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<blockquote data-quote="DCUKMod" data-source="post: 2280167" data-attributes="member: 345386"><p>OK, [USER=401801]@JoKalsbeek[/USER] , here we go.</p><p></p><p>Jo, please do ensure you follow through with ALL the investigations for all options, and of course including the ultrasound of your thyroid. That it is swollen clearly suggests something isn't right, but not necessarily that it's something requiring immediate or urgent action.</p><p></p><p>As I'm sure you are aware, our thyroid glands are at the cornerstone of out metabolic health, and if it's off-kilter, then so many things can appear awry. The list of potential symptoms for hypothyroidism are as long as your arm, and a bit like diabetes, some people experience lots of them, and others few. </p><p></p><p><a href="https://thyroiduk.org/signs-symptoms/signs-symptoms-underactive/" target="_blank">https://thyroiduk.org/signs-symptoms/signs-symptoms-underactive/</a></p><p></p><p>Firstly, I would strongly challenge why your doctor considers you have hyperthyroidism. Hyperthyroidism is identified by a set of antibodies. They can be identified by testing for very specific antibodies . In order to acurately diagnose true hyperthyroidism, it is necessary to take a positive TRab test along with elevated FT4 / FT3 (and usually rock bottom TSH).</p><p></p><p>Do you identify with many of the hyperthyroidism symptoms?:</p><p></p><p><a href="https://thyroiduk.org/signs-symptoms/signs-symptoms-overactive/" target="_blank">https://thyroiduk.org/signs-symptoms/signs-symptoms-overactive/</a></p><p></p><p>As you already have a Hashimoto's diagnosis, whilst Graves Disease (hyperthyroidism) is not impossible, it is much more likely an individual could be experiencing a Hashi's Hyper, (if hyper at all) but in all honesty, I don't believe the thyroid tests you have had done can tell you that.</p><p></p><p>Yes, your TSH is low, but that often happens when an individual is taking thyroxine. The following image are my own bloods, from a period when I had been on Levothyroxine for over a year. My medication regime was changed in 9/20, to add T3, but as yet, it is likely I am sub-optimally medicated. I feel much better with the T3 on board, but I am still very much a work in progress.</p><p></p><p>[ATTACH=full]42428[/ATTACH]</p><p></p><p>In all of that do you see where mt TSH and FT4 levels have been? Until 11/19, I was feeling rubbish.</p><p></p><p>Jo, when you had your thyroid tested, was there a 24 hour gap between your last T4 dose and the test? Do you also take any supplements? If you do, do any of them contain Biotin? If they do, it is possible they may be skewing your results in some areas. (If that's the case a quick Google of "Biotin Assay Interference" will return some further reading material. However, if that is in play, it is important whatever is containing the Biotin (often a Vit B complex) is paused for at least a week prior to any testing.</p><p></p><p>Was your Vit D tested? Like soooo many things, that can interfere with out thyroid function, so for a decent panel, as well as the TSH, FT3 FT3, antibodies, it is good to ensure vitamins D, B12 and folate are tested (and in a good place). Ferritin you already have. Did you have CRP done?</p><p></p><p>If you are unable to take the VitD tablets, have you tried drops or spray options? I am fine with a D3+K2 tablet, so have no wisdom on the fluid options, I'm afraid. </p><p></p><p>Now, this next bit I may just be making up; but do I recall correctly thinking along the way you may have chronic fatigue syndrome or ME? If so, there is a school of thought those can be improved in many by good thyroid management.</p><p></p><p>Finally, if you were seeing my Endo, he'd have you on a strictly gluten-free diet. He recommends it to all his patients with autoimmune conditions (AI), as he finds they tend to do well on it. At the last time of testing, I don't have AI conditions (much to his astonishment, based on family history), but he still suggested I adopt it. It has actually made quite a difference to me.</p><p></p><p>So, Jo, that's my 2p worth. I reiterate, in your shoes, I'd want everything tested, even if I felt it was just to rule things out. That does need to be done.</p><p></p><p>You suggest you're going to be retested for your thyroid in about 4 weeks. At that point, how long will you have been on your reduced dose.</p><p></p><p>If you find any of your systems changing - better or worse, please track and note it.</p><p></p><p>When I started to realise my Thyroid was going off-piste, I found the Thyroid UK part of HealthUnlocked. HealthUnlocked is a bit of an umbrella set-up for help fora. <a href="https://healthunlocked.com/thyroiduk" target="_blank">https://healthunlocked.com/thyroiduk</a></p><p></p><p>Why not make yourself an account over there. There are members from all over the world, so you'll feel at home. My view is that that forum is the DCUK equivalent for those with thyroid challenges. I have and continue to learn a huge amount from them.</p><p></p><p>I feel for you Jo, it's pretty rubbish when you know, and everybody agrees something is wrong, but you have no answers to your questions.</p><p></p><p>If I can help in any way, just let me know. I will just reiterate that I'm not medically qualified in matters thyroid, aside from living with one that well and truly lost the plot.</p></blockquote><p></p>
