Saw my doctor last night

Robinredbreast · Jun 26, 2012

and I am going to have a blood test for Coeliac Disease. I said that someone had similar symptoms to mine and had I been tested for it, which I hadn't. I have another appointment with hospital DSN on Wednesday morning so she can download my information on the ACCU-CHEK, she also asked me to test my BS during the night, last night and then tonight. Whilst I am at the hospital I will go and have the Coeliac blood test. I told my dr about me still losing weight ( I have been for months) but I am not a big person anyway and I'm all for a women to lose a bit of weight ( who doesn't :?: ) but I WANT to do it myself and not because of a possible underlying medication condition. The weight loss over the past 3 weeks is, 57.7 kilos, 56.4 and then on Saturday 56.0 so not dramatic, but dr asked me to continue weighing myself once a week and to write it down. I also get a lot of nausea, mild at times and also servere, so he has prescribed Domperidome tablets, X 3 30 minutes before meals. I then go back and see him after my July 6 Diabetes appointment. Has anyone used Domperidone or anything like it? Thanks :thumbup:

IanD · Jun 26, 2012

So sar as I know I am not coeliac but when I talked to the DUK Careline about low carb, she suggested I was so much better because I was wheat intolerant - nothing to do with carbs ... She did admit she wasn't diabetic, nor was she a health professional.

A LCHF is substantially wheat free, so should be helpful to you whether or not.

Robinredbreast · Jun 26, 2012

IanD said:
So sar as I know I am not coeliac but when I talked to the DUK Careline about low carb, she suggested I was so much better because I was wheat intolerant - nothing to do with carbs ... She did admit she wasn't diabetic, nor was she a health professional.

A LCHF is substantially wheat free, so should be helpful to you whether or not.

Thanks Ian, I will probably get the result next week hopefully. It's probably something else I have, dr did mention an ulcer a while back, but that was it andI don't know if I have an ulcer or not :? Apparantley some people do not have any ulcer symptoms.........unless it bleeds :shock:

jopar · Jun 26, 2012

If you are having a coeliac test, you need to carry on with eating the carbs that contain gluten as changing your diet to avoid gluten will effect the tests...

Two types a blood test, which sometimes gives a false negative, but the best method of diagnoses it a biopsy via an endoscope, where they take a look and a small sample to test..

Because what coleiac is a allergic reaction to gluten, which causes in the main hives and/or liaisons and can also other symptoms on the external body, but mainly it will be internal.. So if you avoid the gluten carbs before the tests, you are likely to have a false result.

But if you find that you are, then join the british coeliac society, as the diet sheet you will get from the NHS, to what is or isn't safe foods to eat is diabolical to say the least, the BCS have a regularly updated book given you all the safe foods, and listing foods that are safe and not manufactured near any source of gluten, as dependant on the severity of the reaction some suffers can become extremely ill via cross-contamination!

sooty26 · Jun 30, 2012

Hi
I have been experiencing really bad nausea since November time.ive lost about 4kgs so underweight now at just under 50kg.ive been tested for coeliac and everything under the sun!just eating a very plain diet as the nausea can come on so suddenly!i hav vomiting/diarrhoea too with it.i took domperidone bit was sick that nite so haven't taken ur since.cyclizine is good to stem the nausea but makes me so tired I can hardly move and really dizzy.im n novorapid and levemir,changed fron lantus about 2years ago when i was having a lit of hypos and tummy upset.tried metoclopramide but they r useless.i can't eat anythin with a lot of flavour so stick to cereal banana pear apple bread chicken and mashed potatoes.stewed apples and custard r really good at settling my tummy if I feel nauseous but hungry too.
The heartburn is horrible but I don't take anything for it.I hav ovarian cysts too which I def think contribute although docs say they can't.my tummy upsets get much worse around that time of the month so I think it's hormonal or something at the very least .
Best of luck to u.

hanadr · Jun 30, 2012

I've just m read "Life without Bread" by Christian B. Allen and Wolfgang Lutz.
In this book, there's quite a bit about the benefits of low carb diets and digestive problems.
I think wheat is something that causes problems to lots of people and other grains probably do too. Getting Grain free seems to help a lot.
My daughter's friend was diagnosed Coeliac last year, but is a fussy eater and her progress is variable.[she's using a lot of prescription foods] Another friend has been diagnosed more recently [there's a lot of it about ] and she's gone grain free and doing brilliantly.
I'm definitely not coeliac, but I'm trying to get grain free and hoping my sometimes sensitive digestive system will benefit along with my blood sugars.
Hana

Robinredbreast · Jun 30, 2012

hanadr said:
I've just m read "Life without Bread" by Christian B. Allen and Wolfgang Lutz.
In this book, there's quite a bit about the benefits of low carb diets and digestive problems.
I think wheat is something that causes problems to lots of people and other grains probably do too. Getting Grain free seems to help a lot.
My daughter's friend was diagnosed Coeliac last year, but is a fussy eater and her progress is variable.[she's using a lot of prescription foods] Another friend has been diagnosed more recently [there's a lot of it about ] and she's gone grain free and doing brilliantly.
I'm definitely not coeliac, but I'm trying to get grain free and hoping my sometimes sensitive digestive system will benefit along with my blood sugars.
Hana

Hello I have upper abdominal pain as well, it was bad all day yesterday, very painful, but still went to work and I just make screwed up faces or bite my lip. I dont tell my employers anything now, just keep my ailments to myself. If the test comes back negative or positive, I am to go back and see my doctor. My pain is about 3 inches above my belly button and its flipping hurting now but I am having a quiet restful night and hopefully the pain will ease off soon.

