Sounds like an uninspiring visit. Yes there is criteria for everything these days, but she is totally incorrect regarding self funding and ineligibility for the Libre. There is actually a section for self funders in the criteria. I self funded and got it. If she is wrong about this I am sure her knowledge on other things may not be all it should. You really need to see a consultant. Something all Type 1s should have access to. Don’t lose heart. Regroup and take it further.
I've encountered a few people like that in my time, it puts you off going to the clinic or asking for help if you have to be on the defensive from the start. There was one diabetes nurse I really disliked but fortunately she left
I think, because of the cost, some nurses and/or consultants try to put people off pumps (and probably libres but I don't have experience with that), I have a relative with type 1 and they were told by their consultant that pumps are "not all they're cracked up to be" and "I wouldn't want one" rather than explaining the pros and cons
Thank you for replying. It just sounded like she was trying to put me off everything, I went to that appointment in good spirits and she just kept cutting me off like I was wrong for asking & treating me like I hadn’t got a clue about type 1?! I only see the diabetes nurses at clinic, is the consultant hospital based? Because they’ve never told me about seeing anyone other than them?
Just hate when you feel like you’re being told off instead of encouraged. Oh and not to mention how she was answering her mobile phone at the start of my appointment.
Hi @Llama_red Are you in the UK? If so you have every right to send information like this by way of a complaint to PALS. The system certainly was good as recently as 8 years ago, and I suspect still is. Don't put up with such unhelpful treatment! Good luckHi, I’m a type 1 & was diagnosed 20 years ago when I was 15. I’ve had ups and downs with it but more so since having my kids (aged 8 & 5). Anyway, saw the diabetes clinic today for a check up/general visit, and my god, this particular nurse is such a ****!!! Like she knows how to dampen down your positivity!
Admittedly I haven’t been perfect but for the last 2/3 months I’ve been putting so much effort into looking after myself.
But instead she tells me that when I wake up with a low reading that I should be treating it as a hypo despite me knowing that my sugars naturally rise in the morning anyway (without eating or drinking anything). When I told her I know what a hypo feels like & what to do she then said ‘well what if you’re driving and that happens and you don’t bother to treat a hypo?’. Errrr well I certainly wouldn’t be driving if my sugar levels were low or dropping would I??! And my hypos in the morning are different to one id say get in the afternoon or evening. As I said, if my levels are on the low side in the morning they start rising whether I take glucose or not (usually if I take glucose I end up with a massively high reading?!).
I currently take Levemir and Novo Rapid and I expressed an interest in possibly switching to a pump (after doing loads of research I feel this is something that I would benefit from) to which she then proceeded to tell me ‘how you have to meet a strict criteria & be eligible for funding & that the pumps they have are old fashioned etc etc’ oh and how they aren’t a ‘miracle’ that everyone thinks they are?? And ‘don’t think it controls your diabetes for you, you still have to finger prick and enter readings into a pump’ (like I don’t know this).
I currently self fund the Libre and even then she said ‘well coz you self fund you automatically don’t qualify for NHS funding’, then went on to tell me how if there’s no improvement in my HBa1c then if I ever did get funding for it then it’d be taken away???
Like seriously, I feel deflated after putting so much effort into my care the last few months. This condition is so bloody tiresome & it p*sses me off how some blunt rude nurse can just make me feel like this.
Just hate when you feel like you’re being told off instead of encouraged. Oh and not to mention how she was answering her mobile phone at the start of my appointment.
Sorry if this doesn’t make sense. I just had a goal this year to try and get on a pump and be a ‘good diabetic’ but just feel like I’ve been knocked down.
(slight edit by mod for language)
Hi, I’m a type 1 & was diagnosed 20 years ago when I was 15. I’ve had ups and downs with it but more so since having my kids (aged 8 & 5). Anyway, saw the diabetes clinic today for a check up/general visit, .......
(slight edit by mod for language)
I completely understand, although I'm very fortunate to have a pump, I feel like I don't get the support I need to use it to it's potential and I feel like I lack so much information. When I ask about doing courses or for information on different things (like libres) I just get brushed off. I have just asked to be referred to a different hospital.That’s exactly it. All I wanted was to discuss a way forward with my treatment and I just feel like there’s no hope. I see and hear of so many people using all this amazing technology to control their condition and I’m stuck in the dark ages. All I want is for better control and to feel ‘well’. I suppose I was hoping for some progress towards my goal of getting a pump eventually but I felt like I was nothing more than an inconvenience
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