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Retinopathy?

ZtheKokiri

Newbie
Messages
2
Type of diabetes
Type 2
Hello

My name is Zach. I am in my mid 20's. I was diagnosed with type 2 diabetes in January of this year. I was suffering the side effects of DKA for months before I ended up in the ICU. Living in the USA I was very hesitant to go to a doctor because here in the states if a doctor glances in your general direction you owe somebody 800 dollars it seems. I stayed in the ICU for one night, and a general hospital room for one night (15,000 USD dollars in debt over that so that's amazing).

My doctor recommended an annual eye exam once a year but really didn't give much detail other than that. I've not done an eye exam yet but I have one scheduled in a week. I scheduled it because I curiously looked up the reason for an annual eye exam and from what I read, even if you manage your blood sugar perfectly you can just randomly go blind.

To let you know how much this worries me, I'd rather be a quadruple amputee than to go blind. I've been stressing over this so much I can barely sleep and I have this horrible feeling when I do go in for the exam I'll hear the worst.

I take very good care of my blood sugar. I did this by taking small but effective steps in avoiding high blood sugar. Fried chicken became baked chicken, pasta and pizza were cut from my diet entirely, soda because diet caffeine free soda which eventually just became nothing but coffee and water, hours infront of a computer became frequent walks around my neighborhood (granted I work infront of a computer for 8 hours a day, I use my breaks/lunch period to walk around) cigarettes became a vaporizer which became "an expensive and stupid habit" which was dropped I feel like I'm doing good, basically. My blood sugar has been perfectly under control since I was diagnosed and since I was diagnosed I've lost 30 pounds.

Knowing all this, how worried should I be about going blind? My ultimate goal is to at least lose enough weight to reverse the diabetes but I am trying to avoid the major complications for as long as possible. I'd like to hear from other type 2's, how did your eye exam go? What do you personally think the odds of eye complications are? Is it something inevitable and we can only hope to hold it off as long as possible or can it be avoided entirely with good management?
 
HiZtheKokri, i would say that it was very unlikely that you would go blind suddenly ,especially as you are now following a good regime,from experience,i myself have reversed and am now free from the painful effects of neuropathy in my feet, so keep posting and asking q's ,clive
 
You need to stop worrying as.by the sounds of it you have everything under control. I most probably had diabetes for 6-7 years before being.diagnosed and I have it in remission now. I have just had my eyes checked and they are fine. I know it is hard but just try not to stress as Im sure it will go well.
 
Thanks, your replies put me as ease a bit. I guess I'm just the worrying type... on top of the fear of these side effects at some point getting to me there is the idea that treating them is so costly. I noticed this website is UK based so I presume so are the majority of it's members. It's just frightening to me that at some point my decision might have to be "go blind or be another 15k in debt" but such is the way of American health "care".

@4ratbags, you're in remission then? That's my goal... I really messed my life up, wish I cared a bit sooner. You don't need insulin at all then, for all intents and purposes you could consider yourself a non-diabetic?
 
I'm so sorry that you have worries about the cost of treatments in addition to all the other worries that people with diabetes have. It sounds like you are doing the right things to minimise the risk of sight-threatening retinopathy - controlling blood sugar, losing weight and exercising more. Basically, you need to keep your HbA1c and blood pressure as near to non-diabetic levels as you can and have an eye examination every year.

You have probably read this already but in case you haven't, there is information about affording health care for diabetics in the USA.
http://www.niddk.nih.gov/health-inf...cial-help-diabetes-care/Pages/index.aspx#sec6
 
Look after yourself REASONABLY well, but I wouldn't worry TOO much; you're newly diagnosed, and the condition generally takes about 20 years to manifest if you look after yourself. Long before then, they'll have working artificial pancreases readily available, and possibly replacement islet cells from stem cell research and nanotech.

Also, it looks like they're already about to solve the eye problem:

http://www.telegraph.co.uk/news/sci...ess-could-be-reversed-with-eye-injection.html
You're right that diabetic retinopathy isn't detectable during the first few years of diabetes, but the figure you give is much too high. It is well-known that almost no-one gets sight-threatening retinopathy within 5 years of developing diabetes but there is an increasing prevalence thereafter. Also, bear in mind that Type 2s are often only diagnosed several years after they develop diabetes so around one fifth of them already have background retinopathy at the time of diagnosis.

You're also right that treatment is improving all the time. However, the OP is based in the USA and does not get NHS treatment "free at the point of delivery" as we do in the UK. Even if excellent treatments are available, he may not be able to afford them.

This is definitely a case of "prevention is better than cure" so it is wise to minimize the risks of sight problems by maintaining good control of blood glucose, blood pressure and blood lipids. Even if treatments are affordable, they each carry their own risks, e.g. infection after eye injections, so it is wise to do whatever is possible to reduce the chance of needing them.

I agree that the OP shouldn't worry too much (he shouldn't let it interfere with enjoying life) but he needs to worry just enough to put the energy into maintaining good diabetic control if he wants to minimize the risk of sight problems.
 
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