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Support

Sadsac@21

Active Member
Messages
39
Type of diabetes
Type 2
Treatment type
Diet only
I was diagnosed in Jan 24. The doctor told me all the terrible things that are going to happen to me told me to take metformin (which I refused) and sent me on my way. I have never seen a doctor since only the diabetic nurse who doesn’t want to talk to me just talks numbers to me. Insists I take medication and sends me on my way.
I was finally offered a half day course two months ago. Not much good now.
I have been following a low carb diet and exercise. My hba1c has dropped from 114 to 49 all without medication.
Things got so bad at my last appointment that I paid to see a private gp who agreed with what I was doing and wrote to the surgery. I have been called in to see the diabetic nurse today and he has apologised for not including me in my care. But it shouldn’t have come to me paying to see someone who would actually listen to me and my wishes.
I don’t understand why when you are diagnosed with a life altering disease like diabetes you don’t have support in the package of care along with eyes and feet. Everything I know is through my own research the nhs has offered me nothing apart from blood tests and medication. Does anyone else think that the package of care is inadequate or have I just been unlucky.
 
First of all very well done on the Hba1c success I also had a very high Hba1c of 129 and got it down to 45 (last check up) I do however have no trouble getting an appointment with my DN's and dont understand why yours are so the way they are mone are nothing like that
Once again well done though
 
First, well done you for reducing your HbA1c to 45. Your current eating/exercise habits seem to suit you.

As for the rest of your comments, unfortunately treatment from NHS is not as good as it used to be.
 
))Denise(( said:
Most of the things I have ever learnt about diabetes has come from my own research and this forum. My GP surgery would be the last place on my list as a place that has given me support and I've had Type 2 since 2007.
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It’s shocking that this is the way it is. People need support and information and sometimes that is all you need. Not always pills and horror stories. The compassion has really gone from the nhs
 
Involving people in their own care is supposed to be central to how the NHS operates. The NICE guidelines for diabetes reinforce this. Unfortunately, as with many things in life, there are a range of experiences from the very good to the truly terrible.

You just have to look at how patients rate GP practices in surveys. Most are pretty good, some are outstanding, and some are best avoided.
 
Very well done for reducing your A1c so dramatically. Like you, I reduced mine off my own bat. A word of warning though: after health issues, I lost control of my BG and am struggling, but still determined. So it's a matter of remaining vigilant. I'd say the package of care on the NHS is patchy. Good luck.
 

Firstly congratulations on getting your hba1c down. Stick with it

Re nhs. It may be a postcode thing? Apart from diagnosis I can’t rely on my local GP nor endo for anything. The local endo told me he’d never met anyone on a keto diet.

I now get my own blood work done privately and see a leading endo once a year in a private clinic . I also self fund monitoring

I’m fortunate in being able to afford this, I understand many can’t but it is what it is.
 
I self fund Dexcom/testing strips. I asked the surgery if they would fund, not as a type 2 apparently. I have had a GP ask if I was coerced by my husband regarding my reluctance to take meds both for mental health and diabetes. My choice, until I am unable to manage myself. I was not encouraged by the lack of advice from the GP or DN, so much so I researched myself and control by diet and exercise. Diet and exercise was not advised by the GP, the advice I received was to take a pill and I was led to believe it would be the answer to all my problems. Having worked in the NHS and frequented daily visits on rounds in my job on various wards, I can safely say I know the issues diabetes can cause, I have seen it. None of the issues were ever relayed to me by my GP or DN. I have had text messages from a GP, who did not know my mental health history, that put me in a serious place of potential self destruct whilst I was going through a mental health crisis.
I rest my case, some surgery's are outstanding, quite a few are not. A lot of medical staff need to learn people skills and not go on the assumption that we no feelings, or are not medically trained and that we can, make informed decisions ourselves.
 
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