PerfectStorm
Well-Known Member
- Messages
- 207
- Type of diabetes
- Type 2
- Treatment type
- Tablets (oral)
I was just wondering anyone with good T2 control has been removed from the diabetic register?
I was diagnosed in 2014 - I had gestational diabetes and then after my son was born I had pre-diabetic levels which rose to diabetic levels (53) a few months after my son was born. I panicked at the diagnosis and did everything I could to get levels under control. They dropped to 38 and have generally stayed at 40/41 since then. I have had a couple around 45. This is usually when I have let things slip in terms of diet.
I have seen diabetic nurses and GP over the years and they have all said I am diabetic but know I am generally pretty well controlled (although could obviously be better when they slip to 44/45). I've been repeatedly talked to about taking statins etc because of my diabetes.
I received a call a couple of weeks ago from what I think may be a new (to the Practice) diabetic nurse. She spoke about my cholesterol levels but also mentioned she was going to speak to GP about my diabetic diagnosis saying I have only had one HBA1c in diabetic level so shouldn't be diagnosed. She phoned me back yesterday and said the GP has removed my diabetic diagnosis/removed from the register.
She says NICE guidance says diagnosis should only be made with two results in diabetic level. This may be a change as the current guidance is dated September 2019. I've explained the only reason I don't have diabetic levels routinely is because I restrict my diet so much to achieve that - if I was to eat pasta/rice/bread etc my levels would be well into diabetic ranges.
It seems farcical and gives a false picture, to remove a label of diabetes when it is blatantly obvious that I have it as I cannot eat 'normally' without having high levels. I haven't been testing loads lately but my fasting level this morning was 7.1.
The nurse says I will still have annual HBA1c because I had gestational diabetes and because my cholesterol levels are 6, they will monitor these as well (presumably for now). I won't get the eye check and presumably won't get the foot check and full annual blood/urine tests done.
Although removing a 'label' may seem a good thing, it doesn't really bother me having this label as it is accurate and ensures I receive good monitoring. That monitoring helps to keep me in check. Also, the eye check is really important as the thought of losing eye sight is terrifying! I'm a bit concerned I won't be receiving these checks anymore.
The GP is going to call me tomorrow to discuss this as it was apparently his decision to remove the diagnosis from my records (despite me being pretty sure he was the one to confirm the diagnosis in the first place back in 2014)
Just wondered what your experiences are - if you have generally normal levels has your diagnosis been removed? Do you still receive full annual testing/eye check/foot check etc?
I was diagnosed in 2014 - I had gestational diabetes and then after my son was born I had pre-diabetic levels which rose to diabetic levels (53) a few months after my son was born. I panicked at the diagnosis and did everything I could to get levels under control. They dropped to 38 and have generally stayed at 40/41 since then. I have had a couple around 45. This is usually when I have let things slip in terms of diet.
I have seen diabetic nurses and GP over the years and they have all said I am diabetic but know I am generally pretty well controlled (although could obviously be better when they slip to 44/45). I've been repeatedly talked to about taking statins etc because of my diabetes.
I received a call a couple of weeks ago from what I think may be a new (to the Practice) diabetic nurse. She spoke about my cholesterol levels but also mentioned she was going to speak to GP about my diabetic diagnosis saying I have only had one HBA1c in diabetic level so shouldn't be diagnosed. She phoned me back yesterday and said the GP has removed my diabetic diagnosis/removed from the register.
She says NICE guidance says diagnosis should only be made with two results in diabetic level. This may be a change as the current guidance is dated September 2019. I've explained the only reason I don't have diabetic levels routinely is because I restrict my diet so much to achieve that - if I was to eat pasta/rice/bread etc my levels would be well into diabetic ranges.
It seems farcical and gives a false picture, to remove a label of diabetes when it is blatantly obvious that I have it as I cannot eat 'normally' without having high levels. I haven't been testing loads lately but my fasting level this morning was 7.1.
The nurse says I will still have annual HBA1c because I had gestational diabetes and because my cholesterol levels are 6, they will monitor these as well (presumably for now). I won't get the eye check and presumably won't get the foot check and full annual blood/urine tests done.
Although removing a 'label' may seem a good thing, it doesn't really bother me having this label as it is accurate and ensures I receive good monitoring. That monitoring helps to keep me in check. Also, the eye check is really important as the thought of losing eye sight is terrifying! I'm a bit concerned I won't be receiving these checks anymore.
The GP is going to call me tomorrow to discuss this as it was apparently his decision to remove the diagnosis from my records (despite me being pretty sure he was the one to confirm the diagnosis in the first place back in 2014)
Just wondered what your experiences are - if you have generally normal levels has your diagnosis been removed? Do you still receive full annual testing/eye check/foot check etc?