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Refused DLA for 13 year Old.
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<blockquote data-quote="smaynard" data-source="post: 334957" data-attributes="member: 26686"><p>Sadly the DLA award process is extremely flawed and they grossly underestimate the level of care required and the complexities of managing type 1 diabetes in children.</p><p></p><p>My daughter turned 7 last week and I have been battling with DLA for 9 months to get them to understand the level of care she both needs and gets.</p><p></p><p>The DLA's standpoint was that "if blood sugars are checked before my daughter leaves the home then it is not age appropriate for her to need support outside the home for her condition" and "if blood sugars are checked before the house hold shuts down for the night then it was not necessary for her to need repeated or prolonged attention during the night".</p><p></p><p>Clearly any one who has experience of controlling type 1 diabetes in a child will know that to meet NICE guidelines of an HbA1c of less than 7.5% without frequent disabling hypoglycaemia both of these statements are grossly misguided.</p><p></p><p>Fortunately, I heard last week that they had reconsidered.....it took months and providing a huge amount of information but I did get there in the end so it was worth persevering.</p><p></p><p>My recommendation would be to phone and ask directly for the exact grounds that your claim has been rejected....that gives you something very quantifiable to respond to. Then write asking them to reconsider, I closed my letter with the following:</p><p></p><p>In light of all of these facts, I consider your assertions that it is not age appropriate for a six year old to require additional support outside the home or require repeated or prolonged attention during the night appear completely unfounded. If this is still your standpoint I request a detailed explanation of how you reached these conclusions so that I may formalise my appeal.</p><p></p><p>It is very important that you ask them to reconsider immediately (the timelines for appealing and asking for reconsideration are very short.....even though it takes them weeks and weeks to respond!)</p><p></p><p>Good luck!</p></blockquote><p></p>
[QUOTE="smaynard, post: 334957, member: 26686"] Sadly the DLA award process is extremely flawed and they grossly underestimate the level of care required and the complexities of managing type 1 diabetes in children. My daughter turned 7 last week and I have been battling with DLA for 9 months to get them to understand the level of care she both needs and gets. The DLA's standpoint was that "if blood sugars are checked before my daughter leaves the home then it is not age appropriate for her to need support outside the home for her condition" and "if blood sugars are checked before the house hold shuts down for the night then it was not necessary for her to need repeated or prolonged attention during the night". Clearly any one who has experience of controlling type 1 diabetes in a child will know that to meet NICE guidelines of an HbA1c of less than 7.5% without frequent disabling hypoglycaemia both of these statements are grossly misguided. Fortunately, I heard last week that they had reconsidered.....it took months and providing a huge amount of information but I did get there in the end so it was worth persevering. My recommendation would be to phone and ask directly for the exact grounds that your claim has been rejected....that gives you something very quantifiable to respond to. Then write asking them to reconsider, I closed my letter with the following: In light of all of these facts, I consider your assertions that it is not age appropriate for a six year old to require additional support outside the home or require repeated or prolonged attention during the night appear completely unfounded. If this is still your standpoint I request a detailed explanation of how you reached these conclusions so that I may formalise my appeal. It is very important that you ask them to reconsider immediately (the timelines for appealing and asking for reconsideration are very short.....even though it takes them weeks and weeks to respond!) Good luck! [/QUOTE]
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