You can do all this , you have good help with district nurses still I hope? Things will settle down as you have some time to get everything straight and organized , and yes lots of support here , you can do this.
We all rebel, we all want that which we cannot have. It is human nature. Even after 12 years I still rebel. But then I have always been the renegade. So now here I am telling people to stay on on the path - for us, there is no other place to go. Adapt to the new regime, what more can we do? We are here to assist.Hi,
It's 3.35am ( here in the UK) and felt I had to post on the forum as I need a gentle yet positive shove back onto the "path" I was walking.
Let me explain, I'm PEG FED and was diagnosed with Type 2 Diabetes on 5th April this year. I was in deep, deep shock especially from my treatment at the hospital by a horrid Diabetes Specialist nurse ( my GP sent me back the next day as she was fuming at my treatment - I was basically sent home with a Contour Meter, Novomix 30 pen, Glicizade and loads of leaflets and handout sheets). My BG was 30.5!!
My doctor arranged for the district nurses to visit me every day so that I grew confident enough to do my BG & Insulin jabs myself. The very first nurse who visited me at home was shocked at what they sent me home with as no dosage was prescribed on the sheet and she had to go to an Out Of Hours GP who prescribed 15 units to start with. The district nurses were my guardian angels, fantastic and treated me with dignity and encouraged me every step of the way.
So I had to do my BG 3 times a day (pre meals) and they upped my Insulin to 36 units before my nightly PEG FEED (2 bags of Nutrison Advanced nightly- reduced to 1 1/2 bags when I was diagnosed with Diabetes, now on 1 bag nightly - 1000 mls ). My insulin was reduced to 32 units nightly and as the Glicizide was bringing my BG to under 4 and giving me mild hypos, I'm on 40mgs ( half a tablet).
My diet is extremely limited as I have LYMPHANGIECTASIA and my body can't absorb nutrients. Now they have found something wrong with my heart and have to see a heart specialist (again). All this whilst going through the menopause (I'm 51).
Because I'm so very tired, lately I've not been testing my BG, not every day, just here and there, and not taking my Insulin or Glicizade. Some nights I don't even take my Peg Feed. I know it's wrong and I'm storing up trouble for myself, but it's like I got so much wrong going on with my body that I'm kind of rebelling against everything. I used to be so healthy and very fit. I brought up two boys who are doing extremely well with their life's , single handily, and come from a close knit family.
Even as I write this I know I'm doing wrong, I have a routine to do my Peg Feed & Insulin regime, so why am I rebelling? I say to myself "Come on Fran, this is not on. Tomorrow you must shrug off this foolishness and get with the programme"! And I do, but the day after that I don't. This has been going on for 2 weeks with the Diabetes, and a week with my Peg Feed. Has anyone had this happen to them? Please, I need a friendly shove in the right direction and some positive encouragement. I know this is the right place to come to and ask for help as the people on here are just wonderful and know what they are talking about. I look forward to your replies, and thank you for taking the time to read this.
Hi Francesca
Sorry to hear you have had such a bad time of it health wise and that you are struggling with your treatment at the moment.
First of all know that you are not alone, most of us have been through similar phases of denial and rebellion.
The mental aspect of accepting and dealing with having a long term condition such as diabetes is a big part of controlling this curse. And it sounds like you have had more on your plate than just diabetes.
I am no expert but for what they are worth here are my thoughts
You sound like an intelligent and capable person with reasons to be thankful for your life, not least your two sons.
Try to concentrate on the positive and look past the negative. Rely on your good district nurses and try to forget the bad treatment you have received from the diabetes nurse. Dealing with your diabetes is up to you not the diabetes nurse.
Do not be too hard on yourself. This is not easy mentally as I said and many of us have fallen off the saddle along the way. The important thing is to get back on.
Do what you need to do to control it today don't put it off until tomorrow. Tomorrow is a big trap as there is always one more of them just a day away.
Take baby step, take pride from any small victories and move on to the next step.
Keep a record of your metering and medicine taking and challenge yourself to keep doing it.
Last but not least, speak to people about how you feel and how you are coping. This forum is great for this.
All the best.
Pavlos
Sent from my SM-G935F using Diabetes.co.uk Forum mobile app
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