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Some questions from newbie

Indie1

Member
Messages
14
Type of diabetes
Type 1
Hi,
I'm 28, not obese, was diagnosed about 1.5 months ago, but doctors are still unsure what type am I, probably type 1, but not certain.

I was diagnosed at 19 mmol/l, accidentally, without any usual symptoms. Initially was diagnosed with type 1 and after being on small rapid-acting insulin doses, blood sugar dropped to 5.8-6.5. So my endocrinologist cancelled rapid-acting insulin and left only long-acting (Toujeo, 6 units). After that glucose kept stable at 5.0-6.5, but usually high in the mornings (6.0-7.0)
Fasting C-peptide was 0.18 ng/l and stimulated C-peptide 0.55 ng/l, ICA test negative, so my endocrinologist ordered a genetic test for MODY diabetes.

I started to do aerobic sports a lot (1.5h daily) and this seem to help keep glucose levels at 4.5-5.5, few hours after sport.

Questions:
1) Am I experiencing honey moon? Because my doctor wants to lower insulin more or even cancel it, based on what I've read in internet it seems not a good idea, is that correct?
2) Can it be 1.5 diabetes? As I understood in this case you should better keep taking insulin?
 
Your c-peptide results definitely reflect that you're not making insulin however, that doesn't necessarily make you type 1/1.5.

To be type 1/1.5 you would have to test positive for antibodies. 40 years ago that's what the ICA test was for, but that's not a particularly effective test and most doctors now test for specific antibodies (GAD-65 and others). It's my understanding that the ICA test only measures how your antibodies react to animal pancreas cells. A negative result doesn't mean they're not attacking your (human) pancreas cells.

In layman's terms, your c-peptide basically suggests you are insulin dependent, but the cause is yet to be confirmed. I would question why your doctor ordered the ICA test but then skipped all the way to MODY.
 
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