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Type 1 Diabetes
T1 CURE...????? really
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<blockquote data-quote="BigRedSwitch" data-source="post: 780404" data-attributes="member: 86237"><p>A few things - just to clear them up:</p><p></p><p>1) type 1 isn't a disease - it's a condition. A disease involves a foreign body. </p><p></p><p>2) type 1 isn't 'part of the pancreas not working' - it's part of the pancreas *missing* (which is why I said you might as well be looking for a cure to a missing limb). </p><p></p><p>3) for those of you who think I'm mean because I say there's no hope for a cure and people just need to get on with it - I was diagnosed at 3 years and 3 months with 'close to death DKA'. When I started I was on beef insulin which also nearly killed me, and my parents used to have to use glass syringes that they had to sterilise after use. My mother admitted to being 'scared' of me. None of the young ones now have to deal with that kind of stuff, and I'm afraid they just have to stop wallowing in negativity. It's like being upset that your eyes are brown instead of blue - you are what you are, and you just have to deal with it. </p><p></p><p>My son was diagnosed at 20 months old. For years (when I was younger) we were told that it isn't hereditary, but it sure as hell is. My parents, between them, have 13 siblings. Each of them has between 2 and 4 children, and I have 2 siblings myself. I'm the ONLY diabetic OF ANY KIND in that bloodline, apart from my son. </p><p></p><p>It's hereditary. </p><p></p><p>Genuinely the darkest day of my life when I diagnosed my baby boy. He'd only been walking about 6 months. My genetics were to blame for something which I know will be with him all his life. </p><p></p><p>All his life. </p><p></p><p>There will never be a cure. </p><p></p><p>The only thing that I genuinely think would be worse than being to blame for a condition that your son had to deal with all his life would have been if he'd died. I've never known sorrow like that before. </p><p></p><p>But I didn't let it drag me down with feeling sorry for myself. I cried - once. Then I decided that, the massive strong bloke that I see in the mirror every day had come through much worse times than he would ever have to face, and that I would look after him so he'd never really be bothered by it. </p><p></p><p>I got him on an insulin pump immediately, taught my wife how to count carbohydrates, and we got on with it. The biggest issue for me is how health and safety laws now require him to be classified as 'special needs' - there's nothing special needs about either of us. </p><p></p><p>On the very rare occasion he's ever complained about being diabetic (usually during set changes, which sting a bit), I tell him that Iron Man needs the arc reactor (the light on his chest) to keep the shrapnel in his chest from killing him. We need the insulin pump to keep us alive. We're superheroes like iron man. </p><p></p><p>And we are. </p><p></p><p>Feeling miserable about it and wish there was a cure? Get over it - you're wasting your brain power and your life. Use what certainly hasn't killed you yet to make you stronger, and don't focus on media hype about cures. Until a fabled cure is available as a pill at your local chemist, there's nothing to get psyched about. </p><p></p><p>4) DO hope for better treatments. I can't wait for artificial pancreases (next gen pumps) and smart insulin sounds great (although a bit 'blue sky' as far as I'm concerned). Over the last 38 years of being type 1, I've seen a huge change in treatment, and I feel 'less diabetic' now than I ever did, thanks to my pump. Big issue for me is the background side effects that seem to get you as diabetic even if you have good control. My hba1c's have never been above 7.2, but I notice my right hand heals slower than the rest of my body, for example. I hope that new treatments like the AP and smart insulin will have such tight control over blood sugars that these complications will go away too, but until we have them - and they work correctly - we won't know. </p><p></p><p>I'd previously left the above out of this thread, as it's about a cure, not treatments. I'm not devoid of hope, but given medical progress and the condition itself, my hope is pointed in the right direction. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite2" alt=";)" title="Wink ;)" loading="lazy" data-shortname=";)" /></p></blockquote><p></p>
[QUOTE="BigRedSwitch, post: 780404, member: 86237"] A few things - just to clear them up: 1) type 1 isn't a disease - it's a condition. A disease involves a foreign body. 2) type 1 isn't 'part of the pancreas not working' - it's part of the pancreas *missing* (which is why I said you might as well be looking for a cure to a missing limb). 3) for those of you who think I'm mean because I say there's no hope for a cure and people just need to get on with it - I was diagnosed at 3 years and 3 months with 'close to death DKA'. When I started I was on beef insulin which also nearly killed me, and my parents used to have to use glass syringes that they had to sterilise after use. My mother admitted to being 'scared' of me. None of the young ones now have to deal with that kind of stuff, and I'm afraid they just have to stop wallowing in negativity. It's like being upset that your eyes are brown instead of blue - you are what you are, and you just have to deal with it. My son was diagnosed at 20 months old. For years (when I was younger) we were told that it isn't hereditary, but it sure as hell is. My parents, between them, have 13 siblings. Each of them has between 2 and 4 children, and I have 2 siblings myself. I'm the ONLY diabetic OF ANY KIND in that bloodline, apart from my son. It's hereditary. Genuinely the darkest day of my life when I diagnosed my baby boy. He'd only been walking about 6 months. My genetics were to blame for something which I know will be with him all his life. All his life. There will never be a cure. The only thing that I genuinely think would be worse than being to blame for a condition that your son had to deal with all his life would have been if he'd died. I've never known sorrow like that before. But I didn't let it drag me down with feeling sorry for myself. I cried - once. Then I decided that, the massive strong bloke that I see in the mirror every day had come through much worse times than he would ever have to face, and that I would look after him so he'd never really be bothered by it. I got him on an insulin pump immediately, taught my wife how to count carbohydrates, and we got on with it. The biggest issue for me is how health and safety laws now require him to be classified as 'special needs' - there's nothing special needs about either of us. On the very rare occasion he's ever complained about being diabetic (usually during set changes, which sting a bit), I tell him that Iron Man needs the arc reactor (the light on his chest) to keep the shrapnel in his chest from killing him. We need the insulin pump to keep us alive. We're superheroes like iron man. And we are. Feeling miserable about it and wish there was a cure? Get over it - you're wasting your brain power and your life. Use what certainly hasn't killed you yet to make you stronger, and don't focus on media hype about cures. Until a fabled cure is available as a pill at your local chemist, there's nothing to get psyched about. 4) DO hope for better treatments. I can't wait for artificial pancreases (next gen pumps) and smart insulin sounds great (although a bit 'blue sky' as far as I'm concerned). Over the last 38 years of being type 1, I've seen a huge change in treatment, and I feel 'less diabetic' now than I ever did, thanks to my pump. Big issue for me is the background side effects that seem to get you as diabetic even if you have good control. My hba1c's have never been above 7.2, but I notice my right hand heals slower than the rest of my body, for example. I hope that new treatments like the AP and smart insulin will have such tight control over blood sugars that these complications will go away too, but until we have them - and they work correctly - we won't know. I'd previously left the above out of this thread, as it's about a cure, not treatments. I'm not devoid of hope, but given medical progress and the condition itself, my hope is pointed in the right direction. ;) [/QUOTE]
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