 2 but after going through metformin, saxagliptin, then gliclazide my BG was still high and not stable, waking up at 17 mmol was no joke, I was sent to a specialist who told me that despite my size she wasn’t convinced I was type 2 at all and that it may be LADA broadly known as 1.5, she did tests that showed I produced almost no insulin so she switched me to insulin, it’s been a roller coaster and a learning curve but I’m getting there.
she said the reason she didn’t think it’s type 2 was because I have other autoimmune diseases too and one can often follow another.
she also read all my bloods for the last 6 years…she said I can’t re diagnose but I can tailor your treatment to what I believe will be effective, she did and since then it’s been so much better.

Why can’t they re diagnose? It happens all the time and it makes a difference in the nhs what tech etc you can access

 

[kat1994]

Hi everyone,

A quick background- I got told I was diabetic last May and GP thought I was type 1 (I was 24, weight lifting and cardio 4x a week, healthy weight and diet due to history of eating disorders). HBA1C was 72. I was asked to come in to test for ketones, which they found and I was sent straight to A&E for fear of DKA. A&E told me that whilst I wasn’t in DKA, I was diabetic, and needed to come in the next day for insulin. I returned the next day where my BM was 5.2 after eating and they told me I wasn’t diabetic, and that my HBA1C was high due to my size (I’m a size 10). GP then said I must be type 2 and put me on metformin. Was then referred to a diabetic specialist nurse who suggested I might be type 1 and in the honeymoon phase. Was told to come of the metformin and repeat HBA1C and do c-peptide test after 3 months, although he said it could take years for my c-peptide to come up. Results were normal for C-peptide and still high HBA1c.
They did a GADA test in Jan of this year and it’s come back negative.
My BMs are very rarely above 7 but when they are double digits my GP has told me not to worry, despite telling me to call them for advice when this happens.
I have no risk factors for type 2, nor any family history of pre-diabetes/diabetes at all.
What I do have however is my mother with borderline hypothyroidism and my sister with diagnosed hypothyroidism as well as endometriosis which is under investigation. I understand that LADA may be more common in those with family autoimmune condition?

Is it possible that I could be LADA and I may have the other varieties of antibody? I just can’t seem to get my head round a type 2 diagnosis. Any advice would be great

Hi, I’m in a similar position at the moment - what did your GAD results show?

 

[HSSS]

Hi, I’m in a similar position at the moment - what did your GAD results show?

If blood glucose monitoring Is normal and doesn’t align with hba1c (and the type 1 tests are not confirming type 1/LADA either) it may be that you have a condition that makes hba1c inaccurate. Some blood conditions including some types of anemia, sickle celll etc affect the turnover or shape of red blood cells which in turn affects how much glucose has effected them. The hba1c is based on normal shapes and lifespan whichms9metimes simply isn’t accurate. A fructosamine test could be used or even an old fashioned OGTT that used to be used before hba1c replaced it.