I'm a long-term survivor of HIV and have been in treatment for most of the past twenty years. In spring last year I decided that the time was right to have a drug holiday - it's safer to stop drugs altogether than it is to miss a few doses a month - as I was missing too many doses.
In late summer last year I went to my GP with thrush "down there". I presumed it was a result of my immune system being low, but thought it a little odd as I would usually get thrush in my mouth and throat. The thrush was treated successfully, but soon returned, this time in my throat. I decided it was time to re-start the anti-HIV medications.
At the same time as this I was getting through a two litre bottle or more of pop every night through the night, and getting up to go to the loo every half hour. I was falling asleep during the day and sleeping for several hours a time, as well as binge-eating late evening.
HIV can disrupt appetite, so wanting to eat was a welcome sign, and it also causes fatigue, so I put the frequent naps down to that. Many of the drugs used to treat HIV disrupt lipid levels and cause hyperglycaemia. At least one can cause pancreatitis. I didn't pay any attention to that: I was far more interested in monitoring how often the older of my two dogs was weeing - he's an old gentleman now and with a dog of his age, you keep an eye out for symptoms of diabetes...
So it was a bit of a shock when the HIV clinic phoned me the same day they'd take blood for a range of tests to tell me to get myself to my GP asap as I had diabetes. My fasting BG was over 20.
Thinking about it now, I think I probably started showing symptoms in 2004, but didn't pay much attention as my partner was very ill and I was his sole carer. I couldn't allow myself to be sick, which is why I didn't start my treatment holiday until after he had died.
Since THAT phone call I've been discovering how little is known about living with diabetes and HIV, which is odd considering the number of anti-HIV drugs that have hyperglycaemia etc as side-effects. So I end up being the squeaky wheel, continually asking questions about living with both illnesses, as much to show that the question exists, as to get an answer other than "I don't know"...