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T1@30

Aussiejohn

Newbie
Messages
2
Hello my name is John, a week after my 30th birthday I was diagnosed with T1 (happy b'day to me) my blood sugar was a 16+ also dropping 20kg without trying with a stint in hospital for my pancreas 12 months earlier it was fairly obvious(still have trouble believing my doc never thought to test me with my family history). I have trouble with upper body strength and walking with pain in my legs and feet with and rhythm of disjointedness when I "try" and run, which is weird since I ran 10 blocks every morning after work with gym on top. After coming to terms with T1 4 months later I'm not getting any help from anyone with the pain however I've managed my shots very well even after my breakdown, marriage and diabetes contributing. Anyway thats my short stint with T1 only question what is that weird pain I get walking and exercising? Also I'm having trouble concentrating for long periods , also knowing my luck I must be on the edge for the cut off age for T1 with my luck.
 
Hi John and welcome to the forum :) I can't answer your questions I'm afraid but there are plenty of Type 1s here who will be along soon and may be able to explain what is happening to you. In the meantime here is the information we give to new members which I hope will be helpful to you. Carry on asking questions and we will all try to help.

BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS


Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find well over 30,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates
A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes ... rains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips
The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
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Please sign our e-petition for free testing for all type 2's; here's the link:
http://www.diabetes.co.uk/petition/

Do get your friends and colleagues to sign as well.
 
Aussiejohn said:
Hello my name is John, a week after my 30th birthday I was diagnosed with T1 (happy b'day to me) my blood sugar was a 16+ also dropping 20kg without trying with a stint in hospital for my pancreas 12 months earlier it was fairly obvious(still have trouble believing my doc never thought to test me with my family history). I have trouble with upper body strength and walking with pain in my legs and feet with and rhythm of disjointedness when I "try" and run, which is weird since I ran 10 blocks every morning after work with gym on top. After coming to terms with T1 4 months later I'm not getting any help from anyone with the pain however I've managed my shots very well even after my breakdown, marriage and diabetes contributing. Anyway thats my short stint with T1 only question what is that weird pain I get walking and exercising? Also I'm having trouble concentrating for long periods , also knowing my luck I must be on the edge for the cut off age for T1 with my luck.

Hi John... probably best to discuss the pain with your doctor.. it could be diabetes related as diabetes can cause damage to your nervous system but it may be something totally different... I know I get pains when I am particularly stressed in my arms and legs (freaked me out to start with!) but go them checked out couple of ECG's later and they found nothing wrong..

Concentration could also be down to blood glucose levels but other things such as B12 deficiency can also cause lack of concentration again a visit to your doctor and not taking no for an answer is probably the best course of action right now..

Out of interest what levels are you blood glucose running at?...
 
At the moment it's between 6-10, I'm not in as good of control of my blood sugars as I should be. And yes the pain in my legs is kinda scary at times things me and doc need to talk over. I've also got fullbody skin pigmentation so that could indicate a vitamin problem.
 
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