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Refused DLA for 13 year Old.
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<blockquote data-quote="smaynard" data-source="post: 337111" data-attributes="member: 26686"><p>You articulate very clearly why children SHOULD be entitled to DLA.....because without significant support children's Hba1c results and overall control is typically terrible, this is what the allowance is trying to prevent....by giving support to children who are not able to effectively manage their condition themselves.... to facilitate the additional care they need that will hopefully improve their control, quality of life and their risk of long term complications later in life......</p><p></p><p>I am flabbergasted that there are so many type 1's out there that clearly articulate their poor childhood control but don't think families should be given any support to prevent this being the case for others. It just seems SO ill considered.</p><p></p><p>My daughter's HbA1c results are not terrible but there is no accident to that. I didn't wake up the day after her diagnosis knowing how to artificially replicate the actions of a working pancreas....I've dedicated hours upon hours to educating myself how to do this and hours upon hours on an ongoing basis implementing that knowledge in order to maintain consistent stability. </p><p>As for the comments that teenagers should be able to manage the condition themselves....My daughter was diagnosed aged 3 and therefore the years that it took me to educate myself how to manage her condition were when she was very young and I am working hard to pass that knowledge on to her....I therefore hope she will be able to manage her condition with some independence in her teenage years. But what about the parents whose children are diagnosed much later, or indeed as teenagers....do we expect a 13 year old to be able to educate themselves and manage their conditions immediately upon diagnosis. I suggest the answer to that is clear, of course not!</p></blockquote><p></p>
[QUOTE="smaynard, post: 337111, member: 26686"] You articulate very clearly why children SHOULD be entitled to DLA.....because without significant support children's Hba1c results and overall control is typically terrible, this is what the allowance is trying to prevent....by giving support to children who are not able to effectively manage their condition themselves.... to facilitate the additional care they need that will hopefully improve their control, quality of life and their risk of long term complications later in life...... I am flabbergasted that there are so many type 1's out there that clearly articulate their poor childhood control but don't think families should be given any support to prevent this being the case for others. It just seems SO ill considered. My daughter's HbA1c results are not terrible but there is no accident to that. I didn't wake up the day after her diagnosis knowing how to artificially replicate the actions of a working pancreas....I've dedicated hours upon hours to educating myself how to do this and hours upon hours on an ongoing basis implementing that knowledge in order to maintain consistent stability. As for the comments that teenagers should be able to manage the condition themselves....My daughter was diagnosed aged 3 and therefore the years that it took me to educate myself how to manage her condition were when she was very young and I am working hard to pass that knowledge on to her....I therefore hope she will be able to manage her condition with some independence in her teenage years. But what about the parents whose children are diagnosed much later, or indeed as teenagers....do we expect a 13 year old to be able to educate themselves and manage their conditions immediately upon diagnosis. I suggest the answer to that is clear, of course not! [/QUOTE]
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