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proliferative retinopathy I'M SO SCARED

You are probably right leb. It is your brittle diabetes. Worst thing for retinopathy - swinging between high and low.
I can tell if my levels rise by the sight in my left eye - and that is only with a swing of a few points.Stability is very important.
My problems began when my bg levels came down oo quickly.

You really need that pump donn't you? Otherwise it is going to be difficult to deal with your retinopahy. I do hope you can get the eye clinic people to help . Make sure they all know that your consultant thinks it is necessary.

No, running around after a lot of 3-4 year lolds might not be the best thing just now. I do hope they can help you soon.
 
It's now 8 days since my background bleed and its not getting any better. I had to wear sunglasses in the supermarket on Friday and over the weekend I have bumped into a couple opf things and chipped my blacksoapdishe 3 times on sSundasy. I keep closing the eye to help me see, but I am worried. I just wish it would start to get a bit better, this seems to be the worse one yet. I have been in touch with The Diabetes nurse at the hoispital and she has put me on a new regime and an ACCU-CHEK system. I have to stay between 6 and 12 and not to have any hypos, as she wants to keep me stable and not go up and down.

I have had stomach problems for months, constant nausea, vomited, pain in upper abdomen, palptations, which in the past has tyaken my breath awy and sometimes an upset 'tummy' dont want to go into too much detail. I was eating my dinner at 6pm last night and began to feel incredibly sick, rushed to the loo, nothing happened, came back to finish pudding and couldn't finish it as I was off to the loo agin. I felt so ill, laid on the couch, my daughter tested my bs, with the old meterbecause she knows how to use that and my BS was 6.1. I felt better about 8.30 and then felt ill again about 10.30pm. The dr gave me Omeprazole in April but i am going back this week, as I am constanly feeling sick and the gripping upper abdominal pain is just too much at times, I have had some tests including ESR and I am trying to change jobs. I am sick to death of it all and feel bloody useless. I am Insulin sensitive and I just can't seem to get anything right.

I want to be here, fit and well for my 11yr old as her daddy and my ex partner,( but we remained very good friends) died on 3 rd May and I don't want to be a burden or a worry to her, she's just a child. I feel so so down with the Diabetes, and its not me, I just got on with it. BFN
 
Hi Robinredbreast

So sorry to hear about your ex-partner. I'm sure that's adding to what sounds like a lot of stress and I can't help wondering if you're suffering from anxiety attacks.

Also wondering if you've been checked for coeliac disease. I suffered a lot of the same symptoms in the months leading up to final diagnosis. It's also more common in Type 1's that in the general population (it's another auto-immune disorder).

Hope your bleeds settle down soon.

Robert
 

Thank you Robert I will mention coeliac disease to my doctor. Did you actually have Coeliac disease? I will google it.
 
Yes I did - have been gluten-free for over a year now. Such a relief.
 
robert72 said:
Yes I did - have been gluten-free for over a year now. Such a relief.
Click to expand...

I'm glad you found out what the problem was and you are now feeling better Long may it continue
 
I think it's difficult what a lot of us have to go through. It must be very difficult with an 11 year old I suppose I'm at the other end of the scale with no family and friends (lost all of them when I was looking after my late father with his alzheimers) and obviously being so alone can have its own problems
 

Thank you for your post. I am a carer for my elderly dad, he will be 89 in September, getting frail, but no big problems such as Alzheimers. Real friends would still stay in touch with someone who is devoting a lot of their time caring for a relative, but I'm sure you will make more friends on here and I would like to be the first one, if I may I
 
SouthernGeneral6512 said:
Well thanks for that I need friends

Glad to see you're helping your elderly father :thumbup:
Click to expand...

Unfortunately , in my experience people often back off when there are long term problems. Your own illness or other people's
for whom you are responsible , can be very isolating.
I have supported my own parents through their illnesses - one with dementia - so I can sympathise.
I have also supported my two closest friends wih terminal cancer, Then wo other close friends emigrated.
Most of he others , both family and friends seem o consist of those who expeced me o help htem but now that
this is more difficult and much of my time is aken up by medial appointmenys or the after -effects of procedures
they seem o hink they are doing me a favour by "leaving me alone.Or "not inruding" as they call it. As another friend said his really means hey are afraid they may be required to help in some way. Some even call me from time to time to see if I "am beter yet" hey promise to call again and then disappear. I know if i could say that I have no fi=urther problems and could guarantee to meet and go ou and about with them it would be a different matter.
True friends are very rare. I lost another last year. I feel hat I always tried to be there for my friends bu there are few left to be there for me. Its very sad.
Its very hard o ake ime for yourself when you are caring for others. Even if you get he chance physically it is diffficult o distance yourself mentally.
Unfortunately your own health sufffers too. I hope things improve for you.
 
I just want o wish leb all the best for tomorrow. It occurred to me today that as it will obviously take some time to make some personal connnection with the eye clinic people and as your consultant is aleready rying to get you a pump it is this consultant you should , perhaps b eoncentrating on. By all means mention i o the eye people - the more supposrt the beter -bu- does your diabetes consultant know the full extent of your eye problems ? Have you kept her/him up to date with all the latest developments?

Might be worth a try?
 
Good luck tomorrow leb, I will be thinking of you.
 
Thanks everyone x
Mskes you realise rrading all ig uour posts thst i really shoildnt

Southerngenetal, i ferl gor you. I am at the sane point with the sunglasdes. They are a god send at tge moment. I kniw its hsrd with children. My daughters ate 10 AND 13 and it worries me hiw much they have to deal with. But belueve me thry sre stronger thsn we give tgem crefit for. So try to not feel guilty about being a burden. I kniw thats hard to do though x

Unbeliever, the last i eaw my disbetic consultan was tge day he sent me to a n e eye unit do he isnt fully awsre if the outcome. I saw the duabetIc nurse hoday sho was supportive . I have apt with consultant on 2nd july, hes on annual keave until then so thats tge firdt time i can see him. Hooing he will agree about thr pump.
 
Well had another lot of laser this morninb. Fid nearly 900 shots tjis time but gotta go bavk in 2 weeks as there was too much blood to get to some parts.

Was pretty psinful but just krpt telling myself it could save my dight over and over.

Judt gottz play the waiting game now and hope thst i have no mote nleefs and that the bloof abdorbs over the next geo weeks.

Hope everyoned foing ok

Bfn
 
Thinking of you leb, and wishing you a speedy recovery
 
Hi leb

That's quite a heavy session - well done. :clap: Hope it helps to keep the bleeds at bay until the next appointment. At least they didn't have to take out the jelly etc.
 
Unless your eyes are just very sensitive because of the bleeds leb you shouldn't have found it actually painful. Did you find it painful last time? Maybe its a litle oo intense- it can be adjusted.

Did you manage to ask about the injections? Or the pump? You must be shellshocked. At least you don't have to worry about work for the moment. Wish you a speedy recovery Have a good res.
 
I mentioned the ibjections ge kibd of brushed over it ans said we wikl wait and see. As for the pump i have to swe the diabetic consultant.

Just hope the bleed dries up and ni mire hsppen in the mesn time

Thsnkd agaun
 
Hi so sorry to keep posting questions but i seem to get mire answers on here than from the docs.
How do i kniw if what im seein is a new bleed or tje same bleed thsts moving around.
I have lots of new swirly bkack bits jyst appeared butso far the blurriness is the same.
Cant believe how its maki g me feel :-(
 


Normally a new bleed looks like spiders legs that disperses into a thousand black dots, that said it would be difficult to tell mind if you already have blood moving around in the vitreous jelly so you may not notice depending on the severity of your previous bleeds.
 
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