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<blockquote data-quote="debrasue" data-source="post: 1238905"><p>I think the issue is not so much that the DCUK site is not private; I imagine most of us realised that when we joined. But the site is not particularly likely to attract casual browsers without any connection to diabetes. </p><p></p><p>Facebook, on the other hand. is pretty much an open forum and encourages casual browsing across the entire site. It is also poorly regulated and controlled and, although I am a Facebook user, I am very cautious about what I post and take great care to protect people and material that I choose not to make available to the public forum. In my opinion, the opportunities for abuse in such a poorly-regulated forum are immense, particularly if one's personal health issues are to become the subject of open discussion on Facebook.</p><p></p><p>I appreciate that DCUK wishes to attract new members and social media offers an opportunity to reach a great many people with minimum effort. However, with a subject as sensitive as diabetes, I assumed that either some form of censorship would be brought into play to protect members' anonymity, or members would be notified in advance of the intention to "publish" any of their material. This seems a pretty basic courtesy which would be very easy to manage, and I am dismayed to find that it is not the case.</p><p></p><p>This revelation has certainly had an impact on what I am prepared to share on the forum in the future, and leaves me questioning my safety as a member and the protection of my confidentiality.</p></blockquote><p></p>
[QUOTE="debrasue, post: 1238905"] I think the issue is not so much that the DCUK site is not private; I imagine most of us realised that when we joined. But the site is not particularly likely to attract casual browsers without any connection to diabetes. Facebook, on the other hand. is pretty much an open forum and encourages casual browsing across the entire site. It is also poorly regulated and controlled and, although I am a Facebook user, I am very cautious about what I post and take great care to protect people and material that I choose not to make available to the public forum. In my opinion, the opportunities for abuse in such a poorly-regulated forum are immense, particularly if one's personal health issues are to become the subject of open discussion on Facebook. I appreciate that DCUK wishes to attract new members and social media offers an opportunity to reach a great many people with minimum effort. However, with a subject as sensitive as diabetes, I assumed that either some form of censorship would be brought into play to protect members' anonymity, or members would be notified in advance of the intention to "publish" any of their material. This seems a pretty basic courtesy which would be very easy to manage, and I am dismayed to find that it is not the case. This revelation has certainly had an impact on what I am prepared to share on the forum in the future, and leaves me questioning my safety as a member and the protection of my confidentiality. [/QUOTE]
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