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Pump funding

K

Kevin1987

Well-Known Member
Messages
49
Type of diabetes
Type 1
Treatment type
Insulin
After a few years of waiting, firstly getting my doctor to refer me to the diabetic nurse team, they then made me do a course and then wait another year to see if it works I finally had an appointment with a specialist doctor who said he would put me forward for funding and write a cover letter to try and get it approved asap. He said funding can still take 6months to a year from this point but nice to actually seem to move forward!
 
Kevin1987 said:
After a few years of waiting, firstly getting my doctor to refer me to the diabetic nurse team, they then made me do a course and then wait another year to see if it works I finally had an appointment with a specialist doctor who said he would put me forward for funding and write a cover letter to try and get it approved asap. He said funding can still take 6months to a year from this point but nice to actually seem to move forward!
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Hi Kevin,
unless your consultant writes one word a week asking for funding then 6 months to a year is very very slow.
Have a read here http://www.inputdiabetes.org.uk/ for help and advice regarding the length of time it takes for funding to be approved.
 
He kinda worded it more until funding goes threw and I get a pump. I was more worried he was just gonna say I gotta try more stuff and come back again in 6 months to see if he would refer me then!
 
You should be up and running within 3 months at the very latest, start kicking up if no action seen. Do buy yourself pumping insulin so you have plenty of insight about pumping.
 
Thanks will do, I'm excited iv been asking for ages about going onto one thought it would never happen
 
That's great news @Kevin1987, do you know yet which pumps will be on offer to you?
 
I don't know yet I guess that will be the next step I know from the dafne style course I had to do first it will deff be the accu check as they showed us that pump on the course and said if we were interested this would be one that the hospital will offer
 
The DAFNE course (or a good knowledge of carb counting) is a pre-requisite for going on a pump @Kevin1987, hope your wait isn't as long as 6 months :)
 
I had been carb counting for years but had learnt myself the course was ok, it was nice to meet other diabetics and the hypo treatment was useful! But it was a hoop I had to jump threw! Thanks looking at buying the pumping insulin book get a head start now! I would love a pump that has an option to integrate cgm would be nice! But I will take any I can take to be honest!
 
the book is a good read but before you are on the pump it might not make alot of sense, but it will help once you start on the pump.

I was lucky, I got a start date but by a mishap I had not gotten the funding. After 2-3 weeks I saw my consultant and he put me forward for funding and was started on the same date I was given originally, good luck when you do get it and any questions post on here as the help I had was the best I could have imagined :)

btw I'm on the insight pump
 
The book Pumping Insulin is a must read, I read it prior to going on a pump and still refer to it from time to time, can't recommend it enough.
 
there is alot of work in the first stages of starting on the pump, basal testing and the likes but it is well worth the effort Kevin. I'am still ironing out some settings but I'm getting here and we all know the saying that Rome wasn't built in a day :)
 
Did you guys have to take any time off work while setting it up at the start?
 
I took a week off but I had holidays that needed taking before the new year, it helped for me personally
 
I had a week off so I could get straight into the basal testing and nailing those basal rates (impatient).
 
My pump took over a year to get, they tried me on a different insulin first (degludec, aka Tresiba), upset me and my sugars no end but then settled.

Then I had to do a two day carb counting course, not a bad idea after 33 years of jabs, even as a refresher, then I got listed and it was 8 months til I got my pump.

I worked it so I g my pump on a Friday and settled in over the weekend, back in work on the Monday. My pump nurse was ace calling me daily for two weeks. I work at the hospital so pop over to see her every week or two, when ever I need some advice, eventually this will reduce.

I pull the reports and send them to her on emails and I also keep a separate log of my exercise running spinning etc and sugars before during and after.

I've heard it can take from 3-12 months to really get to grips with it.

But I LOVE IT !!!

Misty X
 
Kevin1987 said:
Did you guys have to take any time off work while setting it up at the start?
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No as lived and worked on a small holding so had livestock to see to. :) Life went on as normal except carried plenty of glucose with me just in case of hypos.
 
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