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Type 1.5/LADA Diabetes
Secondary hyperparathyroidism and LADA
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<blockquote data-quote="teresahunter" data-source="post: 1993460" data-attributes="member: 497318"><p>I am still waiting to see an endocrinologist, unfortunately the first time I saw my consultant at the Gartnavel Diabetes Clinic, I just had came out of hospital for 14 days very ill and waiting for lots of doctors to try to diagnose me. My case was so rare that even the consultant I saw , told me I was insulin dependent but didn't put a number to it and the nurse told me that it may still be 2!, this was back in January. I was very ignorant about my situation and though, wrongly that the autoinmune disease and the diabetes were the most important part , when my secondary HPT equally if not more important. So when I had my opportunity to ask lots of questions, the doctor that I saw for my second appointment ever, sadly was not an endocrinologist and only a diabetes specialist G.P. So now I am in the process to go to my GP (my own) and ask him to refer me to an endocrinologist. When I was diagnosed wrongly that I was type 2, (as very often happens), immediately I was put on metformin and told to loose weight, (I am a doctors daughter and my father told me to do whatever the doctor tells me !), so with the help of the web site NHS Scotland, I started a calorie counted diet. and the first two weeks I lost as promised by the web site 4 pounds and then nothing. Then by the end of the forth week the surgery calls to tell me to go straight to hospital as I was very ill (my hba1c was 120), and as soon as got there they put me on 3 drips and they started to do all sorts of test until I got a scan and my pancreas was quite diminish and my liver was enlarged, I saw in the hospital 7 consultants coming and each one of them said contradicting statements., then after my scan finally they gave the two insulins and the levothyroxine plus Anxiolytics plus constipation tablets (senna) plus the vitamin D3 and finally sent home after 14 days., then in my first appointment with the nutritionist., I told her that one of the consultants had told me about doing the no-carbs diet., and she said that in my case I needed to do a well balanced and that diet was not advisable for me ., and then I realised that in fact I needed quite a lot of carbs to function, my energy would disappear very quickly even when I didn't use novorapid at all, I was having 3 and 4 units of Levemir and nothing else., so the doctor told me I was still producing insulin. Since being diagnosed 11 month ago I had only 1 hypo at the supermarket and this is thank to my husband that for the first few month , when I was in shocked at the news of my incurable deseases, (I am being a bit dramatic here), he would remain me constantly to measure and to eat even when I was not hungry. Just having a shower wipes 4 glucose points from my blood. But now I am very good and feel about 10 years younger, (until I pass by a mirror!), and after I left the hospital and started the meds I even lost a stone, but now is creeping up and so I think the doctor needs to fix the dose of levothyroxine. So next week I am going first to Gartnevel Hospital, to my clinic and see when I can see an endocrinologist and if I have to wait until November I'll talk to my GP and see what he can do. Regarding the Gluten intolerance, yes, I had the test, and I am no coeliac. As I live in Scotland the money side does not affect me., meds are free and as are the consultations and equipment. Again, thanks for your advice and experience, I appreciate it as all this is relatively new to me.</p></blockquote><p></p>
[QUOTE="teresahunter, post: 1993460, member: 497318"] I am still waiting to see an endocrinologist, unfortunately the first time I saw my consultant at the Gartnavel Diabetes Clinic, I just had came out of hospital for 14 days very ill and waiting for lots of doctors to try to diagnose me. My case was so rare that even the consultant I saw , told me I was insulin dependent but didn't put a number to it and the nurse told me that it may still be 2!, this was back in January. I was very ignorant about my situation and though, wrongly that the autoinmune disease and the diabetes were the most important part , when my secondary HPT equally if not more important. So when I had my opportunity to ask lots of questions, the doctor that I saw for my second appointment ever, sadly was not an endocrinologist and only a diabetes specialist G.P. So now I am in the process to go to my GP (my own) and ask him to refer me to an endocrinologist. When I was diagnosed wrongly that I was type 2, (as very often happens), immediately I was put on metformin and told to loose weight, (I am a doctors daughter and my father told me to do whatever the doctor tells me !), so with the help of the web site NHS Scotland, I started a calorie counted diet. and the first two weeks I lost as promised by the web site 4 pounds and then nothing. Then by the end of the forth week the surgery calls to tell me to go straight to hospital as I was very ill (my hba1c was 120), and as soon as got there they put me on 3 drips and they started to do all sorts of test until I got a scan and my pancreas was quite diminish and my liver was enlarged, I saw in the hospital 7 consultants coming and each one of them said contradicting statements., then after my scan finally they gave the two insulins and the levothyroxine plus Anxiolytics plus constipation tablets (senna) plus the vitamin D3 and finally sent home after 14 days., then in my first appointment with the nutritionist., I told her that one of the consultants had told me about doing the no-carbs diet., and she said that in my case I needed to do a well balanced and that diet was not advisable for me ., and then I realised that in fact I needed quite a lot of carbs to function, my energy would disappear very quickly even when I didn't use novorapid at all, I was having 3 and 4 units of Levemir and nothing else., so the doctor told me I was still producing insulin. Since being diagnosed 11 month ago I had only 1 hypo at the supermarket and this is thank to my husband that for the first few month , when I was in shocked at the news of my incurable deseases, (I am being a bit dramatic here), he would remain me constantly to measure and to eat even when I was not hungry. Just having a shower wipes 4 glucose points from my blood. But now I am very good and feel about 10 years younger, (until I pass by a mirror!), and after I left the hospital and started the meds I even lost a stone, but now is creeping up and so I think the doctor needs to fix the dose of levothyroxine. So next week I am going first to Gartnevel Hospital, to my clinic and see when I can see an endocrinologist and if I have to wait until November I'll talk to my GP and see what he can do. Regarding the Gluten intolerance, yes, I had the test, and I am no coeliac. As I live in Scotland the money side does not affect me., meds are free and as are the consultations and equipment. Again, thanks for your advice and experience, I appreciate it as all this is relatively new to me. [/QUOTE]
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