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SIBO or gastroparesis? Please help - I am alone
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<blockquote data-quote="Brunneria" data-source="post: 2613429" data-attributes="member: 41816"><p>Hi @Ten1993 (or [USER=362053]@TenTen99[/USER] )</p><p></p><p>i feel your pain!</p><p>i am not T1 and I ended up not having SIBO, but for a while there, I thought it very likely.</p><p>(my situation ended up being a variation of IBS caused by an imbalance of gut microbes, but not as high in the intestine as SIBO. Mine got much worse with a ghiardia infection that seemed to leave my gut ridiculously over sensitive to just about everything).</p><p></p><p>Like you, i floundered around trying to work out what it was. Food intolerances went through the roof, IBS ‘events’ happened regularly. I found eating carnivore helped, and I stuck with that for 5 years, functional, but not ‘well’.</p><p></p><p>I tried all sorts of things, including an elemental diet for a few weeks, in case it was SIBO. I assume those are the shakes you will be doing?</p><p>I found that the elemental diet shakes were the most peaceful my gut had been for years, but (since I am a diet controlled T2), the carb intake was a problem. I ended up sipping slowly, all day, in order to drip feed carbs and prevent sugar spikes from 3 or 4 shakes a day. A T1 might find using insulin avoids that problem (though timing might be tricky, since elemental diet shakes don’t require digestion, so the glucose hits the bloodstream insanely fast).</p><p></p><p>Things improved a bit after the shakes, and I limped along by eating carivore (fats always digested well, protein OK, carbs okish, and even tiny amounts of fibre were DISASTROUS). I was definitely suffering malnutrion, even with all sorts of supplements, so I assume it was malabsorption, since I just wasn’t absorbing all the nutrients I was making sure I ate.</p><p></p><p>Eventually, I kind of lost it, seriously afraid of the long term health effects of long term malnutrition, inflammation, food intolerances, insomnia, the IBS, and so on. At one point my gums started bleeding, and a blood pressure monitor cuff caused blood blisters. I had no idea what was going on so it took me a while to try increasing my vit C from 2-3x the RDA, to 40x the RDA, and within 2 days my gums healed. So my guts were absorbing so poorly I had take mega doses of lots of nutrients In order to absorb what i needed.</p><p></p><p>So (in desperation) I went to a nutritionist who suggested a v expensive private stool test to see what gut flora I had.</p><p></p><p>Marvellous woman. I am profoundly grateful to her.</p><p></p><p>9 months later, I am eating a huge variety of veg, some of the lower carb fruit, masses of fibre, my gut is functioning the best I have known it during my adult life, I am no longer depressed, insomniac and most (all?) of my food intolerances seem to have disappeared. It is amazing.</p><p></p><p>It turns out that I had some bad gut issues on holiday in my teens (France) and 20s (Israel), which left my gut unhappy and prone to problems. Then 6 yrs ago the ghiardia kicked everything up a gear. She told me that the carnivore eating must have kept a lid on the bad gut microbes that had probably been inside my intestines for decades and exploded following the ghiardia, but even carnivore had never quite starved the microbes out. The bugs in question were feeding off the protective mucous layer that should protect the gut lining from foods, chemicals and nasty bugs, which left me with endless inflammation and vulnerable to IBS, food poisoning and so on.</p><p></p><p>The nutritionist suggested very slowly (a half teasp at a time) that i introduce pre and pro biotics plus the foods that would cultivate beneficial bacteria back into my gut. Then they would build healthy populations and end up starving out the nasty bugs.</p><p></p><p>The slow, steady return to health has been absolutely wonderful.</p><p>I am now on the opinion that cultivating a healthy gut biome is one (poss the most important) thing vital to health, and a healthy immune system.</p><p></p><p>I realise that my health issues and story are different to yours, but I hope you can spot some similarities, and maybe take some hopeful reassurance that you may find a way to get better.</p></blockquote><p></p>
[QUOTE="Brunneria, post: 2613429, member: 41816"] Hi @Ten1993 (or [USER=362053]@TenTen99[/USER] ) i feel your pain! i am not T1 and I ended up not having SIBO, but for a while there, I thought it very likely. (my situation ended up being a variation of IBS caused by an imbalance of gut microbes, but not as high in the intestine as SIBO. Mine got much worse with a ghiardia infection that seemed to leave my gut ridiculously over sensitive to just about everything). Like you, i floundered around trying to work out what it was. Food intolerances went through the roof, IBS ‘events’ happened regularly. I found eating carnivore helped, and I stuck with that for 5 years, functional, but not ‘well’. I tried all sorts of things, including an elemental diet for a few weeks, in case it was SIBO. I assume those are the shakes you will be doing? I found that the elemental diet shakes were the most peaceful my gut had been for years, but (since I am a diet controlled T2), the carb intake was a problem. I ended up sipping slowly, all day, in order to drip feed carbs and prevent sugar spikes from 3 or 4 shakes a day. A T1 might find using insulin avoids that problem (though timing might be tricky, since elemental diet shakes don’t require digestion, so the glucose hits the bloodstream insanely fast). Things improved a bit after the shakes, and I limped along by eating carivore (fats always digested well, protein OK, carbs okish, and even tiny amounts of fibre were DISASTROUS). I was definitely suffering malnutrion, even with all sorts of supplements, so I assume it was malabsorption, since I just wasn’t absorbing all the nutrients I was making sure I ate. Eventually, I kind of lost it, seriously afraid of the long term health effects of long term malnutrition, inflammation, food intolerances, insomnia, the IBS, and so on. At one point my gums started bleeding, and a blood pressure monitor cuff caused blood blisters. I had no idea what was going on so it took me a while to try increasing my vit C from 2-3x the RDA, to 40x the RDA, and within 2 days my gums healed. So my guts were absorbing so poorly I had take mega doses of lots of nutrients In order to absorb what i needed. So (in desperation) I went to a nutritionist who suggested a v expensive private stool test to see what gut flora I had. Marvellous woman. I am profoundly grateful to her. 9 months later, I am eating a huge variety of veg, some of the lower carb fruit, masses of fibre, my gut is functioning the best I have known it during my adult life, I am no longer depressed, insomniac and most (all?) of my food intolerances seem to have disappeared. It is amazing. It turns out that I had some bad gut issues on holiday in my teens (France) and 20s (Israel), which left my gut unhappy and prone to problems. Then 6 yrs ago the ghiardia kicked everything up a gear. She told me that the carnivore eating must have kept a lid on the bad gut microbes that had probably been inside my intestines for decades and exploded following the ghiardia, but even carnivore had never quite starved the microbes out. The bugs in question were feeding off the protective mucous layer that should protect the gut lining from foods, chemicals and nasty bugs, which left me with endless inflammation and vulnerable to IBS, food poisoning and so on. The nutritionist suggested very slowly (a half teasp at a time) that i introduce pre and pro biotics plus the foods that would cultivate beneficial bacteria back into my gut. Then they would build healthy populations and end up starving out the nasty bugs. The slow, steady return to health has been absolutely wonderful. I am now on the opinion that cultivating a healthy gut biome is one (poss the most important) thing vital to health, and a healthy immune system. I realise that my health issues and story are different to yours, but I hope you can spot some similarities, and maybe take some hopeful reassurance that you may find a way to get better. [/QUOTE]
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