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T1 Complications

Schillers

Active Member
Messages
27
Location
Bristol, UK
Type of diabetes
Type 1
Treatment type
Insulin
Okay, so I was diagnosed about a month ago.

Yesterday I want to see the dietician for the first time, I wondered if people could elaborate on some things for me. When talking she nurse was mentioning how I could only "Delay" some of the "Complications" that will happen as I get older. I am only 23 so wondered if anyone could shed some light on the "Complications" she was referring to...

Your answers may not be what I want to hear but I'd rather know?

Many thanks,
James
 
Okay, so I was diagnosed about a month ago.

Yesterday I want to see the dietician for the first time, I wondered if people could elaborate on some things for me. When talking she nurse was mentioning how I could only "Delay" some of the "Complications" that will happen as I get older. I am only 23 so wondered if anyone could shed some light on the "Complications" she was referring to...

Your answers may not be what I want to hear but I'd rather know?

Many thanks,
James
Hi James,
there are lots of complications you could get, but then again you might not.
In this day and age with good control and knowledge there is no reason to think you will go blind your legs will fall off, kidney's will fail, and the list goes on :rolleyes:
There are many type 1's who have achieved 50 years plus with no complications at all.
Was the nurse you saw called Nurse gloom or doom?
 
google will bring up a list of possibilities. I think the answer to all of them is to keep your BG in range and adjust your weight by carb intake
 
Try not to think about the negatives and focus on the positives, your young and provided you manage your diabetes well there's no reasons why you can't live a full & active life without complications, there's some great resources available now to help you manage the condition and I suggest you use them, but above all else never be afraid to ask for help from your diabetes team if you come unstuck.

Best wishes.
 
Absolutely, we need to learn about how to control our diabetes and focus on being able to live a full and active life. Then those complications become far less likely
When you are 98, you will have had diabetes for as long as this lady. She is just one example that I selected from a youtube gathering of 50 year plus medalists.
 
I can speak from the voice of experience that complications are NOT inevitable. Over ten years ago, I was afflicted with severe neuropathy that affected my ability to walk normally. Suspecting high blood sugar as a possible cause (my Mum was a diabetic for over 40 years), I purchased a BG meter, did a variety of tests before & after meals, at bedtime, on arising, and at various other times (testing as frequently as ten or more times per day). After just a couple of days, I self-diagnosed myself as being diabetic and made an emergency appointment with an endocrinologist (there’s normally a three-months waiting period to get an appointment but, without going into the details, I was fortunate and was able to see him the following day). My diabetes was officially confirmed via tests. I was put on several medications, and told that I might have to undergo physical therapy to restore my ability to walk normally. After four months on oral meds and lifestyle changes, my symptoms were getting worse.

I had done my own research in the interim and had read well over a dozen books on the topic including Dr. Richard K. Bernstein’s “Diabetes Solution” and Jenny Ruhl’s “Blood Sugar 101.” I became convinced that bringing my blood sugar levels into true normal ranges might possibly lead to some form of recovery. Oral meds clearly weren’t providing the results I was after so I requested insulin. Long story short, I succeeded in normalizing my blood sugars, quickly brought my A1c levels down to the mid 5% range, and my symptoms began to fade. I continued my efforts at normalization through additional lifestyle changes coupled with insulin use and gradually lowered my A1c to the 4.8 level. All symptoms of neuropathy have since vanished and I currently have no detectable traces of any complications whatsoever (not detectable physically nor via any laboratory tests).

Dr. Bernstein himself is a T1 diabetic and was formerly plagued with multiple complications and was facing a very uncertain future. You can read his story at this link:
http://www.diabetes-book.com/book/mylife.shtml or
http://www.diabetes-book.com/book/MyLife.pdf
Dr. Bernstein recently passed his 80th birthday, is in superb health, and claims to be virtually free of complications. Jenny Ruhl (Blood Sugar 101) also wrote an article on the topic of diabetic deterioration that you can read here:
http://www.phlaunt.com/diabetes/14046702.php

Perhaps you may find it useful to print copies of the two articles and give them to your dietician. Clearly, s/he needs to be re-educated; either that, or perhaps find another line of work.
 
When talking she nurse was mentioning how I could only "Delay" some of the "Complications" that will happen as I get older.
James
Hi James,
welcome to the forum and sorry to hear of your diagnosis. Like the others have been saying the complications can be delayed until you reach the ripe old age of nnn (pick a number, I've allowed for 100 or more).
If you read a lot of the message threads on this forum and other diabetic forums there will be a lot of people who have done exceptionally well by lowering their carb intake. It may not suit everybody, it may not be for everybody, but there are a large number who have benefited greatly.
As you're quite young I'm assuming that you are type I so you'll be carb counting anyway.
Try and read as much as possible and there is a possibility that the forum members will say something different to the medical advise that you're given. Without getting into who's right and who' wrong I'd only say "who's got diabetes?".
Diabetes is a disease that you have to take control of, it's not something where you can just let things happen, you must take control and there will be some work to do and some sacrifices to make.
Best Regards
Graham
 
Your nurse's comments are completely understandable. However, they are not correct, or acceptable. Sadly, the vast majority of diabetics in the world don't control their diabetes properly, or at all. Diabetic specialists probably spend most of their time telling long term diabetics they have complications, because their control was poor over their lifetime. However, if you're willing to make the effort, you can keep your blood sugars from spiralling out of control. This will slash the risk of developing problems.
 
Yeah, they always say 'delay' because its not something we will know because its in the future, the past however has led doctors to expect some complications will arise due to lack of BS control.

Common things are various types of neuropathy (in the eyes and limbs) as well as potential kidney damage or failure..

This translates to going blind, loss of feelings in limbs and dialysis..

BUT big BUT here - this was based on people who were diagnosed in 50s and 60s and living into the 80s and 90s before developing complications. Since the 90s and 2000s pumps are much much more common, and hug advance in understanding diabetes have (IMO) significantly tightened some peoples control on it.

They can't rule out these complications because they can still happen, and no one has lived an entire life span on a pump yet, so we don't know what changes will happen.

I can say i know people who have had Type 1 for 25+ years, now in their 30s who have no complications. I know one person (a friends father) who has had diabetes for something like 40 years and he is now retired in his 60s with no issues at all.

You have to understand there is potential for very bad things to happen, but also potential to be completely normal, its all in how well you manage yourself.

Also - there are many people managing their diabetes poorly (which is easy to do) and lots of people with T1 and T2 are overweight and lead unhealthy lives, these people are included in 'averages' when they tally the diabetes states.. So keep that in mind!
 
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