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Should diabetics have better knowledge of other types of diabetes

Indiana91 said:
I can see yours hale710 can't see anyone else's either and I'm on an app.

Indiana x


Sent from my iPhone using Tapatalk
Click to expand...

I wonder what makes mine show?!? Maybe because I added it from within the app?


Blogging at drivendiabetic.wordpress.com
 
Maybe, no idea!

Just thought you might like to know I can see it too haha

Indiana x


Sent from my iPhone using Tapatalk
 
Just read the the top link and just cut and copied out one part that I completely agree with. And is saying exactly what I'm trying to say





I want diabetes advocates worldwide to pledge:

To have empathy, no matter the type.

To advocate for those with this condition, whatever the type.

To educate about diabetes, regardless of the type.

To correct misinformation and stereotypes that are so common in society and the media.

To recognize the hurt that misinformation and stereotypes cause people everyday. Hurt that is both emotional and physical.

To help people, who for whatever reason are affected by these stereotypes on a daily basis. People who just happen to live next door, who just happen to come to your family picnics, who happen to be among those you care for. People you’ve never met, people with families and loved ones.

People who happen to have diabetes.

Because we are all people.
 
personally ive been made to feel unwelcome in the type1 areas in the past so i never (unless by accident) even look at those areas, i keep my nose out of type 1, type 1.5, pregnancy and kids areas, i also agree it would be very helpful if folks had some info in there signatures, i have enough trouble trying to understand my own condition let alone trying to understand about insulin etc, i low carb but still wouldnt feel comfy advising a different type on low carbing for instance, its life threatening stuff and id hate to make a mistake that could put someone in danger


Sent from the Diabetes Forum App
 
The "info on signature strip" discussion has been done before. I also believe it's a good idea but there were many who didn't and that's their choice. Although it is helpful, unless we all do it there will still be occasional confusion. Also, the problem with the mobile app still means much of the info available on the desktop version is not there to see on your phone.
 

No idea why you're staying out of the pregnancy section Andy


Blogging at drivendiabetic.wordpress.com
 
I think it is possible to judge if one can usefully respond to any post from its contents, irrespective of whether it comes from t1 or a t2.

If I think that by responding I can help then I will but I do not generally offer advise on the technicalities of dealing with t1 as being t2 I lack the necessary experience to draw on.

But I will respond to a t1 to offer support or encouragement

Pavlos


Type 2 - Diagnosed 2009
Latest HbA1c 5,3%
Diabetes Medication: metformin 2x850mg;
Other medication: Aspirin 75mg, Valsartan 80mg, Rosuvostatin 20mg, Ezetimibe 10mg
 
hale710 said:
I wonder what makes mine show?!? Maybe because I added it from within the app?
Click to expand...
Just to add to the confusion, I'm posting from a desktop and can't see either your signature or Indiana91's. Perhaps phone app posters can only see other app posters' and desktop posters can only see other desktop posters'? I added my sig from the desktop and don't use the phone app (can't kick the BlackBerry habit).

I understand @mo1905's point that some people don't want to show their type, but I wonder whether anything can be done so that desktop sigs show in the phone app and vice versa.

Kate
 
I'm T2 insulin dep currently on Humalogmix which needs different management to basal/bolus regime and I don't have the luxury of shooting for the number of carbs I eat, which is what T1s do. Apart from diet for T2s on diet ( been one of those, done that) I don't comment on management for the other types. It's all very well reading up on the various types but posting advice for them is IMO very dodgy. It's bad enough dealing with HCPs who frequently don't fully understand diabetes, without having to cope with joe blogs who because they've done a bit of reading, think they are "expert". It's a simple matter to check out someone's profile before posting........unless they're one of the ones who "hide" their info! Also, what you see ain't necessarily what you get. There are some very sad, weird people around .
 

That seems to be it! I can see pavs too.

Pav did you add yours on desktop or app?!


Blogging at drivendiabetic.wordpress.com
 
hale710 said:
That seems to be it! I can see pavs too.

Pav did you add yours on desktop or app?!


Blogging at drivendiabetic.wordpress.com
Click to expand...
I had a signature set up on the desktop previously but it did not show up when I posted from the app, which is most times these days.

I just set up a slightly different signature on the app as well just before I posted my previous reply on this thread. This one I can see when using the app to review threads

Pavlos


Type 2 - Diagnosed 2009; Latest HbA1c 5,3%
Diabetes Medication: metformin 2x850mg; Other medication: Aspirin 75mg, Valsartan 80mg, Rosuvostatin 20mg, Ezetimibe 10mg
 
Andy12345 said:
personally ive been made to feel unwelcome in the type1 areas in the past so i never (unless by accident) even look at those areas, i keep my nose out of type 1, type 1.5, pregnancy and kids areas,
Click to expand...
I totally understand, but if I did the same I'd have to stay out of T1, T2 and T1.5. I did think monogenic db counted as T1.5, but it was made very clear to me that on this forum T1.5 applies only to LADA, so I don't belong there. But I still feel I have something to contribute to all forums other than parents, as the problems parents of db children face are very specific.

