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Retinopathy/maculopathy - help!
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<blockquote data-quote="gwai84" data-source="post: 1524726" data-attributes="member: 407377"><p>Update - saw a different consultant privately on Tuesday. He was wonderful and explained the angiogram result in detail, so now I understand what's going on.</p><p></p><p>The angiogram showed that I had severe pre-proliferative disease, not proliferative - hence the 3 month call back I guess. It also showed that I have areas of macular ischaemia, which is what's causing the blind spots. Unfortunately there isn't much to be done about that other than tight sugar and blood pressure control, but given that my visual acuity is still 6/5 it's mild and may improve with time.</p><p></p><p>Unforutnately though when he looked at my eyes I have definite neovascularisation in the left eye which has progressed in the 6 weeks since the angiogram. So he brought me in yesterday (on the NHS) and did pan-retinal laser - <u>seriously </u>unpleasant, but I gritted my teeth and got through it!</p><p></p><p>He recommended sticking to tight control as in the long term it will be much better for me, and tightening again in the future will accelerate the disease again. Starting on an ACE inhibitor this week too.</p><p></p><p>His summary of the situation was that whilst my disease is aggressive, this is common with tightened control. It's sight threatening but very treatable - it's likely to be a stormy couple of years, and my vision may get worse before it improves, but he'd be surprised if I didn't keep normal visual function in the long-term.</p><p></p><p>Obviously this doesn't exactly qualify as "good" news and it's been a crazy few days, but I feel so much better now for knowing what's happening, and whilst there are no guarantees my prognosis isn't too bad.</p><p></p><p>Also glad I went privately - the laser treatment would have been delayed by two months...</p><p></p><p>I'm having a repeat angiogram in 2 weeks to assess the other eye in more detail before they decide whether that one needs lasering, with follow up in 6 weeks.</p><p></p><p>Thanks for all your messages and hopefully things will go a little more smoothly from here!</p></blockquote><p></p>
[QUOTE="gwai84, post: 1524726, member: 407377"] Update - saw a different consultant privately on Tuesday. He was wonderful and explained the angiogram result in detail, so now I understand what's going on. The angiogram showed that I had severe pre-proliferative disease, not proliferative - hence the 3 month call back I guess. It also showed that I have areas of macular ischaemia, which is what's causing the blind spots. Unfortunately there isn't much to be done about that other than tight sugar and blood pressure control, but given that my visual acuity is still 6/5 it's mild and may improve with time. Unforutnately though when he looked at my eyes I have definite neovascularisation in the left eye which has progressed in the 6 weeks since the angiogram. So he brought me in yesterday (on the NHS) and did pan-retinal laser - [U]seriously [/U]unpleasant, but I gritted my teeth and got through it! He recommended sticking to tight control as in the long term it will be much better for me, and tightening again in the future will accelerate the disease again. Starting on an ACE inhibitor this week too. His summary of the situation was that whilst my disease is aggressive, this is common with tightened control. It's sight threatening but very treatable - it's likely to be a stormy couple of years, and my vision may get worse before it improves, but he'd be surprised if I didn't keep normal visual function in the long-term. Obviously this doesn't exactly qualify as "good" news and it's been a crazy few days, but I feel so much better now for knowing what's happening, and whilst there are no guarantees my prognosis isn't too bad. Also glad I went privately - the laser treatment would have been delayed by two months... I'm having a repeat angiogram in 2 weeks to assess the other eye in more detail before they decide whether that one needs lasering, with follow up in 6 weeks. Thanks for all your messages and hopefully things will go a little more smoothly from here! [/QUOTE]
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