The trouble is I absolutely love seeds and grains Anyway I will wait and see, no point in worrying about it, as I'm sure worry and stress makes the condition much worse :thumbdown: Thanks Hana

Robinredbreast · Jun 30, 2012

sooty26 said:
Hi
I have been experiencing really bad nausea since November time.ive lost about 4kgs so underweight now at just under 50kg.ive been tested for coeliac and everything under the sun!just eating a very plain diet as the nausea can come on so suddenly!i hav vomiting/diarrhoea too with it.i took domperidone bit was sick that nite so haven't taken ur since.cyclizine is good to stem the nausea but makes me so tired I can hardly move and really dizzy.im n novorapid and levemir,changed fron lantus about 2years ago when i was having a lit of hypos and tummy upset.tried metoclopramide but they r useless.i can't eat anythin with a lot of flavour so stick to cereal banana pear apple bread chicken and mashed potatoes.stewed apples and custard r really good at settling my tummy if I feel nauseous but hungry too.
The heartburn is horrible but I don't take anything for it.I hav ovarian cysts too which I def think contribute although docs say they can't.my tummy upsets get much worse around that time of the month so I think it's hormonal or something at the very least .
Best of luck to u.

Hi there sooty ( great name btw) my nausea with the new tablets I'm taking has helped, because I haven't had my head over the toilet for a quite a few days now. One of my worse vomiting episodes was on Good friday and the whole of the Easter weekend was really bad. I also get ' bad tummies' :wink: , small headaches and I also take Novorapid and Levimir and Omperzaloe. I don't know what is going on with my stomach, I have also lost weight but only about 1/2 stone, about the same as you then in Kilos I think? and I am 56.0 kilos today, the same as last week, as I weigh myself every week now at work ( my dr asked me weigh myself once a week).

You are going through such a rough time, I really hope you start to feel a bit better soon and the best of luck to you too :thumbup: Take care and thanks sooty.

etmsreec · Jun 30, 2012

Hi Robinredbreast,
Coeliac and Diabetes are quite common together since they're both autoimmune conditions. Coeliac suffers lose weight because their guts aren't absorbing nutrients from the food that they are eating. There are finger-like protrusions in the gut called villi. When someone is an untreated coeliac the villi flatten out and can't absorb the nutrients. The only treatment for this is a lifelong gluten-free diet. Once gluten is excluded from the diet the villi recover.
A friend of mine is about 6'1 and of relatively light build. He went down to about 7 stone before being diagnosed. Once diagnosed, he didn't think he'd ever stop putting on weight!
Symptoms of untreated coeliac disease are easy to find on the web - tiredness, bloating, diarrhoea, loss of weight,dark foul-smelling stools. Diagnosis is via a duodenal biopsy which will confirm whether the villi are flattened out or not.
A different but related condition, Dermatitus Herpetiformis, causes lesions on the skin. These are like the blisters that you get if your shoes rub, only they can be anywhere on the skin. Treatment for DH is preferably a gluten-free diet but can also require drugs such as Dapsone or Sulfamethoxypyridazine. DH diagnosis tends to be via treatment by Dapsone and via a skin biopsy. Many DH patients also turn out to be coeliac.
Coeliac UK publish the gluten-free food list each year. They also offer advice on gluten-free diet. There are a substantial number of foods available on prescription for coeliac sufferers. There are also a lot of foods now available in supermarkets (the Genius bread products are great, especially the bloomer loaves!)

Steve

sooty26 · Jun 30, 2012

Robinredbreast said:
sooty26 said:

Hi
I have been experiencing really bad nausea since November time.ive lost about 4kgs so underweight now at just under 50kg.ive been tested for coeliac and everything under the sun!just eating a very plain diet as the nausea can come on so suddenly!i hav vomiting/diarrhoea too with it.i took domperidone bit was sick that nite so haven't taken ur since.cyclizine is good to stem the nausea but makes me so tired I can hardly move and really dizzy.im n novorapid and levemir,changed fron lantus about 2years ago when i was having a lit of hypos and tummy upset.tried metoclopramide but they r useless.i can't eat anythin with a lot of flavour so stick to cereal banana pear apple bread chicken and mashed potatoes.stewed apples and custard r really good at settling my tummy if I feel nauseous but hungry too.
The heartburn is horrible but I don't take anything for it.I hav ovarian cysts too which I def think contribute although docs say they can't.my tummy upsets get much worse around that time of the month so I think it's hormonal or something at the very least .
Best of luck to u.

