Thank you. Only Avastin and laser is what I am doing at the moment. Just crazy to think about going blind. my blind sport starts from centre vision so reading with this eye is really hard. Me testing it every other second doesn’t help neitherMy blind spot was caused by surgery. A bit of soemthing got stuck and scarred as he tried to pull it off, so not similar, sorry.
But it appears as "greyed out" triangle, a bit like a cake with a slice missing. Over time my brain has adjusted so well to it I really don't see it now unless I really seek it out. My brain just fills in the missing bit. At first it was very different and it felt that tiny slice was all I could see. It takes the brain time to learn but learn it does.
I know one of my drops is for oedema, 5 years later
Do you have any medication?
I don't know the answers to your other questions
Also is it normal to have darker / blurry vision in the morning that clears up as the day goes ?
Thank you for your reply and hope you get better soon.Sorry to read of your eyes issues, to everyone.
I too have these problems, all the swelling centred around the macular disc in both eyes as well as general bleeds dotted about the retina. currently my left eye is suffering the worst and being treated by eylea injections. [must have had well over 30 now in both eyes over the last 3 years] the injections certainly help, but its a slow process and the re-occurrence of swelling very frustrating.
As mentioned by various people my own issues kicked after my bloods improved to normal levels.
That amsler chart is always interesting, the centre dot vanishes when looked at with my left eye plus lines crush up by 30-40 % in various places, as well as spots of diffused missing areas all over the place. right eye is better in the centre but has a missing bit 1.5 squares below the dot. plus all the waviness else where.
The whole lot combines to create distortion in far off faces etc, tv viewing etc.
Being an artist having super precise vision is something of a necessity so far i have been able to work around it but it is a concern.
All i can add is best wishes and fingers crossed for everyone who is dealing with this unpleasant side effect.
had haemorrhaging here and there and various swelling. As for whether damage is permanent its often hard to tell due to the way things can change, But i dod think some of the damage is permanent , Anti VEGF doe help undo some the the damage but it really dpends on how early and whether the swollen areas have done serious damage to the receptor cells. I think you will find like most other medica things that peoples personal experiences will be different. I tend to notice some affect of the injections pretty quickly , my lastest round is the first of 3 in the left eye. its been around 9 days since the first and i think things have changed a bit, its seems a bit sharper in the very centre but the overall distortion is still very high so reading is very tricky with it.Thank you for your reply and hope you get better soon.
Does anyone know if you have spots of blood on Retina .. Does this create temp blind spots .. or are the Blind spots there for ever? -
also .. are 2 ANTI VEGF shots enough to start noticing some difference here or need to wait for more?
thank you. My doctor only done some scans are the very first vision and only continued with treatments after. So far the plan is:had haemorrhaging here and there and various swelling. As for whether damage is permanent its often hard to tell due to the way things can change, But i dod think some of the damage is permanent , Anti VEGF doe help undo some the the damage but it really dpends on how early and whether the swollen areas have done serious damage to the receptor cells. I think you will find like most other medica things that peoples personal experiences will be different. I tend to notice some affect of the injections pretty quickly , my lastest round is the first of 3 in the left eye. its been around 9 days since the first and i think things have changed a bit, its seems a bit sharper in the very centre but the overall distortion is still very high so reading is very tricky with it.
The scan showed a lot of swelling so there is plenty of work still to go. there still seems to be images forming in the distorted areas but also shadowing suggesting damage.
How did your scans look?
Sorry to read of your eyes issues, to everyone.
I too have these problems, all the swelling centred around the macular disc in both eyes as well as general bleeds dotted about the retina. currently my left eye is suffering the worst and being treated by eylea injections. [must have had well over 30 now in both eyes over the last 3 years] the injections certainly help, but its a slow process and the re-occurrence of swelling very frustrating.
As mentioned by various people my own issues kicked after my bloods improved to normal levels.
That amsler chart is always interesting, the centre dot vanishes when looked at with my left eye plus lines crush up by 30-40 % in various places, as well as spots of diffused missing areas all over the place. right eye is better in the centre but has a missing bit 1.5 squares below the dot. plus all the waviness else where.
The whole lot combines to create distortion in far off faces etc, tv viewing etc.
Being an artist having super precise vision is something of a necessity so far i have been able to work around it but it is a concern.
All i can add is best wishes and fingers crossed for everyone who is dealing with this unpleasant side effect.
thank you. My doctor only done some scans are the very first vision and only continued with treatments after. So far the plan is:
4x PRP laser in each eye(2x completed in each)
2 years or + worth of Avastin injections (2x completed in each) - used to help with PDR
Apparently I had minimal DME in each eye but advanced PDR... makes me very scared and sad. He did also say i had some scar tissue so not sure if these get better or no as time goes... I hope they didnt create too much damage.
Sounds like you have been going through it! I certainly concur about the combined effect on the stereo vision. I was the case that the difference combined to cancel out but now the left eye distortion gets in the way. not to such a disorienting state yours has, but still fingers crossed..I found the worst part was that each eye drew a different image due to different swelling in each retina. So I ended up with double vision and distortion at the same time, as well as whole sections of the grid appearing to be missing or frosted over. The same line in the grid would wander off in different directions. Sweeping up with one eye and down with the other. The whole thing was pin-cushioned and generally very uncomfortable to look at, especially with both eyes open.
Although I could still read text just about ok with each eye, the interaction between the two was nasty and quite sickening at times. Loads of headaches. This interaction is also difficult to describe to an ophthalmologist and cannot be measured or tested. Each eye is assessed individually but this is of little help in evaluating how you actually see the world around you.
@PDR T2 best of luck moving forward. It can be a soul destroying process of recovery. Inconsistent. Good days and bad days. Flare ups for no apparent reason. I'm still recovering even now. Only advice is as per @Dark Horse. Keep calm and carry on.
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