[QUOTE="DCUKMod, post: 2280167, member: 345386"] OK, [USER=401801]@JoKalsbeek[/USER] , here we go. Jo, please do ensure you follow through with ALL the investigations for all options, and of course including the ultrasound of your thyroid. That it is swollen clearly suggests something isn't right, but not necessarily that it's something requiring immediate or urgent action. As I'm sure you are aware, our thyroid glands are at the cornerstone of out metabolic health, and if it's off-kilter, then so many things can appear awry. The list of potential symptoms for hypothyroidism are as long as your arm, and a bit like diabetes, some people experience lots of them, and others few. [URL]https://thyroiduk.org/signs-symptoms/signs-symptoms-underactive/[/URL] Firstly, I would strongly challenge why your doctor considers you have hyperthyroidism. Hyperthyroidism is identified by a set of antibodies. They can be identified by testing for very specific antibodies . In order to acurately diagnose true hyperthyroidism, it is necessary to take a positive TRab test along with elevated FT4 / FT3 (and usually rock bottom TSH). Do you identify with many of the hyperthyroidism symptoms?: [URL]https://thyroiduk.org/signs-symptoms/signs-symptoms-overactive/[/URL] As you already have a Hashimoto's diagnosis, whilst Graves Disease (hyperthyroidism) is not impossible, it is much more likely an individual could be experiencing a Hashi's Hyper, (if hyper at all) but in all honesty, I don't believe the thyroid tests you have had done can tell you that. Yes, your TSH is low, but that often happens when an individual is taking thyroxine. The following image are my own bloods, from a period when I had been on Levothyroxine for over a year. My medication regime was changed in 9/20, to add T3, but as yet, it is likely I am sub-optimally medicated. I feel much better with the T3 on board, but I am still very much a work in progress. [ATTACH=full]42428[/ATTACH] In all of that do you see where mt TSH and FT4 levels have been? Until 11/19, I was feeling rubbish. Jo, when you had your thyroid tested, was there a 24 hour gap between your last T4 dose and the test? Do you also take any supplements? If you do, do any of them contain Biotin? If they do, it is possible they may be skewing your results in some areas. (If that's the case a quick Google of "Biotin Assay Interference" will return some further reading material. However, if that is in play, it is important whatever is containing the Biotin (often a Vit B complex) is paused for at least a week prior to any testing. Was your Vit D tested? Like soooo many things, that can interfere with out thyroid function, so for a decent panel, as well as the TSH, FT3 FT3, antibodies, it is good to ensure vitamins D, B12 and folate are tested (and in a good place). Ferritin you already have. Did you have CRP done? If you are unable to take the VitD tablets, have you tried drops or spray options? I am fine with a D3+K2 tablet, so have no wisdom on the fluid options, I'm afraid. Now, this next bit I may just be making up; but do I recall correctly thinking along the way you may have chronic fatigue syndrome or ME? If so, there is a school of thought those can be improved in many by good thyroid management. Finally, if you were seeing my Endo, he'd have you on a strictly gluten-free diet. He recommends it to all his patients with autoimmune conditions (AI), as he finds they tend to do well on it. At the last time of testing, I don't have AI conditions (much to his astonishment, based on family history), but he still suggested I adopt it. It has actually made quite a difference to me. So, Jo, that's my 2p worth. I reiterate, in your shoes, I'd want everything tested, even if I felt it was just to rule things out. That does need to be done. You suggest you're going to be retested for your thyroid in about 4 weeks. At that point, how long will you have been on your reduced dose. If you find any of your systems changing - better or worse, please track and note it. When I started to realise my Thyroid was going off-piste, I found the Thyroid UK part of HealthUnlocked. HealthUnlocked is a bit of an umbrella set-up for help fora. [URL]https://healthunlocked.com/thyroiduk[/URL] Why not make yourself an account over there. There are members from all over the world, so you'll feel at home. My view is that that forum is the DCUK equivalent for those with thyroid challenges. I have and continue to learn a huge amount from them. I feel for you Jo, it's pretty rubbish when you know, and everybody agrees something is wrong, but you have no answers to your questions. If I can help in any way, just let me know. I will just reiterate that I'm not medically qualified in matters thyroid, aside from living with one that well and truly lost the plot. [/QUOTE]
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