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Type 3c (Pancreatic) Diabetes
Shocking story, what kind of a situation am I in?
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<blockquote data-quote="Honeyend" data-source="post: 2249099" data-attributes="member: 430576"><p>I have Type 3C, due to necrotising pancreatitis, on my first scan it says it was totalling necrotic, and I had a 1.5 litre pseudo cyst drained and then it drained further over four weeks.When I had my stent removed they removed necrotic tissue at the same time and sucked out some more gunk. I didn't ask if the necrotic tissue was my pancreas, sometimes I'ed rather not know.</p><p></p><p> I was discharged on NG feeds and insulin, I tell you all this because it can get better. As soon as I was discharged I weaned myself off the feeds, some mornings, my BG was 14, and went high protien low carb, which enable me to heal but also get my BG down. I must have some fuction left in my pancreas, and I think giving it a 'holiday' has helped, so my last HbA1C is 42, so I am not on any medication.</p><p> Your body will take a while to settle, I had months when I was like an old car, and had a lot of pain, I couldn't sleep laid down for five months and slept in a chair, I couldn't walk very far, I had a frame and I couldn't go upstairs.</p><p>You go through the foods that agree with you, and I literally lived on chicken curry and a spoon of rice for months, and I eat basically the same diet every day and add a new thing 'just to see'. I eat a lot of nuts, because they are full of good stuff and never eat bread or cereals.</p><p> You need to make sure you are treated in under the 3c, standard of care.</p><p><a href="https://www.nice.org.uk/guidance/ng104/chapter/recommendations#pseudocysts-2" target="_blank">https://www.nice.org.uk/guidance/ng104/chapter/recommendations#pseudocysts-2</a></p><p></p><p>The only way you find out if you are producing some insulin is tests, which I haven't had and will probabely have to pay for, I would keep testing your BS, and stabilise it by eating stuff that doesn't make it spike, and only you can work that out. I live by the rule of 10's,if a portion is less than 10 carbs I will try it, and try to eat not more than 20grms in one meal. I have just had a bacon sandwich in low carb bread for lunch, so its not that tough.</p><p></p><p>My pancreatitis came out of the blue, I had a stone in the duct, so there is a chance I could get it again, but you can only manage so many things, so every day I wake up is a bonus, I was given a 50/50 chance of surviving. I didn't even know I had gallstones, so like you it came as a shock. There are a few people that they never find the cause for it. I was on a lot of pain relief and if you can reduce what you are using I would do it because in the long seems to cause problems, and I was much better once I stopped taking lots of pills.</p><p>I walk about 7000 steps a day, muck my cows out and was back shopping before CV, and was thinking of trying to go back to work. Its been a long slog, and its easy to get bogged down with what if, you can only control what you do, and you are always the expert in you, you just have to spend some time working out what works for you. If you control your BS, eat wisely, there is no reason why you should get diabetic complications.</p></blockquote><p></p>
[QUOTE="Honeyend, post: 2249099, member: 430576"] I have Type 3C, due to necrotising pancreatitis, on my first scan it says it was totalling necrotic, and I had a 1.5 litre pseudo cyst drained and then it drained further over four weeks.When I had my stent removed they removed necrotic tissue at the same time and sucked out some more gunk. I didn't ask if the necrotic tissue was my pancreas, sometimes I'ed rather not know. I was discharged on NG feeds and insulin, I tell you all this because it can get better. As soon as I was discharged I weaned myself off the feeds, some mornings, my BG was 14, and went high protien low carb, which enable me to heal but also get my BG down. I must have some fuction left in my pancreas, and I think giving it a 'holiday' has helped, so my last HbA1C is 42, so I am not on any medication. Your body will take a while to settle, I had months when I was like an old car, and had a lot of pain, I couldn't sleep laid down for five months and slept in a chair, I couldn't walk very far, I had a frame and I couldn't go upstairs. You go through the foods that agree with you, and I literally lived on chicken curry and a spoon of rice for months, and I eat basically the same diet every day and add a new thing 'just to see'. I eat a lot of nuts, because they are full of good stuff and never eat bread or cereals. You need to make sure you are treated in under the 3c, standard of care. [URL]https://www.nice.org.uk/guidance/ng104/chapter/recommendations#pseudocysts-2[/URL] The only way you find out if you are producing some insulin is tests, which I haven't had and will probabely have to pay for, I would keep testing your BS, and stabilise it by eating stuff that doesn't make it spike, and only you can work that out. I live by the rule of 10's,if a portion is less than 10 carbs I will try it, and try to eat not more than 20grms in one meal. I have just had a bacon sandwich in low carb bread for lunch, so its not that tough. My pancreatitis came out of the blue, I had a stone in the duct, so there is a chance I could get it again, but you can only manage so many things, so every day I wake up is a bonus, I was given a 50/50 chance of surviving. I didn't even know I had gallstones, so like you it came as a shock. There are a few people that they never find the cause for it. I was on a lot of pain relief and if you can reduce what you are using I would do it because in the long seems to cause problems, and I was much better once I stopped taking lots of pills. I walk about 7000 steps a day, muck my cows out and was back shopping before CV, and was thinking of trying to go back to work. Its been a long slog, and its easy to get bogged down with what if, you can only control what you do, and you are always the expert in you, you just have to spend some time working out what works for you. If you control your BS, eat wisely, there is no reason why you should get diabetic complications. [/QUOTE]
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Shocking story, what kind of a situation am I in?
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