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<blockquote data-quote="tim2000s" data-source="post: 1002699" data-attributes="member: 30007"><p>[USER=234780]@plandolfi[/USER] I'm answering these questions from my perspective, however, the people on this forum are generally not representative of the Diabetic population at large. We probably represent less than 10% of the UK T1s in our engagement and management practices. I've discussed this with a number of the Social Media aware Diabetologists on-line and it's a point they make over and over again. Many of the participants in the DOC are far more engaged than their average patients. </p><p></p><p>I would strongly recommend working with a hospital clinic to reach those who really struggle and need help. You would get a much more realistic summary of what the issues are that they face. I think [USER=17713]@donnellysdogs[/USER] is making a very good point in relation to this. Anyway, on to my answers to your questions.</p><p></p><p>1– when you go to the GP for your meeting about diabetes what do they ask?</p><p><em>I don't see my GP for my diabetes. They simply prescribe supplies.</em></p><p></p><p>4-on a scale of 1-10 how useful do you find your appoint with the GP(1 real useful 10 not useful at all)</p><p><em>Not applicable.</em></p><p></p><p>3-on a scale of 1-10 how useful would it be to have a community you could talk to about it (1 real useful 10 not useful at all)</p><p><em>I already have one here and amongst the T1s I meet up with in London. It is a 1 in terms of usefulness, but if you assume that T1s make up fewer than 0.5% of the UK population, in any surgery that is likely to account for fewer than 10 people!</em></p><p></p><p>4– would you happily not go to the appointment if you knew your blood sugars and everything was fine and you felt you was handling the problem yourself?</p><p><em>As mentioned, not applicable.</em></p><p></p><p>5– if you didn't have the appointment would you still like the safety net of being able to get hold of a diabetic specialist 24/7</p><p><em>No.</em></p><p></p><p>6– how do you remember to take your blood sugars?</p><p><em>It's 27 years of habit. As a T1, I'd say "forgetting" to take blood sugars for me is a choice rather than an accident.</em></p><p></p><p>7– in a week how often do you forget to take blood sugars?</p><p><em>Never.</em></p><p></p><p>8– in a week how often do you forget to take meds?</p><p><em>I've forgotten once in the last 10 years. And "forgetting" isn't the correct term - distracted at the last button press on the pump is a better description.</em></p><p></p><p>9– Would a reward system help and what rewards would interest you? E.g not having to go GP, days out, free stuff, treats from girlfriend/parents or other</p><p><em>No, but I'm an engaged patient. </em></p><p></p><p>10– did you have diabetes in school? If so how did you/the school deal with it?</p><p><em>Yes. It was fine with it. Parents explained what needed to happen and the school dealt with it. The rules have changed rather since then.</em></p><p></p><p>11– have you ever felt nagged by friends or family into taking meds or doing blood sugars and if so how did it affect you?</p><p><em>Of course. As a child, this happens all the time. And as an adult when they think you are low, partners have a habit of asking you to check too.</em></p></blockquote><p></p>
[QUOTE="tim2000s, post: 1002699, member: 30007"] [USER=234780]@plandolfi[/USER] I'm answering these questions from my perspective, however, the people on this forum are generally not representative of the Diabetic population at large. We probably represent less than 10% of the UK T1s in our engagement and management practices. I've discussed this with a number of the Social Media aware Diabetologists on-line and it's a point they make over and over again. Many of the participants in the DOC are far more engaged than their average patients. I would strongly recommend working with a hospital clinic to reach those who really struggle and need help. You would get a much more realistic summary of what the issues are that they face. I think [USER=17713]@donnellysdogs[/USER] is making a very good point in relation to this. Anyway, on to my answers to your questions. 1– when you go to the GP for your meeting about diabetes what do they ask? [I]I don't see my GP for my diabetes. They simply prescribe supplies.[/I] 4-on a scale of 1-10 how useful do you find your appoint with the GP(1 real useful 10 not useful at all) [I]Not applicable.[/I] 3-on a scale of 1-10 how useful would it be to have a community you could talk to about it (1 real useful 10 not useful at all) [I]I already have one here and amongst the T1s I meet up with in London. It is a 1 in terms of usefulness, but if you assume that T1s make up fewer than 0.5% of the UK population, in any surgery that is likely to account for fewer than 10 people![/I] 4– would you happily not go to the appointment if you knew your blood sugars and everything was fine and you felt you was handling the problem yourself? [I]As mentioned, not applicable.[/I] 5– if you didn't have the appointment would you still like the safety net of being able to get hold of a diabetic specialist 24/7 [I]No.[/I] 6– how do you remember to take your blood sugars? [I]It's 27 years of habit. As a T1, I'd say "forgetting" to take blood sugars for me is a choice rather than an accident.[/I] 7– in a week how often do you forget to take blood sugars? [I]Never.[/I] 8– in a week how often do you forget to take meds? [I]I've forgotten once in the last 10 years. And "forgetting" isn't the correct term - distracted at the last button press on the pump is a better description.[/I] 9– Would a reward system help and what rewards would interest you? E.g not having to go GP, days out, free stuff, treats from girlfriend/parents or other [I]No, but I'm an engaged patient. [/I] 10– did you have diabetes in school? If so how did you/the school deal with it? [I]Yes. It was fine with it. Parents explained what needed to happen and the school dealt with it. The rules have changed rather since then.[/I] 11– have you ever felt nagged by friends or family into taking meds or doing blood sugars and if so how did it affect you? [I]Of course. As a child, this happens all the time. And as an adult when they think you are low, partners have a habit of asking you to check too.[/I] [/QUOTE]
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