Hi there, I'm new and not quite sure how/where to post properly as of yet
Hey Conor, I have background retinopathy and I've only been diabetic for 5 years (badly controlled for a long time, getting there) but lady I work with is 42 - she has had diabetes since she was 4. She has had a few spells like yourself through her teens but never anything crazy and she was diagnosed with BG retinopathy in her early 30's, she seems to think we all get it at some point? And no as far as I know of its not reversible but would like to know more about it myself as google isn't giving me much lol. Will ask at my next clinic app.Great! I don't have permission to post threw the app. So I'm haveing to go threw my email confirmation to post. Is there anything I need to do to get permission to post directly threw the app?
Great! I don't have permission to post threw the app. So I'm haveing to go threw my email confirmation to post. Is there anything I need to do to get permission to post directly threw the app?
@ConorD29 Youve started a poll at the top of this thread but there is no question. Was this a mistake? I can amend it for you.
Tagging @himtoo and @noblehead as they have good info on this subject.
Hi thanks for the reply, I hope your keeping well well? It's completely new to me I've never had any sort of complications until now unfortunately, and it was a kick up the backside I think I needed as I got a bit lazy with my diabetes recently because of a bizy life.Hey Conor, I have background retinopathy and I've only been diabetic for 5 years (badly controlled for a long time, getting there) but lady I work with is 42 - she has had diabetes since she was 4. She has had a few spells like yourself through her teens but never anything crazy and she was diagnosed with BG retinopathy in her early 30's, she seems to think we all get it at some point? And no as far as I know of its not reversible but would like to know more about it myself as google isn't giving me much lol. Will ask at my next clinic app.
Hi thanks for reply, what is proliferative stage? And what steps are your doctors taking at this point to correct it? I'm trying to gather as much information so I know every step and stage there is to try and avoid getting any worse. How long have you been a diabetic? And are you T1?Hi @ConorD29
Some members have said they've managed to reverse the condition, unfortunately my retinopathy went on to the proliferative stage.
If you have a read of the following it gives some excellent advice & information on diabetic retinopathy:
http://www.diabeticretinopathy.org.uk/back_diabetic_retinopathy.html
Best wishes.
I'll try that now and I'll let you know how it goes azure thanksYou could try signing out of the app then re-opening it. If you're still having problems, do let me know. The app does have glitches sometimes so it could well just be that.
You may find it easier to use the website to post rather than the app - at least for now
Hi thanks for reply, what is proliferative stage? And what steps are your doctors taking at this point to correct it? I'm trying to gather as much information so I know every step and stage there is to try and avoid getting any worse. How long have you been a diabetic? And are you T1?
Sorry for the late reply, a busy weekend.
A explanation of Proliferative Retinopathy:
http://www.diabeticretinopathy.org.uk/proliferative.html
Do navigate around the above website, it really does have some useful info and advice.
I've been problem-free for the last 12 years after treatment, I still attend the Ophthalmology Clinic for regular check-ups.
I have type 1 and have lived with the condition for 35 years, try not to stress about the condition @ConorD29 and heed the advice on keeping bg, bp and cholesterol levels in check. Good luck.
Sorry for the late reply, a busy weekend.
A explanation of Proliferative Retinopathy:
http://www.diabeticretinopathy.org.uk/proliferative.html
Do navigate around the above website, it really does have some useful info and advice.
I've been problem-free for the last 12 years after treatment, I still attend the Ophthalmology Clinic for regular check-ups.
I have type 1 and have lived with the condition for 35 years, try not to stress about the condition @ConorD29 and heed the advice on keeping bg, bp and cholesterol levels in check. Good luck.
Sorry for the late reply, a busy weekend.
A explanation of Proliferative Retinopathy:
http://www.diabeticretinopathy.org.uk/proliferative.html
Do navigate around the above website, it really does have some useful info and advice.
I've been problem-free for the last 12 years after treatment, I still attend the Ophthalmology Clinic for regular check-ups.
I have type 1 and have lived with the condition for 35 years, try not to stress about the condition @ConorD29 and heed the advice on keeping bg, bp and cholesterol levels in check. Good luck.
HiHi have you been diagnosed with background? I have had this a few times on the scans but when actually seen by a dr (as opposed to a dr or technician reading a scan) they've given all sorts of reasons as to why this was not accurate. I am very grateful after 34 years that this is the case but went through a lot of stress when this happened through not knowing what this meant and being handed literature produced by the royal national societyfor the blind!
My advice if you have just received a letter following a scan saying this is the case is to ensure you get them to book you an appointment with an opthomologist to investigate further (this should be done anyway but may take some time). It never hurts to tighten control but be careful if making very quick changes as sudden large drops in hba1c can worsen retinopathy so discuss it with your consultant.
Good luck and wishing you all the best with this
thanks for the reply, the letter I received didn't give too much detail about anything it just said I've got retinopathy with only small changes to blood vessels at the back of my eyes. The letter didn't say which eye or both eye and that treatment wasn't need at this stage to come back in 12 months.Hi have you been diagnosed with background? I have had this a few times on the scans but when actually seen by a dr (as opposed to a dr or technician reading a scan) they've given all sorts of reasons as to why this was not accurate. I am very grateful after 34 years that this is the case but went through a lot of stress when this happened through not knowing what this meant and being handed literature produced by the royal national societyfor the blind!
My advice if you have just received a letter following a scan saying this is the case is to ensure you get them to book you an appointment with an opthomologist to investigate further (this should be done anyway but may take some time). It never hurts to tighten control but be careful if making very quick changes as sudden large drops in hba1c can worsen retinopathy so discuss it with your consultant.
Good luck and wishing you all the best with this
Thanks for the reply, my blood pressure and everything else is all in good order thankfully.After 20 years of diabetes, nearly all people with type 1 have some level of retinopathy. Background retinopathy does not affect eyesight and does not need treatment. For a lot of people, the retinopathy never progresses beyond background. If any changes are spotted at screening that suggest sight-threatening retinopathy is developing the patient will be referred to ophthalmology for further tests. Screening aims to detect sight-threatening retinopathy before any sight-loss occurs as treatment is more successful if given at this stage.
The risk of progression of retinopathy is reduced by keeping good control of blood glucose, blood pressure and lipids. There is good information here http://www.diabeticretinopathy.org.uk/Information_for_patients.html
Can retinopathy be reversed with good control? What are other people's experiences of this?
Hi
thanks for the reply, the letter I received didn't give too much detail about anything it just said I've got retinopathy with only small changes to blood vessels at the back of my eyes. The letter didn't say which eye or both eye and that treatment wasn't need at this stage to come back in 12 months.
I hope your keeping well and I shall fight this tooth and nail to prevent it getting any worse.
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