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T1 for 32 years but now starting to struggle!!

SG76

Newbie
Messages
1
Type of diabetes
Type 1
Treatment type
Insulin
Hi All,

I have been T1 since I was 14, so 32 years now. Even as a teen going through school, college and the normal teen stuff, my control was always pretty good. I had the odd few 'why me' times and a few rebellious stages but my control always remained good to very good. Fast forward to now and things have started to go wrong. For the last few years I have struggled to get things under control and even using the Libre has not helped much. I just seem to have forgotten everything I should know inside and out. I've had a bit of a jolt* this week and it has made me realise I really need to do something drastic to get things back to where they should be. *I have to have some surgery and during the pre-op assessment I was asked about my control. I did explain that it's not been perfect but didn't think it would have any bearing on the surgery. The nurse explained that my HBA1c had to be 69 or below to be able to go ahead with the surgery and she asked for a blood test so they could check. (Part of my recent issues have been missing my last 2 reviews so there was no up to date result) I was called the next day to be told my Hba1c is at 79 and I was being taken off the waiting list for surgery until I can get it below 69. This made me realise how bad things have become :(

I have now decided to totally change my diet, increase my exercise (typing this is more than I get most days), lose the 15kg extra weight i'm carrying and get this **** thing under control. Even with this new found enthusiasm, I have really struggled to get anywhere near a straight line on my Libre for the last few days....think the Himalayas and that will give you an indication of the graph I have. I seem to have forgotten my carbs, my insulin ratio, my timings...everything. I really need to have a big reset and I am going to need some help doing this.

I am going to book a review in as soon as I can and am hoping I can get some time with my DSN and dietician but the one thing I really lack and, in the past I have found helpful, is actually knowing a fellow T1. Over the years I have known lots either through work or through friends but now, for one reason or another, I don't see any of them. That's mainly why I decided to come on here as, as well as hopefully getting some expert help, I might connect with T1s who have been or are going through a similar experience. It would be great to meet up face to face with other T1's as well so if anyone out there is from Poole, Dorset and fancies a coffee at some point, let me know.

Anyway, thanks for listening :)

Scott
 
Hi @SG76 ,

Welcome to the forum.

Do you live by the pen or the pump?

It great you’ve decided to re establish contact with your diabetic team.

If it’s any consolation to you. I’ve had a bit of a “shake up” recently myself after a load of post covid delayed check ups?
I actually just got off the phone when a DSN called me to follow up an appointment I had with her last week. (We ran out of time.)
I got another one with an endo tomorrow..

Have you recently done a basal check to make sure the “foundations” are steady before changing anything else..?
 
Yes similar, i put it down to long term complications, less hypo aware. I'm on a pump now which helps. I breezed through adolescence and adulthood until 55 ish. Now finding things tougher.

Which area,are you?
 
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