Search
Search titles only
By:
Search titles only
By:
Home
Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
Search
Search titles only
By:
Search titles only
By:
New posts
Search forums
Menu
Install the app
Install
Reply to Thread
Guest, we'd love to know what you think about the forum! Take the
Diabetes Forum Survey 2024 »
Home
Forums
Diabetes Discussion
Newly Diagnosed
Son Type 1, Diagnosed January
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Message
<blockquote data-quote="moopf" data-source="post: 377169" data-attributes="member: 68465"><p>Hi Antony,</p><p></p><p>First of all many thanks for your detailed reply - I really appreciate the time you've taken. Interestingly I don't get the impression that the team are petrified of hypos and at the recent clinic appointment they downloaded the readings from his meter and commented that there weren't too many and that it was perfectly normal, as they did at the previous clinic as well. Apart from a rare one below 3, they've always been above 3. Sport is the thing that tends to give us the biggest problems (and he does a lot of it!) but we've all got much better at understanding how his body reacts to it, and for how long (he swims, plays tennis, plays lacrosse, BMXs etc. and they're all a little different in terms of time spent and intensity). The team have never made a big deal out of them but, you're right, it sounds like something to bring up with them just to be sure.</p><p></p><p>We tend to stick to a range of ratios - 1 for 10, 1 for 12 and 1 for 15 at present - rather than just picking ratios out of thin air and really just use the one that we all feel fits for a given set of circumstances. It's gradually moved towards the higher insulin/carb ratio - so more to 1 for 10 - in the last week or so and it's that, along with us noticing rises during the night and waking on a higher blood sugar and being higher in the times between meals that's leading us to thoughts that the honeymoon is coming to an end. Throughout it's been about trying to avoid highs that need correcting, whilst avoiding lows obviously, and trying to feather his blood sugars as much as possible.</p><p></p><p>We're fully prepared for what works for him, or what routine he falls into, to change over time. You're right that apathy is something that can easily creep in, it's difficult to know where we'll be in another 3 months, the last 3 months alone have been an incredibly long journey. And definitely I think the policy from the hospital is one of a regime that gives acceptable results for as many patients as possible. I can completely understand that, it's the nature of large scale management of anything. But with engaged parents I'd hope they'd support whatever they are finding works and is keeping him healthy and as happy as he can be.</p><p></p><p>I think you've hit the nail on the head with them being experts but not in the same way that we are (it's not the first time somebody has said that to us). We still feel so very new to this it just seems almost arrogant to think that we know what is working for him better. I guess, as we're learning, that's the nature of Diabetes - those that live with it day in and day out know more about how to treat it for themselves than you can be 'told'. It still feels strange to question the experts though!</p><p></p><p>What we don't want to do is alienate the hospital team because we know there will be times that we need their support. We do believe that at the moment what we're doing is working and without being made aware of some glaring hole in our thinking (which is partly why I posted this thread to see if there is!) it is the way we'd like to continue. I'm contemplating writing to the consultant to give my thoughts and to offer to record whatever information they need to make it work for them in whatever format they would prefer to try to make this work for both sides.</p><p></p><p>Thanks,</p><p></p><p>Gareth</p></blockquote><p></p>
[QUOTE="moopf, post: 377169, member: 68465"] Hi Antony, First of all many thanks for your detailed reply - I really appreciate the time you've taken. Interestingly I don't get the impression that the team are petrified of hypos and at the recent clinic appointment they downloaded the readings from his meter and commented that there weren't too many and that it was perfectly normal, as they did at the previous clinic as well. Apart from a rare one below 3, they've always been above 3. Sport is the thing that tends to give us the biggest problems (and he does a lot of it!) but we've all got much better at understanding how his body reacts to it, and for how long (he swims, plays tennis, plays lacrosse, BMXs etc. and they're all a little different in terms of time spent and intensity). The team have never made a big deal out of them but, you're right, it sounds like something to bring up with them just to be sure. We tend to stick to a range of ratios - 1 for 10, 1 for 12 and 1 for 15 at present - rather than just picking ratios out of thin air and really just use the one that we all feel fits for a given set of circumstances. It's gradually moved towards the higher insulin/carb ratio - so more to 1 for 10 - in the last week or so and it's that, along with us noticing rises during the night and waking on a higher blood sugar and being higher in the times between meals that's leading us to thoughts that the honeymoon is coming to an end. Throughout it's been about trying to avoid highs that need correcting, whilst avoiding lows obviously, and trying to feather his blood sugars as much as possible. We're fully prepared for what works for him, or what routine he falls into, to change over time. You're right that apathy is something that can easily creep in, it's difficult to know where we'll be in another 3 months, the last 3 months alone have been an incredibly long journey. And definitely I think the policy from the hospital is one of a regime that gives acceptable results for as many patients as possible. I can completely understand that, it's the nature of large scale management of anything. But with engaged parents I'd hope they'd support whatever they are finding works and is keeping him healthy and as happy as he can be. I think you've hit the nail on the head with them being experts but not in the same way that we are (it's not the first time somebody has said that to us). We still feel so very new to this it just seems almost arrogant to think that we know what is working for him better. I guess, as we're learning, that's the nature of Diabetes - those that live with it day in and day out know more about how to treat it for themselves than you can be 'told'. It still feels strange to question the experts though! What we don't want to do is alienate the hospital team because we know there will be times that we need their support. We do believe that at the moment what we're doing is working and without being made aware of some glaring hole in our thinking (which is partly why I posted this thread to see if there is!) it is the way we'd like to continue. I'm contemplating writing to the consultant to give my thoughts and to offer to record whatever information they need to make it work for them in whatever format they would prefer to try to make this work for both sides. Thanks, Gareth [/QUOTE]
Verification
Post Reply
Home
Forums
Diabetes Discussion
Newly Diagnosed
Son Type 1, Diagnosed January
Top
Bottom
Find support, ask questions and share your experiences. Ad free.
Join the community »
This site uses cookies. By continuing to use this site, you are agreeing to our use of cookies.
Accept
Learn More.…