Search
Search titles only
By:
Search titles only
By:
Home
Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
Search
Search titles only
By:
Search titles only
By:
New posts
Search forums
Menu
Install the app
Install
Reply to Thread
Guest, we'd love to know what you think about the forum! Take the
Diabetes Forum Survey 2024 »
Home
Forums
Diabetes Discussion
Type 1 Diabetes
Pregnancy/preconception - Issues or unrealistic expectations?
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Message
<blockquote data-quote="SJT1D" data-source="post: 2402235" data-attributes="member: 542058"><p>No, no, no, no, no. [USER=504426]@Doctorwhobbc[/USER] I'm so sorry that you and your wife are going through this, and I'm SO angry at the advice you have been given.</p><p></p><p>My experience as a T1 who is currently trying to conceive (and as with everything, diabetes related - this is personal).</p><p></p><p>I spoke to my hospital team about my intentions, months before we started trying. I was then referred to the pre-conception clinic at the hospital. Fortunately, the DSN who runs this clinic is also my DAFNE nurse, so she already knew me well <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /> A couple of appointments at this clinic did get cancelled, due to COVID, but of course, that's just the current situation.</p><p></p><p>We worked on improving my Hb1Ac from 6.8% down to below 6.4%. As I'm on blood pressure tablets, the team requested my GP change those to a pregnancy- friendly beta-blocker. I was also prescribed 5mg of folic acid (you are meant to take for at least 3 months before conception)- both of these changes were made in September 2020.</p><p></p><p>In December my Hb1Ac was 6.3% - everyone was happy, and my consultant told me I could come of contraception when ready.</p><p></p><p>In January, I did so, and that's when all my troubles started. I have been T1 since childhood, and have been on the pill since I was 17. This helped my diabetes management, as I didn't have to worry about hormonal changes, and how the menstrual cycle affects my BG for many years.</p><p></p><p>The extra hormones now working through my body (albeit normal ones) have caused havoc with my management. My Hb1Ac has dropped to 5.2% (in just five months), and I have had severe hypos (resulting in my husband having to inject glucagon, and call paramedics out on 3 separate occasions. He also freaks out, and is often awake in the middle of the night, scanning my Libre Sensor, as he is genuinely worried that I won't wake up one morning). It's not just the lows, it's the stubborn highs too - I now know that my blood goes sky high, for about 24 hours, when I ovulate - I now check for ovulation with home urine tests, so I can prepare, and have extra basal at this time.</p><p></p><p>My team have been amazing, and supportive throughout all this. I am now having regular appointments at the pre-conception clinic at least every 6-8 weeks.</p><p></p><p>Honestly, the last few months have been so stressful, and I wouldn't have been able to cope with both my husband (it has been a big strain on him, and not just me), and my team, who are supporting us both.</p><p></p><p>Read the NICE guidance posted above, and please make sure you push for the right support. I really hope your wife's transition is a smoother one than mine, but that support does need to be in place. As diabetics, our pregnancies would be deemed high risk, and so it's always best to get things in place before you start trying.</p><p></p><p>You are definitely not expecting too much.</p></blockquote><p></p>
[QUOTE="SJT1D, post: 2402235, member: 542058"] No, no, no, no, no. [USER=504426]@Doctorwhobbc[/USER] I'm so sorry that you and your wife are going through this, and I'm SO angry at the advice you have been given. My experience as a T1 who is currently trying to conceive (and as with everything, diabetes related - this is personal). I spoke to my hospital team about my intentions, months before we started trying. I was then referred to the pre-conception clinic at the hospital. Fortunately, the DSN who runs this clinic is also my DAFNE nurse, so she already knew me well :) A couple of appointments at this clinic did get cancelled, due to COVID, but of course, that's just the current situation. We worked on improving my Hb1Ac from 6.8% down to below 6.4%. As I'm on blood pressure tablets, the team requested my GP change those to a pregnancy- friendly beta-blocker. I was also prescribed 5mg of folic acid (you are meant to take for at least 3 months before conception)- both of these changes were made in September 2020. In December my Hb1Ac was 6.3% - everyone was happy, and my consultant told me I could come of contraception when ready. In January, I did so, and that's when all my troubles started. I have been T1 since childhood, and have been on the pill since I was 17. This helped my diabetes management, as I didn't have to worry about hormonal changes, and how the menstrual cycle affects my BG for many years. The extra hormones now working through my body (albeit normal ones) have caused havoc with my management. My Hb1Ac has dropped to 5.2% (in just five months), and I have had severe hypos (resulting in my husband having to inject glucagon, and call paramedics out on 3 separate occasions. He also freaks out, and is often awake in the middle of the night, scanning my Libre Sensor, as he is genuinely worried that I won't wake up one morning). It's not just the lows, it's the stubborn highs too - I now know that my blood goes sky high, for about 24 hours, when I ovulate - I now check for ovulation with home urine tests, so I can prepare, and have extra basal at this time. My team have been amazing, and supportive throughout all this. I am now having regular appointments at the pre-conception clinic at least every 6-8 weeks. Honestly, the last few months have been so stressful, and I wouldn't have been able to cope with both my husband (it has been a big strain on him, and not just me), and my team, who are supporting us both. Read the NICE guidance posted above, and please make sure you push for the right support. I really hope your wife's transition is a smoother one than mine, but that support does need to be in place. As diabetics, our pregnancies would be deemed high risk, and so it's always best to get things in place before you start trying. You are definitely not expecting too much. [/QUOTE]
Verification
Post Reply
Home
Forums
Diabetes Discussion
Type 1 Diabetes
Pregnancy/preconception - Issues or unrealistic expectations?
Top
Bottom
Find support, ask questions and share your experiences. Ad free.
Join the community »
This site uses cookies. By continuing to use this site, you are agreeing to our use of cookies.
Accept
Learn More.…