Click to expand...

Hi there sooty ( great name btw) my nausea with the new tablets I'm taking has helped, because I haven't had my head over the toilet for a quite a few days now. One of my worse vomiting episodes was on Good friday and the whole of the Easter weekend was really bad. I also get ' bad tummies' :wink: , small headaches and I also take Novorapid and Levimir and Omperzaloe. I don't know what is going on with my stomach, I have also lost weight but only about 1/2 stone, about the same as you then in Kilos I think? and I am 56.0 kilos today, the same as last week, as I weigh myself every week now at work ( my dr asked me weigh myself once a week).

You are going through such a rough time, I really hope you start to feel a bit better soon and the best of luck to you too :thumbup: Take care and thanks sooty.

Robinredbreast · Jul 1, 2012

etmsreec said:
Hi Robinredbreast,
Coeliac and Diabetes are quite common together since they're both autoimmune conditions. Coeliac suffers lose weight because their guts aren't absorbing nutrients from the food that they are eating. There are finger-like protrusions in the gut called villi. When someone is an untreated coeliac the villi flatten out and can't absorb the nutrients. The only treatment for this is a lifelong gluten-free diet. Once gluten is excluded from the diet the villi recover.
A friend of mine is about 6'1 and of relatively light build. He went down to about 7 stone before being diagnosed. Once diagnosed, he didn't think he'd ever stop putting on weight!
Symptoms of untreated coeliac disease are easy to find on the web - tiredness, bloating, diarrhoea, loss of weight,dark foul-smelling stools. Diagnosis is via a duodenal biopsy which will confirm whether the villi are flattened out or not.
A different but related condition, Dermatitus Herpetiformis, causes lesions on the skin. These are like the blisters that you get if your shoes rub, only they can be anywhere on the skin. Treatment for DH is preferably a gluten-free diet but can also require drugs such as Dapsone or Sulfamethoxypyridazine. DH diagnosis tends to be via treatment by Dapsone and via a skin biopsy. Many DH patients also turn out to be coeliac.
Coeliac UK publish the gluten-free food list each year. They also offer advice on gluten-free diet. There are a substantial number of foods available on prescription for coeliac sufferers. There are also a lot of foods now available in supermarkets (the Genius bread products are great, especially the bloomer loaves!)

Steve

Thanks very much steve. My condition could be a number of gastric conditions so I suppose its a process of elimination until I find the culprit. I hope its not Coeliac disease, but then again it could be an ulcer :!: Sometimes medical conditions happen and we still cant find out what they are :? but its not Dermatitus Hrpetiformins, I have no lesions on my skin. Have a great weekend.

Robinredbreast · Jul 1, 2012

etmsreec said:
Hi Robinredbreast,
Coeliac and Diabetes are quite common together since they're both autoimmune conditions. Coeliac suffers lose weight because their guts aren't absorbing nutrients from the food that they are eating. There are finger-like protrusions in the gut called villi. When someone is an untreated coeliac the villi flatten out and can't absorb the nutrients. The only treatment for this is a lifelong gluten-free diet. Once gluten is excluded from the diet the villi recover.
A friend of mine is about 6'1 and of relatively light build. He went down to about 7 stone before being diagnosed. Once diagnosed, he didn't think he'd ever stop putting on weight!
Symptoms of untreated coeliac disease are easy to find on the web - tiredness, bloating, diarrhoea, loss of weight,dark foul-smelling stools. Diagnosis is via a duodenal biopsy which will confirm whether the villi are flattened out or not.
A different but related condition, Dermatitus Herpetiformis, causes lesions on the skin. These are like the blisters that you get if your shoes rub, only they can be anywhere on the skin. Treatment for DH is preferably a gluten-free diet but can also require drugs such as Dapsone or Sulfamethoxypyridazine. DH diagnosis tends to be via treatment by Dapsone and via a skin biopsy. Many DH patients also turn out to be coeliac.
Coeliac UK publish the gluten-free food list each year. They also offer advice on gluten-free diet. There are a substantial number of foods available on prescription for coeliac sufferers. There are also a lot of foods now available in supermarkets (the Genius bread products are great, especially the bloomer loaves!)

Steve

Thanks very much steve. My condition could be a number of gastric conditions so I suppose its a process of elimination until I find the culprit. I hope its not Coeliac disease, but then again it could be an ulcer :!: Sometimes medical conditions happen and we still cant find out what they are :? but its not Dermatitus Hrpetiformins, I have no lesions on my skin. Have a great weekend.

etmsreec · Jul 1, 2012

No problem. I should also have mentioned that the anti-gliadin test is also used for a quick diagnosis of coeliac. Anything other than zero indicates a problem with gluten. The biopsy gives the final statement, but this is why the GP will be doing the blood test first.
Crones is a similar (but unrelated) problem from what I can gather. It's not reacting to gluten but gives similar symptoms.

Saw my doctor last night

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Saw my doctor last night

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