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<blockquote data-quote="DCUKMod" data-source="post: 2280435" data-attributes="member: 345386"><p>Jo, you need that T3 tested. Your FT4 isn't in a bad place in the range, and your TSH is suppressed. Your FT4 is certainly not dangerously high, which, if you were true hyper, you would have a a very high FT4 and T3 readings, so you have half the picture.</p><p></p><p>When taking thyroid replacement hormones (such as T4, or T3), TSH usually does go down. It's meaningless, and trying to get it up high is only putting your body under strain, in my humble, non-medical opinion.</p><p></p><p>Many UK GPs just plain old have as scant an understanding of thyroid disease. In fact, I would say, it makes their knowledge of living with diabetes look in the Einstein category.</p><p></p><p>Ideally you'd have your antibodies too, although having had a positive test (I assume), to be diagnosed Hashi in the first instance, some medics see no value in testing again, however if a flare is happening, the antibody levels would likely be elevated.</p><p></p><p>For a hyperthyroid diagnosis, the following are usually in play:</p><ul> <li data-xf-list-type="ul">TSH will be decreased in hyperthyroidism. Thus, the diagnosis of hyperthyroidism is nearly always associated with a low (suppressed) TSH level. .</li> <li data-xf-list-type="ul">The hormones themselves - T3 & T4 will be increased. For a patient to have hyperthyroidism, they must have high thyroid hormone levels. Sometimes all of the different thyroid hormones are not high and only one or two of the different thyroid hormone measurements are high. This is not too common, as most people with hyperthyroidism will have all of their thyroid hormone measurements high (except TSH)</li> </ul><p>I'm really struggling to get onboard with your GP's assessment, but I feel certain you can tell that. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /></p><p></p><p>Honestly, Jo. You need to talk with someone who actually understands this.</p><p></p><p>You cite your anxiety as a barrier to having further testing done, but you have high anxiety due to NOT having adequate testing done. What you have now does you no favours. Having high anxiety having the tests done at least has the positive that you are actively pursuing answers. As you are now, you're stabbing in the dark; changing your diets and so on.</p><p></p><p>I absolutely know how frustrating thyroid disease is. It took me years to get a diagnosis, then more than a further year, to get to the beginning of a medication regime that actually helps me feel better and have a much improved quality of life.</p><p></p><p>I've had the challenges of working through the various barriers to wellbeing. It stinks, but sooner or later, I fear it's going to have to be done.</p><p></p><p>If you have issues arguing and communicating your case, do you have someone, maybe like your husband, who could advocate for you?</p><p></p><p>Whilst I don't have your anxiety issues, I do find some of these appointments daunting, and always find them exhausting. My OH doesn't attend with me, but we do spend time rehearsing what I think might happen, and discuss how I can argue against any counter arguments thrown my way. What I call my breakthrough appointment lasted almost 1.5 hours. I was not going until I was satisfied!</p><p></p><p>Why not go over to HealthUnlocked and have a read.</p><p></p><p>Everyone on there started out knowing very little about their conditions, and there are new members posting every day, so anything you post will be amongst others needing help.</p><p></p><p>Like any forum, you choose a user name. I never, ever use my given name on forums, as I am a very private person, so give yourself an anonymous name and go for it. If it would make you feel better, I will be happy to give you my user name over there, then you'll know you're amongst friends.</p><p></p><p>I do feel for you, but you are in a cleft stick.</p><p></p><p>Jo, I'll help you in any way I can.</p></blockquote><p></p>
[QUOTE="DCUKMod, post: 2280435, member: 345386"] Jo, you need that T3 tested. Your FT4 isn't in a bad place in the range, and your TSH is suppressed. Your FT4 is certainly not dangerously high, which, if you were true hyper, you would have a a very high FT4 and T3 readings, so you have half the picture. When taking thyroid replacement hormones (such as T4, or T3), TSH usually does go down. It's meaningless, and trying to get it up high is only putting your body under strain, in my humble, non-medical opinion. Many UK GPs just plain old have as scant an understanding of thyroid disease. In fact, I would say, it makes their knowledge of living with diabetes look in the Einstein category. Ideally you'd have your antibodies too, although having had a positive test (I assume), to be diagnosed Hashi in the first instance, some medics see no value in testing again, however if a flare is happening, the antibody levels would likely be elevated. For a hyperthyroid diagnosis, the following are usually in play: [LIST] [*]TSH will be decreased in hyperthyroidism. Thus, the diagnosis of hyperthyroidism is nearly always associated with a low (suppressed) TSH level. . [*]The hormones themselves - T3 & T4 will be increased. For a patient to have hyperthyroidism, they must have high thyroid hormone levels. Sometimes all of the different thyroid hormones are not high and only one or two of the different thyroid hormone measurements are high. This is not too common, as most people with hyperthyroidism will have all of their thyroid hormone measurements high (except TSH) [/LIST] I'm really struggling to get onboard with your GP's assessment, but I feel certain you can tell that. :) Honestly, Jo. You need to talk with someone who actually understands this. You cite your anxiety as a barrier to having further testing done, but you have high anxiety due to NOT having adequate testing done. What you have now does you no favours. Having high anxiety having the tests done at least has the positive that you are actively pursuing answers. As you are now, you're stabbing in the dark; changing your diets and so on. I absolutely know how frustrating thyroid disease is. It took me years to get a diagnosis, then more than a further year, to get to the beginning of a medication regime that actually helps me feel better and have a much improved quality of life. I've had the challenges of working through the various barriers to wellbeing. It stinks, but sooner or later, I fear it's going to have to be done. If you have issues arguing and communicating your case, do you have someone, maybe like your husband, who could advocate for you? Whilst I don't have your anxiety issues, I do find some of these appointments daunting, and always find them exhausting. My OH doesn't attend with me, but we do spend time rehearsing what I think might happen, and discuss how I can argue against any counter arguments thrown my way. What I call my breakthrough appointment lasted almost 1.5 hours. I was not going until I was satisfied! Why not go over to HealthUnlocked and have a read. Everyone on there started out knowing very little about their conditions, and there are new members posting every day, so anything you post will be amongst others needing help. Like any forum, you choose a user name. I never, ever use my given name on forums, as I am a very private person, so give yourself an anonymous name and go for it. If it would make you feel better, I will be happy to give you my user name over there, then you'll know you're amongst friends. I do feel for you, but you are in a cleft stick. Jo, I'll help you in any way I can. [/QUOTE]
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