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Son newly diagnosed

S

Shirley Mulley

Newbie
Messages
2
Type of diabetes
Parent
Treatment type
Tablets (oral)
Hi, I have been lurking for a few weeks and have found some of the posts very helpful. Without them I would be feeling lost.

My son, aged 19 was diagnosed about 5 weeks ago. He has had a lot of medical problems from a baby but we had thought that we had everything under control. He is deaf and has learning disabilities and has undergone a lot of investigation as it is felt that the underlying diagnosis would be genetic.

I had noticed a lot of nightime peeing and drinking during the day and his consultant did a test at our last appointment. His BG level mid morning at testing was 14.7 and a fasting test the following day was 11.6. We saw a DN quite quickly and she prescribed 40mg of Gliclazide in the morning, before breakfast and we have been testing on waking and before dinner in the evening.

We have now seen the Consultant who has been quite helpful and accepts that there might be a genetic cause. I see that there are some syndromes and types of diabetes that also cause deafness and he is going to investigate this further with our son's geneticist. In the meantime he has completed an antibody test but we do not yet know the results.

We have not been given a lot of advice about diet, just to avoid sweets. With the assitance of this site, we have cut down drastically on carbohydrates but are concerned that our son has a low BMI of 17 and we don't want him losing weight.

The medication has resulted in a lowering of blood sugars but these are so erratic, as we have seen from others reporting here. We have had low readings before dinner of 4, 5 and 6, but mornings remain around 8-9 and sometimes we get readings of 10-12 for no accountable reason.

Jamie has adapted fantastically to his change, has no problem with the testing but naturally misses his pizzas and a bit of chocolate.

I just wanted to say hello and if anyone has any feedback or knows how long we would expect to wait for the antibody results, that would be great.
 
Welcome to the forum,
sorry i cany answer your questions but just wanted to say hi:)
 
there's a lovely pizza you can make which will not raise blood sugars... it is somewhere on YouTube by Dr. Eric Berg. i watched it the other day.. it looked lovely.
 
Shirley Mulley said:
Hi, I have been lurking for a few weeks and have found some of the posts very helpful. Without them I would be feeling lost.

My son, aged 19 was diagnosed about 5 weeks ago. He has had a lot of medical problems from a baby but we had thought that we had everything under control. He is deaf and has learning disabilities and has undergone a lot of investigation as it is felt that the underlying diagnosis would be genetic.

I had noticed a lot of nightime peeing and drinking during the day and his consultant did a test at our last appointment. His BG level mid morning at testing was 14.7 and a fasting test the following day was 11.6. We saw a DN quite quickly and she prescribed 40mg of Gliclazide in the morning, before breakfast and we have been testing on waking and before dinner in the evening.

We have now seen the Consultant who has been quite helpful and accepts that there might be a genetic cause. I see that there are some syndromes and types of diabetes that also cause deafness and he is going to investigate this further with our son's geneticist. In the meantime he has completed an antibody test but we do not yet know the results.

We have not been given a lot of advice about diet, just to avoid sweets. With the assitance of this site, we have cut down drastically on carbohydrates but are concerned that our son has a low BMI of 17 and we don't want him losing weight.

The medication has resulted in a lowering of blood sugars but these are so erratic, as we have seen from others reporting here. We have had low readings before dinner of 4, 5 and 6, but mornings remain around 8-9 and sometimes we get readings of 10-12 for no accountable reason.

Jamie has adapted fantastically to his change, has no problem with the testing but naturally misses his pizzas and a bit of chocolate.

I just wanted to say hello and if anyone has any feedback or knows how long we would expect to wait for the antibody results, that would be great.
Click to expand...

If you are concerned with your son's weight keep in mind he can simply maintain or gain weight with a caloric excess. There are many high calorie foods that don't have many carbs such as cheese, nuts, fatty fish like salmon or peanut butter. If you are unsure about how to track calories and carbs its probably a good idea to join a site like calorie king or my fitness pal, they are free and easy to use:
http://www.calorieking.com.au/
http://www.myfitnesspal.com/

They can calculate how many calories and macronutrients your son needs a day based on his height &weight. They also include large food databases additionally you can track the amount of carbs he gets a day with them.

I track everything I eat everyday with calorieking and I pretty much owe my control of diabetes to it. If you haven't already you should take the time to use one of these sites you'll have much more contol than if you didn't.
 
Many thanks for the helpful replies. I will look at the pizza if I can find it as that is a food that is much missed. I will also take a look at the recommended sites.
One question that might not easily have an answer. When diagnosed 5 week's ago my son's fasting level was about 12. Although he takes 40mg of gliclazide each morning after testing and with his breakfast, I have been told by the nurse that such a low dose will not have a major impact on his readings. I also believe that the impact wears off after about 12-18 hours. Question therefore is that we have reduced his carbs drastically and his average morning reading is about 7-8. Does that mean that we might be achieving some of the reduction by the diet, taking into account that the meds will no longer be effective after 24 hours?

Many thanks if anyone has feedback on this
 
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