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sensitivity and supply issues
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<blockquote data-quote="endocrinegremlin" data-source="post: 2036463" data-attributes="member: 196900"><p>Hi! </p><p></p><p>I use the medtronic minimed 640 pump. </p><p></p><p>I am having real issues with the mio infusion sets and sets in general. My body rejects sites after two days. They become painful, inflamed and swollen. After removing the site that part of my abdomen hurts for several days. My 'DSN ' (she was a nutritionist and still wears a uniform saying that ) nurse is a problem with this. I have mentioned this for years. The animas vibe presented the same problem. My body just will not accept a site after two days. It may be due to my eczema but even the medtronic site says the sites are meant to last 2-3 days. She insists I must be inserting them wrong and hauls me in time after time to demonstrate me putting a site in. Funnily enough after years on the pump I know how to put one in. Set failures are common with this insert and I have reported it to medtronic who have acknowledged that. I have said to my nurse that the sites don't last. She refuses to extend my funding (NHS) so that I may get extra sets. </p><p></p><p></p><p>She seems fixated on the idea that I am doing something wrong. If a set works three days I pull it out to puss. I can't leave them that long but I don't have enough to change them every two days. I can't afford to go private. I tried at one point to use mdi a few days a month to balance it and got a rude reminder of why I had my pump. I could hardly leave my bed. </p><p></p><p>I don't know what to do. I have tried to phone my diabetes department but no one answers the phone. It is all voicemail. I don't want to leave a complaint that my nurse will hear. It all makes me anxious which makes my diabetes worse. </p><p></p><p>I am in Scotland, so that is the NHS I am dealing with.</p><p></p><p>Thoughts? </p><p></p><p>It took a lot for me to write this so please be gentle.</p></blockquote><p></p>
[QUOTE="endocrinegremlin, post: 2036463, member: 196900"] Hi! I use the medtronic minimed 640 pump. I am having real issues with the mio infusion sets and sets in general. My body rejects sites after two days. They become painful, inflamed and swollen. After removing the site that part of my abdomen hurts for several days. My 'DSN ' (she was a nutritionist and still wears a uniform saying that ) nurse is a problem with this. I have mentioned this for years. The animas vibe presented the same problem. My body just will not accept a site after two days. It may be due to my eczema but even the medtronic site says the sites are meant to last 2-3 days. She insists I must be inserting them wrong and hauls me in time after time to demonstrate me putting a site in. Funnily enough after years on the pump I know how to put one in. Set failures are common with this insert and I have reported it to medtronic who have acknowledged that. I have said to my nurse that the sites don't last. She refuses to extend my funding (NHS) so that I may get extra sets. She seems fixated on the idea that I am doing something wrong. If a set works three days I pull it out to puss. I can't leave them that long but I don't have enough to change them every two days. I can't afford to go private. I tried at one point to use mdi a few days a month to balance it and got a rude reminder of why I had my pump. I could hardly leave my bed. I don't know what to do. I have tried to phone my diabetes department but no one answers the phone. It is all voicemail. I don't want to leave a complaint that my nurse will hear. It all makes me anxious which makes my diabetes worse. I am in Scotland, so that is the NHS I am dealing with. Thoughts? It took a lot for me to write this so please be gentle. [/QUOTE]
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