Just in case you can't see my signature, I have monogenic mitochondrial diabetes currently controlled by LCHF and co-enzyme Q10 supplements.

Kate
 
I think you are making a good point, yet the first thing I did when told I had Diabetics was look at Wikipedia.
Why should a non diabetics need knowledge about diabetics ?
We know we should not smoke cigarettes, but there is no need to know about all types types of cancer.
A small amount of knowledge can mislead people into thinking that they are more expert than they really are
Click to expand...
I think most people on this forum have the comman sense to understand what threads may help them with their own control.
 
Dear Kate,
Being told that you don't belong on the Type 1.5 shows the lack of consideration by the person who told you this and the problem is theirs, not yours.
Your contributions are valid whichever board you post on and if diabetics themselves want segregation because people do not measure up to their criteria then they need to rethink what support actually means. I feel sad that you were treated like this.

If diabetics cannot appreciate other diabetics and support them how are we going to educate the public?

CC.
 
Non diabetics should know more for the simple reason that most of the time what they say is wrong and very hurtful, there was a thread yesterday I was reading where someone's step mother told a T1 that she is a diabetic because she ate the wrong things when she was younger, and t2 isn't always about being overweight or obese there are other factors not just diet
 



hehe we need a nomad section, im very happy and grateful personally to recieve advice from any type or non type, ive recieved awesome advice from all in the past and hopefully in the future, i just once spent time trying to help someone who in a later thread requested that only type ones answer their questions and it made me feel ******, so i avoid that situation


Sent from the Diabetes Forum App
 
Anyone is free to post on any section of the forum if they feel they can help. We don't need to isolate any "type". We get a big enough kicking off the media and Joe Public without kicking each other here as well.


Sent from the Diabetes Forum App
 
There's nothing controversial in what your saying Crimsonclient and you make a good point here, however try as we might there's no denying that diabetes is a complex condition and even people sharing the same type can have different experiences in living and controlling their diabetes, so at best our knowledge of other types of diabetes is always going to be limited IMHO.

I've always said the general public do not really want to know too much about diabetes and it is only when you get diagnosed with the condition yourself do you realise how little you knew, there are 1000's of condition out there that people live with everyday and it's impossible to know what it is like to walk in their shoes for a day, does that make us bad or ignorant.............no it doesn't!!!

But picking up on some comments about not posting in other sections of the forum, I don't see no harm in offering advice in other areas as long as it's just general advice, often we will get members posting about bp or cholesterol and rather than post this in the Ask a Question section of the forum they will post it in the Type 1 or Type 2 section because they have that particular type of diabetes, as the advice for bp and cholesterol is universal across the board there's no harm in anyone answering that thread if they believe they can offer advice or support, there's many more examples and we could here all day discussing them.

.
 
Actually Kesun's perception is why I've become less keen on the 1.5 section because it isn't a defined condition.
It's important that we have categories for diagnosis but there are times when I don't like boxes at all
Any of us may have conditions, experience and knowledge that can overlap the various conditions. I don't think everyone should know about them either. (I just find it interesting)

In any case there are far too many boxes for every one to fit nicely into them and just post on 'their' forum
There is T1, (of which LADA is a subset) T2 which can cover very varied conditions and treatments , there is gestational and there is 'Others '* In the Others group, each 'other' condition is far less frequent than the main groups but there are still lots of people and potential members that have them.
To my knowledge, we've had people with no pancreas, a person who had diabetes because he had too much iron in his blood, people who have different forms of MODY and of course MIDD . There are people with steroid induced diabetes and a person with cystic fibrosis induced diabetes. We've had the carer of a child with Downs (another cause of diabetes in the 'other's section) and another whose child had Prader Willi .......
Then there are those who may be misdiagnosed or may have used one type of treatment for some time and then changed for another and so may have some experience that isn't always obvious from a label.
And whatever Type we have, we all share similar risks of complications .
There are 3 main pillars of diabetes control, two; diet and exercise are shared by all of us. The third, medication is more specialised but people still don't fit into boxes; some T1s take metformin, some T2s take insulin (and those in the Others section may be insulin controlled or may be on other medications or none ) We may also all take similar medications for blood pressure, or cholesterol or thyroid etc etc.

It all gets very complicated!
( *Others just refers to ' other specific types of diabetes' which is the term the ADA and the WHO use )
 
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Even though I am type 2 most type1s can give me advice as I am on insulin (novomix30 60u am 56 u pm) but I have noticed that some type 1 are asking about Victoza which I also take so I can help with questions about that. So it's not about I'm type 1 and your type 2 it's about medication that both types take. And giving support to others that you have common ground with.
 
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