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Steroid induced diabetes and conflicting information...
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<blockquote data-quote="Dizzydog" data-source="post: 837892" data-attributes="member: 169322"><p>It's sortable my readings were constantly up in the high 20's & are now coming back in to the 4-7 range- I'll admit at first I was naive & thought compared to the other health stuff going on this would be the easier thing to control, maybe not quite that easy & for steroid diabetes that is quite tight control & may not suit everyone I believe. At one point it was phrased as all we could attempt was damage limitation but I wasn't happy with that at all, but I'm a stubborn mule & at least wanted the chance to see if I could get better control hence the change to basal/ bolus. </p><p></p><p>I've found with the steroids it's best not to get to upset by the odd few high numbers & I do get completely random highs but I'm on so much other stuff & I swear sometimes my body doesn't know how to respond to what at times & I've got every listed side effect from steroids but needs must.</p><p></p><p>Initially with the diabetes consultant it felt like being sat in front of the steroid police & I do understand his point of view as I guess they get left to deal with the damage they do but they now realise I can't do anything without them & it's a quality of life issue & breathing is quite important to me lol (if only it was that easy) </p><p></p><p>I also have such a supportive respiratory consultant (he fought tooth & nail with the trust to get funding agreed for the subcutaneous terbutaline infusion & they all fell out over syringe drivers of all things) & I'm given freedom to lead my own treatment/ dose changes & not sure all consultants agree with that approach. Polar opposites I think would be the nice way of putting it.</p><p></p><p>My steroid dose changes so often & in a way that's helped me ( but given diabetes team a challenge) as I've become a bit of a ninja at working out my personal response to the dose changes and my insulin needs. I would just say if you are not happy with something be persistent as you know you're own body & from experience the medical profession can struggle if you don't fit in the 'box' or come from the text book...</p></blockquote><p></p>
[QUOTE="Dizzydog, post: 837892, member: 169322"] It's sortable my readings were constantly up in the high 20's & are now coming back in to the 4-7 range- I'll admit at first I was naive & thought compared to the other health stuff going on this would be the easier thing to control, maybe not quite that easy & for steroid diabetes that is quite tight control & may not suit everyone I believe. At one point it was phrased as all we could attempt was damage limitation but I wasn't happy with that at all, but I'm a stubborn mule & at least wanted the chance to see if I could get better control hence the change to basal/ bolus. I've found with the steroids it's best not to get to upset by the odd few high numbers & I do get completely random highs but I'm on so much other stuff & I swear sometimes my body doesn't know how to respond to what at times & I've got every listed side effect from steroids but needs must. Initially with the diabetes consultant it felt like being sat in front of the steroid police & I do understand his point of view as I guess they get left to deal with the damage they do but they now realise I can't do anything without them & it's a quality of life issue & breathing is quite important to me lol (if only it was that easy) I also have such a supportive respiratory consultant (he fought tooth & nail with the trust to get funding agreed for the subcutaneous terbutaline infusion & they all fell out over syringe drivers of all things) & I'm given freedom to lead my own treatment/ dose changes & not sure all consultants agree with that approach. Polar opposites I think would be the nice way of putting it. My steroid dose changes so often & in a way that's helped me ( but given diabetes team a challenge) as I've become a bit of a ninja at working out my personal response to the dose changes and my insulin needs. I would just say if you are not happy with something be persistent as you know you're own body & from experience the medical profession can struggle if you don't fit in the 'box' or come from the text book... [/QUOTE]
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