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Retinopathy Advice/Experiences
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<blockquote data-quote="NicoleC1971" data-source="post: 2340976" data-attributes="member: 365308"><p>Hi</p><p></p><p>Glad you got to your screening appointment and are now in the system for regular review. Retinopathy can progress slowly bearing in mind that they picked up changes across 5 years to prompt this referral. It is likely that on the next appointment and with continued tight control your eyes will remain stable with 'background changes' that are not unusual for someone who's had type 1 for 20 years plus including a turbulent period (Ken Silvas the Australian pathologist mentioned this in the context of the damage done in different age group from having higher blood sugars).</p><p>It can be a shock to see that there were consequences to a period of unstable blood sugars. It was to me anyway as I thought that I was immortal in my 20s having been diabetic since age 10.</p><p>Like you I had some roller coaster blood sugars whilst a young adult but what really accelerated my retinopathy was a pregnancy in that whilst pregnancy I was well controlled and then all hell broke loose again once I'd had my little girl and found it difficult to focus on my own health. My feeling is and this is hard to confirm, that it was the up and down nature of my control plus growth hormones involved in pregnancy that exacerbated the rapid proliferation of my leaky blood vessels that then lead to major bleeding. So it seems having stable blood sugars will help you prevent the damage and subsequent repair attempts that cause the problem.</p><p>As to your question now we have freestyle libre we can look at time in range and see if having a good consistent average is better than a very spikey profile which is information that the hba1c doesn't give us!</p><p>Can talk more about treatment I had 17 years ago (laser and then an op) but suspect you are nowhere near that yet and things have probably moved on anyway.</p></blockquote><p></p>
[QUOTE="NicoleC1971, post: 2340976, member: 365308"] Hi Glad you got to your screening appointment and are now in the system for regular review. Retinopathy can progress slowly bearing in mind that they picked up changes across 5 years to prompt this referral. It is likely that on the next appointment and with continued tight control your eyes will remain stable with 'background changes' that are not unusual for someone who's had type 1 for 20 years plus including a turbulent period (Ken Silvas the Australian pathologist mentioned this in the context of the damage done in different age group from having higher blood sugars). It can be a shock to see that there were consequences to a period of unstable blood sugars. It was to me anyway as I thought that I was immortal in my 20s having been diabetic since age 10. Like you I had some roller coaster blood sugars whilst a young adult but what really accelerated my retinopathy was a pregnancy in that whilst pregnancy I was well controlled and then all hell broke loose again once I'd had my little girl and found it difficult to focus on my own health. My feeling is and this is hard to confirm, that it was the up and down nature of my control plus growth hormones involved in pregnancy that exacerbated the rapid proliferation of my leaky blood vessels that then lead to major bleeding. So it seems having stable blood sugars will help you prevent the damage and subsequent repair attempts that cause the problem. As to your question now we have freestyle libre we can look at time in range and see if having a good consistent average is better than a very spikey profile which is information that the hba1c doesn't give us! Can talk more about treatment I had 17 years ago (laser and then an op) but suspect you are nowhere near that yet and things have probably moved on anyway. [/QUOTE]
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